I have always been a sickly child. I was diagnosed with fibro and CFS when I was 17. It seems to run in my family with at least one case confirmed with an Aunt being diagnosed possibly more. For the past 10+ years I have had a doctor phobia and had stayed away and and off of all the drug therapies that they had tried me on at one time or another. I would always have the weirdest side effects and they would just move me on up the family tree trying every related drug in a hit or miss fashion. It was awful. I was a zombie most of the time and have large amounts of time missing from my life. I guess I just sat in my room. I decided that was not for me when at 19 I was sent to. Hospital in Jacksonville, FL where a doctor came in and told me all of my symptoms where due to depression and I just needed to go back to school. She did not first read my file that clearly documented the at least three separate psych evals that had been previously done due to other doctors telling me it was all in my head, if that fact that we had to fight the state of Florida to allow me into there special needs program for children that were "really sick" in order to finish my education. So I lifer crying and would not agree to go back when she later called to put in some test because she had finally gotten around at looking at my blood work that was "far from normal". I decided I had had enough.
So I went to a functional medicine doctor who put me on Metagenics Ultrameal to balance my blood sugars/hormones and I went to an acupuncturist / herbalist who helped me with psi and fatigue and low immune function. But it was expensive and as I got better the less I could justify the expense. After that I tried to maintain with diet and exercise. I became a vegan and did yoga and ran but slowly things came back.
Now I am 36 with two kids married to an E5 in the Navy and I am having a relapse. A pretty bad, fast deterring relapse. And I am scared. I cannot afford to not work. I cannot afford to be sick, but I cannot afford the treatments that once made me whole (ish).
Is there funding for people like us?
So I went to a functional medicine doctor who put me on Metagenics Ultrameal to balance my blood sugars/hormones and I went to an acupuncturist / herbalist who helped me with psi and fatigue and low immune function. But it was expensive and as I got better the less I could justify the expense. After that I tried to maintain with diet and exercise. I became a vegan and did yoga and ran but slowly things came back.
Now I am 36 with two kids married to an E5 in the Navy and I am having a relapse. A pretty bad, fast deterring relapse. And I am scared. I cannot afford to not work. I cannot afford to be sick, but I cannot afford the treatments that once made me whole (ish).
Is there funding for people like us?