I suffer from the muscle jerks, too. They weren't there from the beginning, but surfaced during a very bad flare. It was really scary, but after numerous tests, including a spinal tap, nothing seemed to show up. So, it was attributed to my fibromyalgia. Seems like some new symptoms can come about during a flare and never go away....like the muscle jerks. There are some things that seem to make them worse- *always worse during a flare up, *overdoing it or walking or using muscles too much will make them tremble and shake. They are always worse, or more noticeable when I am at rest or trying to sleep. When I am moving around they don't bother me as much, but they will literally cause me to jerk myself "awake" when I'm trying to sleep at night. The only thing that I have found that will work is Klonopin. I don't like taking it because it is a "scheduled" substance, but I take a very, very small amount...0.5 mg and most of the time I take only half of that, so 0.025mg. I have tried to quit taking it and don't have any trouble discontinuing, but the muscles jerks come back. I just don't like feeling dependent on medication to function, but this disease is a hard one to fight. Sometimes, I have to give -in and take some medication to manage the most important things- like getting good sleep. Hang in there and know you aren't alone. Be good to yourself, we all know we could use a little "goodness"
