Whyfor
Active member
- Joined
- Dec 20, 2013
- Messages
- 39
- Diagnosis
- 00/0000
- Country
- US
- State
- CA
Hello to all of you! You seem like such a nice community, and while I admit I've never joined a forum particular to my currently unknown condition, I must say, I feel both excited and nervous!
So, here's my story, put as simply as I can manage: I am a 27 year old female with a ten year history of an unknown disease. It all started with a bad case of mono when I was in high school, and ever since then, I felt like I just never got completely better. Suddenly, my athletic, go-getter attitude was taken from me. I steadily began losing strength in my body, and had to quit playing the cello (which was so hard for me). I eventually became so weak and tired that I tested out of school early, just so I could rest.
From then on, I've spent the years going from one doctor to another, showcasing to them my strange laundry list of symptoms, which include fatigue, a loss of stamina, muscle weakness, bone pain, headaches, joint stiffness, random fevers, food intolerances, and some pretty terrible digestive problems. From the doctors I've seen, I've heard just about everything, including "You're depressed," and, "You must be doing this for attention." Occasionally I've found a doctor who was willing to run a few tests, but most of them come back relatively inconclusive. I've had a few positive ANAs and RAs, but many more negative ones. In fact, the only real test result I ever got back that meant anything was a vitamin D level that was so low, the test couldn't even detect it. Since that test about 3 years ago, I've been on a steady dose of the vitamin, and have seen some minimal improvement, but it certainly hasn't solved my problems.
Recently, I've carefully taken up yoga to try and build up some strength, since I've been so frustrated with my ill health over the years. It's slow going, but I am seeing some muscle building. It's just very difficult, but I try to be as gentle as possible. However, my stamina and pain levels have not really changed. :sad:
One doctor I saw did suggest Fibromyalgia to me, but quickly dropped the diagnosis when she tried pressing on the typical pressure points associated with the condition, and found that I was only really sensitive in the spots around my hips. Most of the other locations, funnily enough, felt pretty nice being pressed, since they tend to be areas where I carry my muscle tension. She sort of shrugged her shoulders and sent me on my way after that, but I've always wondered if I really do have Fibro. I'm just so frustrated.
Well, thank you so much for letting me ramble, you guys! I really appreciate the community you have here! Wandering through has already provided me with a wealth of information!
So, here's my story, put as simply as I can manage: I am a 27 year old female with a ten year history of an unknown disease. It all started with a bad case of mono when I was in high school, and ever since then, I felt like I just never got completely better. Suddenly, my athletic, go-getter attitude was taken from me. I steadily began losing strength in my body, and had to quit playing the cello (which was so hard for me). I eventually became so weak and tired that I tested out of school early, just so I could rest.
From then on, I've spent the years going from one doctor to another, showcasing to them my strange laundry list of symptoms, which include fatigue, a loss of stamina, muscle weakness, bone pain, headaches, joint stiffness, random fevers, food intolerances, and some pretty terrible digestive problems. From the doctors I've seen, I've heard just about everything, including "You're depressed," and, "You must be doing this for attention." Occasionally I've found a doctor who was willing to run a few tests, but most of them come back relatively inconclusive. I've had a few positive ANAs and RAs, but many more negative ones. In fact, the only real test result I ever got back that meant anything was a vitamin D level that was so low, the test couldn't even detect it. Since that test about 3 years ago, I've been on a steady dose of the vitamin, and have seen some minimal improvement, but it certainly hasn't solved my problems.
Recently, I've carefully taken up yoga to try and build up some strength, since I've been so frustrated with my ill health over the years. It's slow going, but I am seeing some muscle building. It's just very difficult, but I try to be as gentle as possible. However, my stamina and pain levels have not really changed. :sad:
One doctor I saw did suggest Fibromyalgia to me, but quickly dropped the diagnosis when she tried pressing on the typical pressure points associated with the condition, and found that I was only really sensitive in the spots around my hips. Most of the other locations, funnily enough, felt pretty nice being pressed, since they tend to be areas where I carry my muscle tension. She sort of shrugged her shoulders and sent me on my way after that, but I've always wondered if I really do have Fibro. I'm just so frustrated.
Well, thank you so much for letting me ramble, you guys! I really appreciate the community you have here! Wandering through has already provided me with a wealth of information!