Aildhe
New member
- Joined
- Apr 8, 2015
- Messages
- 5
- Reason
- DX FIBRO
- Diagnosis
- 01/2015
- Country
- US
- State
- Missouri
I'm 28 years old and I was diagnosed with Fibro in January of this year.
I guess, for me, I really started noticing the pain around the age of 14. I was always a really active kid with sports and whatnot so I always thought that the pain was normal, until one morning I woke up and I couldn't walk. And then my shoulders would hurt. .Just this thrum of pain all the time that went down my arms and in to my fingers, making my hands shake and tingle.
So my parents took me to the hospital and they did Cat Scans and MRI's and blood tests and couldn't find anything wrong so they dropped it. And eventually everyone stopped believing me and I was alone. Every time I'd have a flare up where I couldn't walk or was so weak I had to crawl and I'd drop things because I couldn't get my fingers to grip anything, I'd go to the hospital. And every time they told me that it was probably just a muscle tear and they'd give me steroids and pain killers. None of it ever helped, so over the years I'd stopped going and stopped telling people I was hurting.
I have headaches every day and migraines a few times a week, my skin sometimes really hurts when touched by anything, even cloth. My back, shoulders and my neck kill me, I have constant tingling in my fingers and my toes. Pain shoots through my feet every time I take a step and I'm always spacing out. My hands hurt and they shake and I am beyond tired all the time but I never sleep well.
Then finally, I couldn't raise my arms at work so I went to yet another doctor because I was desperate and was told that there was something worse going on and that I needed to find a new primary physician. So I did and within a week of that appointment I was diagnosed with Fibromyalgia, IBS and severe depression and anxiety.
14 years and I finally have an answer and I thought that receiving an answer would at least give me hope but it doesn't.
So. . I'm joining this support group and forum because I really need to know that there are others that feel the way I do, not that I would wish this on anyone but. . for once it would be good to know that I'm not alone in the pain and that others know what it's like and how hard it is to force yourself out of bed every day to go to work.
Thank you for your time and I'm so sorry that this is as depressing of a post as it is. I'm looking forward to getting to know all of you and working together with you to cope.
Thank you again,
Aildhe
I guess, for me, I really started noticing the pain around the age of 14. I was always a really active kid with sports and whatnot so I always thought that the pain was normal, until one morning I woke up and I couldn't walk. And then my shoulders would hurt. .Just this thrum of pain all the time that went down my arms and in to my fingers, making my hands shake and tingle.
So my parents took me to the hospital and they did Cat Scans and MRI's and blood tests and couldn't find anything wrong so they dropped it. And eventually everyone stopped believing me and I was alone. Every time I'd have a flare up where I couldn't walk or was so weak I had to crawl and I'd drop things because I couldn't get my fingers to grip anything, I'd go to the hospital. And every time they told me that it was probably just a muscle tear and they'd give me steroids and pain killers. None of it ever helped, so over the years I'd stopped going and stopped telling people I was hurting.
I have headaches every day and migraines a few times a week, my skin sometimes really hurts when touched by anything, even cloth. My back, shoulders and my neck kill me, I have constant tingling in my fingers and my toes. Pain shoots through my feet every time I take a step and I'm always spacing out. My hands hurt and they shake and I am beyond tired all the time but I never sleep well.
Then finally, I couldn't raise my arms at work so I went to yet another doctor because I was desperate and was told that there was something worse going on and that I needed to find a new primary physician. So I did and within a week of that appointment I was diagnosed with Fibromyalgia, IBS and severe depression and anxiety.
14 years and I finally have an answer and I thought that receiving an answer would at least give me hope but it doesn't.
So. . I'm joining this support group and forum because I really need to know that there are others that feel the way I do, not that I would wish this on anyone but. . for once it would be good to know that I'm not alone in the pain and that others know what it's like and how hard it is to force yourself out of bed every day to go to work.
Thank you for your time and I'm so sorry that this is as depressing of a post as it is. I'm looking forward to getting to know all of you and working together with you to cope.
Thank you again,
Aildhe