TheBoyRooney
Member
- Joined
- Jul 29, 2015
- Messages
- 12
- Reason
- DX FIBRO
- Diagnosis
- 00/0000
- Country
- IRL
- State
- Wexford
Just got diagnosed with Fibromyalgia.I don't know if I have it for sure or if the Neurologist was just guessing cause he had no clue what was wrong with me.They say I have to do one more test,electrical something or other?
My brief history is that ive always suffered from depression,or a tightness in my brain over the years and I would always be so tired,physically and mentally.But I coped with it.
around 4 years ago I started to get a pain in the bottom of my back,i was sure I had cancer or something.This pain was accompanied by stiff neck and awful headaches,which made the depression seem good when compared to it.
Again I could cope with it although it was awful...In October 2014 I got very sick felt like I was dying,pains down the back of my back and I couldn't turn in bed or the pain would be overwhelming.I couldn't breathe and went to doc and he sent me to hospital with suspected Pneumonia.Hospital did xrays and sitting there unable to breathe they said there was nothing on the x ray.I couldn't catch a breath and they said "nothing wrong?"
Over the following months I was in awful agony and lowness,just pains and aches all over...It felt like I was dying...Now they levelled out over time ,after visit to doc she prescribed LYRICA which seemed to help.
As the months went by the feeling of all over awfulness eased but what was left is what I have now which varies from 3 or 4 pain to 7 or 8.
+Every second week feels like I have cold,runny nose etc,sore lungs
+back of breastbone and shoulder on left side in total agony especially when it flares up
best describe as a dull ache,hard to describe
+Constant stiff neck which gets worse as it flares up.
+Headaches but eased by prescription of anti depressant
+Bottom of back total agony.
+hips sore,pins and needles in buttocks and knee and thighs throbbing pain most left side
+Hair falling out rapidly
+All my joints very sore to press..
+sometimes I feel like my feet are not hitting the ground+
+in morning get terrible cramps and what feels like acid in my mouth
+ gum recession
+Terrible bloating and wind.
+Always wrecked tired falling asleep as night goes on.
+Totally shattered on waking
+Id forget my head if it wasn't on my shoulders,forgetting everything
+sex drive gone
+My penis feels numb
+I don't seem to feel joy.If I win on a horse its "meh" if I lose its depression town?
+ MUscles all sore packed tight
+bloodshot eyes
+Muscles cramp at will whilst in bed
+twinging eyes,ie twitching
+Pins and needles in arms.
+
The funny thing is though I can play sport without much pain? but afterwards for days it flares up..Its just so frustrating.
I have to drive an hour a day to work,which is tough but coming home is the hardest,pins and needles and aches.
It really is an awful predicament made worst by the fact that people don't believe you cause you don't look sick..
My biggest fear is whats going to happen next.I am not afraid of dying but I am afraid of constant pain for the rest of my life.I feel terrible now but I am taking lyrica and Duloxetine.Which has helped my mood no end but the pains are never ending.
Sorry for boring you all,im going to read other peoples stories now,i still have to have 100 per cent confirmation that I have FIBROMYALGIA but it's good to know that you are not on your own.
Thanks all
My brief history is that ive always suffered from depression,or a tightness in my brain over the years and I would always be so tired,physically and mentally.But I coped with it.
around 4 years ago I started to get a pain in the bottom of my back,i was sure I had cancer or something.This pain was accompanied by stiff neck and awful headaches,which made the depression seem good when compared to it.
Again I could cope with it although it was awful...In October 2014 I got very sick felt like I was dying,pains down the back of my back and I couldn't turn in bed or the pain would be overwhelming.I couldn't breathe and went to doc and he sent me to hospital with suspected Pneumonia.Hospital did xrays and sitting there unable to breathe they said there was nothing on the x ray.I couldn't catch a breath and they said "nothing wrong?"
Over the following months I was in awful agony and lowness,just pains and aches all over...It felt like I was dying...Now they levelled out over time ,after visit to doc she prescribed LYRICA which seemed to help.
As the months went by the feeling of all over awfulness eased but what was left is what I have now which varies from 3 or 4 pain to 7 or 8.
+Every second week feels like I have cold,runny nose etc,sore lungs
+back of breastbone and shoulder on left side in total agony especially when it flares up
best describe as a dull ache,hard to describe
+Constant stiff neck which gets worse as it flares up.
+Headaches but eased by prescription of anti depressant
+Bottom of back total agony.
+hips sore,pins and needles in buttocks and knee and thighs throbbing pain most left side
+Hair falling out rapidly
+All my joints very sore to press..
+sometimes I feel like my feet are not hitting the ground+
+in morning get terrible cramps and what feels like acid in my mouth
+ gum recession
+Terrible bloating and wind.
+Always wrecked tired falling asleep as night goes on.
+Totally shattered on waking
+Id forget my head if it wasn't on my shoulders,forgetting everything
+sex drive gone
+My penis feels numb
+I don't seem to feel joy.If I win on a horse its "meh" if I lose its depression town?
+ MUscles all sore packed tight
+bloodshot eyes
+Muscles cramp at will whilst in bed
+twinging eyes,ie twitching
+Pins and needles in arms.
+
The funny thing is though I can play sport without much pain? but afterwards for days it flares up..Its just so frustrating.
I have to drive an hour a day to work,which is tough but coming home is the hardest,pins and needles and aches.
It really is an awful predicament made worst by the fact that people don't believe you cause you don't look sick..
My biggest fear is whats going to happen next.I am not afraid of dying but I am afraid of constant pain for the rest of my life.I feel terrible now but I am taking lyrica and Duloxetine.Which has helped my mood no end but the pains are never ending.
Sorry for boring you all,im going to read other peoples stories now,i still have to have 100 per cent confirmation that I have FIBROMYALGIA but it's good to know that you are not on your own.
Thanks all
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