lethal-interjection
Member
- Joined
- Aug 4, 2014
- Messages
- 15
- Reason
- DX FIBRO
- Diagnosis
- 07/2014
- Country
- US
- State
- NY
How long did it take you to find medication that works?
I'm at the end of my rope here, I really am.
Quick background: I'm 18, male, been having symptoms for a little more than a year now, and I just got diagnosed on July 30, with fibro, CFS, and orthostatic intolerance. Since last year the pain has been so severe, around 4-5 days out of 7, I'm spending most of the day crying on my bathroom floor, vomiting, in absolute hell. The other couple of days I'm stuck home in bed or on the couch. When i go to appointments I need a ******* cane just to get around and it's incredibly embarrassing. Fibro ripped my entire life away -- my high school graduation, my friends, my relationship, my job, and all hope of supporting myself. Needless to say, not taking medication is just not an option.
First we tried Lyrica, from the 30th-4th, and the side effects were so nightmarish, there was no question -- it needed to be stopped. From the 5th through today I was starting Savella with the titration pack, and starting yesterday morning when I first woke up, the nausea (I think its a side effect) has been 110% disabling. I had to cancel two appointments because just the motion of trying to get out of bed makes me throw up. Today I called my rheum and she said to stop the Savella.
Monday we're gonna try Cymbalta. They don't want to give me tramadol, though I've asked multiple times, because I'm young and its particularly addictive when you're a kid apparently. I dont know what my other options are if for whatever the Cymbalta doesn't work.
So, I need some encouragement, because I'm very close to breaking. How long did it take you guys to find medications that work -- and for you, what are those medications? All I tale now is vitamin D once a week -- I got off my Zoloft because it wasn't working and it would have conflicted with the Lyrica -- so bad combos or interactions isn't really a concern at this point. I just need to know that this isn't the end of my options...
I'm at the end of my rope here, I really am.
Quick background: I'm 18, male, been having symptoms for a little more than a year now, and I just got diagnosed on July 30, with fibro, CFS, and orthostatic intolerance. Since last year the pain has been so severe, around 4-5 days out of 7, I'm spending most of the day crying on my bathroom floor, vomiting, in absolute hell. The other couple of days I'm stuck home in bed or on the couch. When i go to appointments I need a ******* cane just to get around and it's incredibly embarrassing. Fibro ripped my entire life away -- my high school graduation, my friends, my relationship, my job, and all hope of supporting myself. Needless to say, not taking medication is just not an option.
First we tried Lyrica, from the 30th-4th, and the side effects were so nightmarish, there was no question -- it needed to be stopped. From the 5th through today I was starting Savella with the titration pack, and starting yesterday morning when I first woke up, the nausea (I think its a side effect) has been 110% disabling. I had to cancel two appointments because just the motion of trying to get out of bed makes me throw up. Today I called my rheum and she said to stop the Savella.
Monday we're gonna try Cymbalta. They don't want to give me tramadol, though I've asked multiple times, because I'm young and its particularly addictive when you're a kid apparently. I dont know what my other options are if for whatever the Cymbalta doesn't work.
So, I need some encouragement, because I'm very close to breaking. How long did it take you guys to find medications that work -- and for you, what are those medications? All I tale now is vitamin D once a week -- I got off my Zoloft because it wasn't working and it would have conflicted with the Lyrica -- so bad combos or interactions isn't really a concern at this point. I just need to know that this isn't the end of my options...