How are you today?

[SBee]

Hey @Auriel am glad you went back to drs about you thyroid - they are annoying little devils that seem to thrive on getting up to no good. But it's sad ( but not unusual) to lose confidence in your own drs surgery. It can make us inclined to not ask for advice as much as we should as we dont trust them as much. And that can damage our stress which does the spiral effect on our bodies and minds.

worth seeing if there is a more reliable dr in your surgery if that is feasible? I try to see the same dr for a 'continuing problem' but thats not always possible. And when you have multiple conditions involved think we dont contact drs as often as needed maybe?
you take good care of yourself Auriel

 

[Auriel]

Hi @SBee , I feel SO much better since the dose change (I was sleeping so much previous, I was expecting 7 dwarves to come in + put me in a glass case! ) yes I might speak to male dr's in future about it (or maybe see private again, it causes expense but worth it, I was nearly fainting + dizzy prior ) anyway, hope everything's ok on your side of thing's

 

[Harpy]

Hi @SBee , I feel SO much better since the dose change (I was sleeping so much previous, I was expecting 7 dwarves to come in + put me in a glass case! ) yes I might speak to male dr's in future about it (or maybe see private again, it causes expense but worth it, I was nearly fainting + dizzy prior ) anyway, hope everything's ok on your side of thing's

Good to hear your feeling better.
Hope you’re feeling better lasts a while for you.

I must admit I am feeling great. Best I have in two years. ( touch wood)

I think the relief I have gotten in the past two weeks from my last 10 spinal infections have helped. I asked my rheumy yesterday if he could do all 4 injections instead of the two. He told me he will see how i go. Lucky I am numb ( where i had shingles 5 years ago) at T9 and 10 so I got the T8 and T7 done.
I get 6 more injections done shortly and then see him in his rooms end of May to talk dates for all the radiofrequency ablations.
He is happy now we are at a comfortable stage with my polymyalgia and still have to stay on low does prednisone for a few months now.
Once my spine has settled he will taper the prednisone slowly.

For the first time in too long my light has been lit at the end of the tunnel then it’s just the fibro.

 

[SBee]

Thats good to hear some happy news @Auriel and also @Harpy working through horrible symptoms. I try to work on just one thing at a time to make it less overwhelming if I can. I think most drs check bloods every 3 months after altering a thyroid dose to check your levels Auriel, Harpy, I admire your optimism with so many spinal jabs.

I am a bit of a disaster at the moment. Not sure if I have an infection or a bad side effect to an arthritis medication, but following a few weeks of nosebleeds, I had The Nosebleed From Hell on Monday night... 5 hours of non stop bleeds and vomiting pure blood.I couldn't stop it at all. Worse than a horror film.

Phoned 111 who sent an ambulance due to the amount of blood loss. Eventually it slowed enough but warranted a trip to a&e the next day. Under gp care now, and rheumatologist, so lots of tests and investigations due. Sigh. Cannot seem to get a grip on one thing before something else jumps right in. But the sun's out, and the fresh migratory birds are singing away and the flowers are blooming , so small happy times to enjoy.

 

[Auriel]

Oh @SBee , so sorry, you've been through the wars, did they not keep you in? I hope it gets sorted out (I know the feeling, a good thing followed by bad) life's ebbs and flows sweet's.
You've got our support anyway (it's virtual , but it's there)

 

[SBee]

Thank you lovely @Auriel I have never had a medical 'trauma' ever, so it was really scary. So much blood!
I actually had a mental health video appt the next day and spent most of it crying . So not me. Just too many things happening all at once. Grrr.

No I wasn't kept in, they checked my vitals( look at me all hospital speak!) and as the bleeding was no longer serious I went back into GP care. Still having tests but no clue yet as to the cause - I blame medications but time will tell.
believe me, the support on here is just amazing. And you yourself are always so sweet and caring.

 

[Auriel]

Beautiful day in Wales (woke up the 2nd time today feeling beat up), pushed myself to get a few thing's from our shop, feeling tired, but grateful, blessings everyone!

 

[Harpy]

Thats good to hear some happy news @Auriel and also @Harpy working through horrible symptoms. I try to work on just one thing at a time to make it less overwhelming if I can. I think most drs check bloods every 3 months after altering a thyroid dose to check your levels Auriel, Harpy, I admire your optimism with so many spinal jabs.

Good day SBee, I am trying to be full to the brim with optimism, only positive thoughts. I will get relief , The ablations will work.

I am a bit of a disaster at the moment. Not sure if I have an infection or a bad side effect to an arthritis medication, but following a few weeks of nosebleeds, I had The Nosebleed From Hell on Monday night... 5 hours of non stop bleeds and vomiting pure blood.I couldn't stop it at all. Worse than a horror film.

Phoned 111 who sent an ambulance due to the amount of blood loss. Eventually it slowed enough but warranted a trip to a&e the next day. Under gp care now, and rheumatologist, so lots of tests and investigations due. Sigh. Cannot seem to get a grip on one thing before something else jumps right in.

Oh no that sounded very frightening. Hope the nose bleeds stay away for you.

Oh ain’t that the truth, if it’s not one thing it’s another.

But the sun's out, and the fresh migratory birds are singing away and the flowers are blooming , so small happy times to enjoy.

All of my paper bark trees are in flower. Oh the noise from lorikeets is deafening, but still nice to hear them being so happy for some new blooms.

 

[SBee]

Thank you @Harpy being optimistic is vital. I expect and accept the days when its all overwhelming, life is tough at times for anyone, ill or not but I genuinely feel our minds can help us balance things out a lot of the time.
I need to loom up paper bark trees, they sound beautiful being outside is a kind of therapy for me as it seems for you. Even if our bodies dont let us work outside as much as we like the birds and plants play a big part in (literally) grounding me

 

[Harpy]

Thank you @Harpy being optimistic is vital. I expect and accept the days when its all overwhelming, life is tough at times for anyone, ill or not but I genuinely feel our minds can help us balance things out a lot of the time.
I need to loom up paper bark trees, they sound beautiful being outside is a kind of therapy for me as it seems for you.

Oh yes , it definitely better for our minds to be outside . I also call the paper bark tree ‘tea trees”
If we didn’t have soooo many mozzies I’d be out the back all the time. Most of my plants are hanging from chains now so don’t need to bend over to weed them.

Even if our bodies dont let us work outside as much as we like the birds and plants play a big part in (literally) grounding me
I could live out there if I had more frogs in my garden.

 

[SBee]

I just wanted to wish everyone the best day that they can have, and to know that they aren't alone with all the physical and emotional symptoms that living with chronic health conditions can bring. People on hear listen to you and understand.

a gentle hug to all who need one.

 

[Badger]

@SBee many thanks, I'd also like to wish everyone well today. I'll be taking it easy and hoping to get a better nights sleep.