AUDREY DARLING
New member
- Joined
- Aug 26, 2022
- Messages
- 3
Hey guys, I have been diagnosed for a year and a half and have been experiencing symptoms for two and a half years. Before my diagnosis, I was very lively and outdoorsy and could barely sit still. When I started experiencing symptoms, my B12 was deficient (the nervous system supplement was so low that my nerves were getting eaten away to make up for that vitamin). As a result, I napped all the time and I mean ALL the time. Now that I am getting back in the groove of things, my parents are not understanding that I need a break. My parents, especially my dad, think that just because all my other test results are normal means I should be able to do everything I used to do, but I just can't. They think I am lazy and ungrateful for trying to get out of things. It is just really frustrating because I just can't keep up with them all the time.
[Our last vacation was at Disney World. We walked upward of 13 miles a day and stood in lines all the meanwhile. Our schedule went something like this, up at 6:30 am, a quick breakfast, bus to the park, eat anywhere from 11 am- 2:30 pm, eat dinner around 6:30-9 pm, and then at the end of the day when the park closed we would go back and possibly swim and then shower; therefore, ending the day just past midnight. We did this schedule for ten days.]
I know I sound really ungrateful, but I can't keep doing this anymore. Trying to keep up with their routine destroys my body for the next couple of weeks. I really need help explaining to my family my illness. (preferably a way that my stubborn parents will understand, without blowing up because they're offended).
Thanks so much in advance <33333 Any advice is appreciated!!!!!
[Our last vacation was at Disney World. We walked upward of 13 miles a day and stood in lines all the meanwhile. Our schedule went something like this, up at 6:30 am, a quick breakfast, bus to the park, eat anywhere from 11 am- 2:30 pm, eat dinner around 6:30-9 pm, and then at the end of the day when the park closed we would go back and possibly swim and then shower; therefore, ending the day just past midnight. We did this schedule for ten days.]
I know I sound really ungrateful, but I can't keep doing this anymore. Trying to keep up with their routine destroys my body for the next couple of weeks. I really need help explaining to my family my illness. (preferably a way that my stubborn parents will understand, without blowing up because they're offended).
Thanks so much in advance <33333 Any advice is appreciated!!!!!