How are you today?

[Auriel]

Oh I'm sad your appointment got cancelled, will it be a quick new appointment then? (Bunnies are cute)

 

[SBee]

Bunnies really are cute @Auriel. But I was not a happy bunny to have my appt cancelled!

Hares are one of my favourite creatures, never fails to make my heart skip if I see one. This time of year they get very active again. Lucky to have them so close to where we live. Magical little things.

am awaiting the hospital to call me to remake a new appt, so keep your fingers crossed

 

[Auriel]

I will cross my fingers, my toes, (and my eyes for you ) pretty sure the other member's will hope for a speedy new one for you too.

 

[SBee]

Well @Auriel your extra special thoughts worked! So you can uncross your eyes now. ( reminds me of parents saying stop pulling that face- if the wind changes you'll stay like that. And we dont want your eyes to suffer.

So phone call first thing and they have managed to book me in at the main hospital next week as I will be there anyway for a long awaited rheumatologist appt! Two birds and one stone etc.
So I need only do one 40 mile round trip rather then two separate ones. I call that a successful phone call. maybe today will be a nice day

 

[Auriel]

That's amazing @SBee (so happy for you ), 40 mile trip though

 

[SBee]

Yes 40 miles @Auriel. Its our closest large hospital with a rheumatologist dept and x-rays. We do have a couple of smaller facilities ( like the old cottage hospitals?) But they just do physio or day surgery stuff.
Least I'm booked in so one step further ( so to speak) to see whats going on with my stupid feet and to check inflammatory arthritis progress... I feel a meds review is needed. That consultant doesnt know how prepared I shall be with a list of questions and explanations I need thank you as always for your lovely support. Your posts are always like a written hug

 

[Badger]

Well I don't think I will trying a CBD patch again. Popped it on last week and a few hours later an awful wave of fatigue hit me. I read that it can increase the sedative effect of meditation. Perhaps they were too strong but I have a feeling that it doesn't agree with me. A nice mellow spliff with a cup of tea would be nice though.

 

[SBee]

Sorry it didnt work out for you @Badger. Worth trying a different form like tincture maybe? Not sure how effective the gummie forms are. Sound better the gummies for anxiety rather than pain relief.
Maybe the smoking side is a happier way for you? Think I'm right in saying its legalised in UK if its personal use? But please dont quote me on that

 

[Badger]

Unfortunately it's not legal here, the medicinal kind is only strictly available for certain conditions. It would be nice though, although it would have to be the right strain for me.

I wonder if it would be worth cutting n the patches in half to lower the dose. Otherwise I might have a look at tinctures soon.

 

[SBee]

Good idea @Badger... This might sound a bit unconnected, but its not uncommon for women on hrt patches who are increasing their strength to find the higher levels are initially too strong, with difficult side effects, so they would go upwards in smaller increments.
If someone was extremely sensitive to change they may even use a 1/4 new patch alongside their current dose until their body adjusts, then increase a little more each time.
Something I had needed to do and works out very well.

Glad you told me cannabis is still illegal here, must be thinking of changes in classification of drugs.

 

[Burns79]

Uk based as well, If you have the money you can easily get prescribed cannabis In the uk given your fibromyalgia diagnosis, but you cannot get through NHS, only a very very small range of illnesses are included and fibromyalgia isn’t close to being one of them.i went through curaleaf, they don’t really give a crap about you personally as they just want money being private but it is prescribed by a legally/on the register British doctor. Consultation every 3 months at 50 quid along with an ounce of weed(only what I was wanting)180 quid and 100 vial of oil. First appointment you had to buy a vape machine as well for 200 quid, so 530 quid first prescription, then 300 per month and 50 quid extra every 3 months for repeat prescription. Dear right. Does it afford you any rights in the uk even being prescribed by a registered doctor?, no. It’s still an illegal B class substance. And even with NHS prescribed, laws still apply, driving road tests, airport security, smoking in the street, etc, all liable for a police caution. Home only. Smoked for years prior to fibro, only thing for me that alleviates the pain. Edibles/shatter/oil/ are strong and shouldn’t really be used during the day if you want to function lucidly, So it’s my usual every month ounce street deal. Not ideal.

 

[Badger]

That's interesting, thank you for sharing, expensive as you say. I had mixed results smoking occasionally in the past. When it did work it was nice, but local means are unreliable and not worth it. Otherwise I have my Friday night whiskey. There's such variety in the strains there must be one that agrees with us.

 

[Auriel]

@SBee , how did the trip go?, Did you fare ok with the long miles? (My upper back cramps from long trips)

 

[SBee]

Hi lovely @Auriel thats so sweet of you to ask. I hate journeying, I get all stressy, worry I will be late, obsessively check I have the right appt date etc and thats me in bits before I even go through the door! Then end of it all, body aches and fatigue.. Gotta be done though.

But I got the xrays done very quickly - the inflammatory arthritis has indeed spread to my feet, and I saw my new rheumatologist consultant for the first time - and it was a really good appointment. He listened to me, examined and asked relevant questions, answered my questions ( including a quite important one in that no medical professional actually understood the diagnosis his predecessor gave!).

Also he actually addressed the fibromyalgia in conjunction with the OA and inflammatory arthritis. Thats a first for me, gave me a bit of extra confidence to discuss that.

Unfortunately he agreed that the current meds I was on just werent doing much, so I have had to up my injections and double the oral meds, which in some ways is good if it helps, but am a bit peed and down it will be another long wait to see if they are effective. If not its a full body mri and a complete med overhaul.

Thanks you sweet soul for asking.

 

[Auriel]

That's ok,