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Ventura

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Michigan
I've seen a lot of specialists... and have been in sever pain for months now. No one can give me an answer. My mom, my grandmother, and my cousin all have fibromyalgia and they strongly think I do. I'll try to explain; all my joins (etc, fingers, wrists, elbows, back of my neck, in the little "pocket" under my shoulders, on my neck on both sides the little "nods" on my head, my knee's, my legs, and feet) all are stiff in the morning, and painful when I do actively. I also have a minor lower back ache.

The doctor notes their is visible swelling, discoloring (looking like bruising) on my hands, knees, feet, and ankles. Again, this is just from the morning times, and moving them around.

I get a lot of head aches, a lot of dizziness, a lot of nausea, bloating in my stomach, lots of fatigue, but can't sleep till wee hours of the night.... and I have huge issues with anxiety, memory issues... (but since I was a kid.. my memory is so crappy, I can be watching a show... and like... it's on the commercial for 2-3 minutes and I can FORGET what I was watching... wtf...) and mood swings :oops: I can't explain it....... the pain is *all* over, al( most like a "throb" ) just in certain places intensified, and when triggered by something, a real b****.

The doctor refuses to properly diagnose me as fiboromyaligia due to my age of 20. He told me "it's extremely rare for a 20 year old to have this", and said he wants to do a bunch of other testing first. He did xrays of my hands, wrists, feet, and ankles. Took over TWENTY viles of blood from me (to the point I felt so dizzy I passed out during the blood testing). He thought I was maybe diabetic, however, those levels came back decent, I'm not over wieght, but have sever high blood pressure... (I have issues with blood platelets, cushing's disease and stomach issues.)

I strongly believe fibormoliga is also what I have... he's just making me wait to test for every other possibility before giving meme the diagnose, and still very hesitant.
 

1sweed

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1,956
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DX FIBRO
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01/1995
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Welcome to the forum. It might be your doctor is just airing on the safe side, as many dieases often start off with the same symptoms. You may have fibro, or even RA or lupus, or it might be something totally different. When I first got sick, I thought it might be Lyme diease, because many of my friends had it and I spent countless hours hiking in the woods and working on farms. But I did not have Lyme diease. Then my symptoms seemed to point to MS, but wrong again. I was tested and retested, x-rays and mri's, but it took many years for my diagnosis of fibro and etc..

The hardest part of being ill is waiting for the true answer to all our questions. We want it to be simple like on tv, where the answer is found at the end of the show or movie. But sadly, life does not really work that way. Please be patient and give your doctor the time needed to find out what is wrong. I know your in pain and wanting answers, so that is why your finding forum is so great. You can now learn management skills for all your problems while waiting for your diagnosis.

Please read back posts and ask more questions. Jump in and answer other peoples questions and offer kindness and support. And even if you don't end up having fibro, you will have coping skills and ideas to share with your family. See you around the forum. :)
 

Ventura

New member
Joined
Oct 25, 2013
Messages
2
Diagnosis
00/0000
Country
US
State
Michigan
Welcome to the forum. It might be your doctor is just airing on the safe side, as many dieases often start off with the same symptoms. You may have fibro, or even RA or lupus, or it might be something totally different. When I first got sick, I thought it might be Lyme diease, because many of my friends had it and I spent countless hours hiking in the woods and working on farms. But I did not have Lyme diease. Then my symptoms seemed to point to MS, but wrong again. I was tested and retested, x-rays and mri's, but it took many years for my diagnosis of fibro and etc..

The hardest part of being ill is waiting for the true answer to all our questions. We want it to be simple like on tv, where the answer is found at the end of the show or movie. But sadly, life does not really work that way. Please be patient and give your doctor the time needed to find out what is wrong. I know your in pain and wanting answers, so that is why your finding forum is so great. You can now learn management skills for all your problems while waiting for your diagnosis.

Please read back posts and ask more questions. Jump in and answer other peoples questions and offer kindness and support. And even if you don't end up having fibro, you will have coping skills and ideas to share with your family. See you around the forum. :)

Thank you for your reply! :)

I've been dealing with the issues since 14 years old. It's just progressively gotten worse. I've had many testings at the hospital stays. (I've been randomly throwing up blood, and in stool... which is another issue.. that they haven't figured out). The doctor's at the hospital thought it was fibromalygia and the fact I have a platelet disorder, bouncing back at each other I've been tested for lupus, etc... (which runs in my family... leukemia, etc) Had a chest xray where I feel pain.. an ultrasound on my neck where I have swelling (they found the gland is twice the size that it's meant to be under my right jaw... but no explanation).

They keep testing me for everything under the sun... nothing is coming up. I'm in so much pain, and due to the platelet disorder I can't take certain over the counter pain medications, so ~ I've asked them what was I suppose to do, 'cause they aren't offering any advice to relieve pain... I'm up all night, getting 3 hours of sleep pulse is constitutionally at 130 a minute. (not over weight)

I asked if they could give me something for relaxing the muslar issue.... they told me they couldn't until all the testing is done....... it's been almost 2 months since I've gone in and tried figuring out all what is wrong with the serious inpacked feelings...

Yet, they treat me like I'm a hypercritical or something...
 
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