ashlynn26
New member
- Joined
- Jul 17, 2023
- Messages
- 7
- Reason
- DX FIBRO
- Diagnosis
- 02/2021
- Country
- US
- State
- NY
Hi everyone. I was diagnosed with fibromyalgia 2 years ago. I have been sick though for 7 years. One day when I was 19 I was working and my legs just felt very heavy and started to go numb and get tingling. It was hard to walk on them. I worked at a hospital at the time and was told to go to the ER cause I almost fell over. ER said I have GERD and was having a panic attack. Then over the course of 3 weeks I could move my legs, pick my head up, my head was so heavy and hurt and I have to be carried to go to the bathroom. I was taken to another ER and they said I have migraines. A few days later I was worse and brought to a different ER. They basically said it was all in my head. I started to feel better after some time. I have all types of pain and pressure in my head, sharp burning pains throughout my body, numbness and weakness in limbs, hypersensitivity to light, sound, heat and touch. Over the years I have been tested for MS and brain tumors and other autoimmune, neurological and other diseases. Nothing has shown up from the doctors who believed me when I said I don't feel right then the other doctors tell me I'm emotional and need therapy. I have been on meds for fibro for 2 years, duloxetine and then hasn't helped. I have been on muscle relaxers and nerve medication and that doesn't help the pain. I was just put on pregabalin a few days ago. I'm hoping it helps. I used to have a life, friends and boyfriends a great job, I still had flare ups and pain but it doesn't always last this long. Last long bout I had was in 2021 for about 9 weeks. I'm over 3 months right now. I am back home with my parents and unemployed due to my illness. I haven't worked in 3 months and I'm trying to get back to my old self. I barely feel like a person anymore. I've been told to start looking into support groups for my own health and sanity for a while. I find it hard though to talk when I feel this way. I like to isolate, and I guess I've isolated too long, I talk to no one outside of my house and I'm just feeling vey alone. I'm finally ready to talk and get some sort of help or support. I wanted to discuss my specific symptoms with someone because I feel like I'm going crazy, and I really hope I'm not the only one! I know that was a lot but....Hello!!