Hi there, has anyone heard of a link btw FM and Parvovirus?

Status
Not open for further replies.
Hi MayB, and welcome!
Parvovirus B19 is not a virus form that is named in connection with FM nowadays. EBV is named more often (causing 'mono').
There are 9 studies on pubmed trying to find the B19 connection, several in the 1990s & several in the 2000s.
The results point if at all more to a feeling that virus infections may for some be a trigger for FM.
As someone who feels his FM might have been triggered by swine flu (and 'researches' a lot), I'd say:
It will be hard and take a long time to prove if these really are triggers. If at all it will then maybe depend on FM-subgroups that may be found, also difficult to prove. And it doesn't help. Same as trauma as a possible trigger for some. For some it may help cope a bit to be able to blame it on "something" and not ourselves. It's good to try to treat our immune seeming problems with anti-immune supps like our mental problems (e.g. PTSD) with psychotherapy (e.g. trauma therapy), but that will not cure FM, it may just alleviate part of it or make our lives easier. And it doesn't depend on the medical proof of a trigger.
Yesterday, I phoned with the doc who'd unsuccessfully done ozone injections on me a year ago about how to praps get the bills paid for by insurance. When I told him I'm suffering long term from severe jab side effects, he 'knowingly' answered: "yes, you know there were always coronaviruses before COVID 19 [as if we didn't know], and we are now seeing these side effects in people who had these; you may want to come and do another stint of treatment here." Well I didn't laugh in his ear, but how sweetly naive this is: We probably all had these coronaviruses, there is no proof in hindsight that we did or not, nor that this really is the trigger. He'd also obviously forgotten that his treatments didn't help me at all, neither ozone nor acupuncture, and that he'd seen me off with general platitudes that I've always been doing diligently anyway... But a very kind old guy, meaning well.
 
Hi JayCS,
Thanks for your reply and friendly welcome 😊
My Rheumatologist requested parvo testing, apparently it came back positive Igm? Not quite sure what that all means?
In terms of triggers prior to my FM like symptoms I was under heaps of stress, since i have been diagnosed with complex PTSD. My immune system went hey wire, I suddenly started to get allergic to products I have used for years.
I also contracted a bacterial infection. Just one thing after another in quick succession. Too much! Body packed it in.
Sorry to hear you had a rough time with your Dr. I definitely look into Pubmed re: Parvo n FM connection (I like to research also)
All the best Jay 👋
 
My Rheumatologist requested parvo testing, apparently it came back positive Igm? Not quite sure what that all means?
IgM = Immunoglobulin M, the first antibody/immunoglobulin to appear, to help, in this case tackle the parvo. It only stays in the blood for a few months, so it means your B19 virus is that recent - is that possible? If (protective) IgG is not (as) positive, that means this hasn't yet had a chance to build up yet. Do you think your rheum. is putting everything down to B19?
rough time with your Dr.
Oh no worry, that's not at all what I call a rough time in comparison to other docs. :LOL: (The roughest time he gave me I spose was my 2nd trial of acupuncture, altho he was using points meant to be fibro-specific.) Most of my docs (coming up to 50) were really nice tho, and well versed in their areas, but like him - couldn't help much.
 
Hello, my fibro was triggered by human parvovirus. My son caught slapcheek at nursery , and I had never had this as a child so I caught the adult version from him. I spend 6 months barely able to move from my bed. I was a busy mum with a toddler to needing help with getting up and down the stairs and showering. Private rhumotologist found a recent exposure , I was 100% well before this, 5 years of back and forward to specialists I finally got diagnosed after rhumotologist looked at my case notes from all my specialists, gastro, neurology migranes, etc and made a diagnosis. The initial parvo may of cleared from my body, but this trigger was day 1 in my belief.
 
Status
Not open for further replies.
Back
Top