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Elizabethh

New member
Joined
Mar 17, 2014
Messages
2
Reason
DX FIBRO
Diagnosis
08/1995
Country
US
State
Il
Hi,I

I was first diagnosed with Fibro in 1995. A pain specialist confirmed it in 1998. I am bipolar, have disc problems in my back and now need a second foot surgery to fuse the bones in the middle of my right foot after it was crushed in a car accident. I have been on disability since 1998. I work one afternoon a week as a reference librarian, and spend one day a week with my nieces ages 15 months and 3 years. I am 48. I moved home with my parents when I went on disability. I was in a wheel chair and not able to afford to stay out on my own. Now 15 years later I am not in a wheel chair, but still in a lot of pain, but it is becoming my turn to care for my parents, as neither of them is in good health anymore. I am finding being a care giver very hard when sometimes I am not sure I am up to taking care of me. I survive. Since the car accident in 2012 I have not been able to walk without every step hurting. The surgeon thinks fusing my foot would help the pain, but right now I don't know how we would manage with me off my feet for 4 months. Pain medicines don't seem to help. I am experimenting with essential oils, because my doctor doesn't want me to take anything more than Vicodin, and that makes no difference on it at all. I can't even tell I haven't had it when I miss a dose. I have had ups and downs since the fibro was diagnosed, but am frustrated right now. My 3 year old niece loves scrap booking with me, but doesn't understand why I only do quiet things. I wish I had more energy and stamina. Thanks for listening.
 

1sweed

Moderator
Joined
Feb 4, 2013
Messages
1,956
Reason
DX FIBRO
Diagnosis
01/1995
Country
US
State
PA
Elizabethh,
Hi there and welcome to the forum. I was wondering if you could get home health aids to come in and help your parents and even yourself should you decide to have the surgery? Do you have any close friends or family members who could help? A friend of mine in florida, had a foot problem from childhood and had the fusing thing done to his foot and it helped him a lot with the pain and make walking on it easier.

One word of warning though, if you get the home aids to come and help do cooking meals and cleaning, and such. Lock up your valuable items and important papers. That way you won't have to worry about them stealing things while cleaning or providing care.

I am glad to hear you were able to recover enough that you could get out of the wheelchair. Please try not to over do, as I know how hard caregiving is when taking care of parents. I care for my mother and it is a very tiring experience. Please read more of the posts on the forum in hopes that you will gain some coping skills. And post in any topic section. :)
 
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