exiledcourtney
Member
- Joined
- Oct 21, 2020
- Messages
- 11
- Reason
- Undiagnosed
- Diagnosis
- 00/0000
- Country
- US
- State
- AZ
Hello I am new here & thought I would get advice & what I should do? I am not getting answers from any doctors what so ever. I have pretty much done every test doctors could throw at me & they all come back saying I am perfectly fine. Anyway here are all my symptoms.
1. I have vision issues I am sensitive to bright lights & white backgrounds like this forum it makes my head hurt lol.
2. I experience constant head pain/migraines
3. I get extremely dizzy & fatigued easily. I mean to be truthful I can't even vacuum or clean the house without almost falling over
4. I have constant nerve pain all throughout the left side of my body.
5. I have trouble lifting things with my left arm
6. I wake up in the morning feeling extremely tired even though I get a 8-10 (sometimes even 11) hours of sleep
7. my hand eye co ordination is completely off
8. I get mentally fatigued easily. When I suffer mental exhaustion my body feels like I am physically fatigued as well. I mean trying to type this out is making my head hurt & starting to feel extremely dizzy
9. I can't write with a pen or pencil I mean I can but it eventually starts getting sloppy
10. I have short term memory loss you will tell me to do something & I will forget within seconds.
11. I have breathing issues
12. I have a lot of sinus issues & it makes my pain act up. I take all the sinus medication in the world & it feels like my sinuses are inflamed & it causes all my nerve pain, head pain & etc to flair up.
13. You can stick a needle into my left arm & it will hurt like I am being stabbed with a knife & in general I feel pain all throughout my body.
I have been to allergy doctors, neurologists, breathing doctors, primary care doctors & every medical tests I have taken all come back 100% clean. Truthfully I have had to quit my job because my issues. They used to be flair ups here & there but now they have become a constant pain. I mean I know this isn't recommended but I was looking for answers myself since doctors are baffled why I have all of these issues. So I looked it up & all my issues point to fibromyalgia especially since doctors are not finding anything wrong with me. I have even been in the ER numerous times & nothing. Even the ER says I am perfectly fine. They just inject a bunch of pain medication into me & send me home.
My primary care doctor gave me lyrica & it seriously numbed the pain down to pretty much a dull ache & my issues seemed to be improving only thing is I can't take lyrica do to the side effects it where giving me despite helping me. I was also given Gabapenten 300MG does nothing for me while 600MG made me feel like I was going to die.
So I am wondering where do I go from here? none of my doctors are saying I have fibromyalgia but I have done pretty much every test in the book & doctors can't find an answer for my issues at all. None of them are wanting to say it's fibromyalgia despite all the symptoms lining up & pointing to it so. What do I do at this point? I feel like no one really believes I have these issues since all the tests come back clean truthfully.
1. I have vision issues I am sensitive to bright lights & white backgrounds like this forum it makes my head hurt lol.
2. I experience constant head pain/migraines
3. I get extremely dizzy & fatigued easily. I mean to be truthful I can't even vacuum or clean the house without almost falling over
4. I have constant nerve pain all throughout the left side of my body.
5. I have trouble lifting things with my left arm
6. I wake up in the morning feeling extremely tired even though I get a 8-10 (sometimes even 11) hours of sleep
7. my hand eye co ordination is completely off
8. I get mentally fatigued easily. When I suffer mental exhaustion my body feels like I am physically fatigued as well. I mean trying to type this out is making my head hurt & starting to feel extremely dizzy
9. I can't write with a pen or pencil I mean I can but it eventually starts getting sloppy
10. I have short term memory loss you will tell me to do something & I will forget within seconds.
11. I have breathing issues
12. I have a lot of sinus issues & it makes my pain act up. I take all the sinus medication in the world & it feels like my sinuses are inflamed & it causes all my nerve pain, head pain & etc to flair up.
13. You can stick a needle into my left arm & it will hurt like I am being stabbed with a knife & in general I feel pain all throughout my body.
I have been to allergy doctors, neurologists, breathing doctors, primary care doctors & every medical tests I have taken all come back 100% clean. Truthfully I have had to quit my job because my issues. They used to be flair ups here & there but now they have become a constant pain. I mean I know this isn't recommended but I was looking for answers myself since doctors are baffled why I have all of these issues. So I looked it up & all my issues point to fibromyalgia especially since doctors are not finding anything wrong with me. I have even been in the ER numerous times & nothing. Even the ER says I am perfectly fine. They just inject a bunch of pain medication into me & send me home.
My primary care doctor gave me lyrica & it seriously numbed the pain down to pretty much a dull ache & my issues seemed to be improving only thing is I can't take lyrica do to the side effects it where giving me despite helping me. I was also given Gabapenten 300MG does nothing for me while 600MG made me feel like I was going to die.
So I am wondering where do I go from here? none of my doctors are saying I have fibromyalgia but I have done pretty much every test in the book & doctors can't find an answer for my issues at all. None of them are wanting to say it's fibromyalgia despite all the symptoms lining up & pointing to it so. What do I do at this point? I feel like no one really believes I have these issues since all the tests come back clean truthfully.