How old were you when you were diagnosed?

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cynthia

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My husband is 31 and was just recently diagnosed. But I guess what I am wondering is if there is any 'average' age of diagnosis? Do symptoms peak at a certain point in someone's lifespan?

How old were you when you were diagnosed?
 

diamond

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HI Cynthia...welcome again.

I was in my early 30 s when i got my first signs....but back then it was longer and longer bouts of fatigue.....not just tiredness but couldn't sit at my desk at work fatigue and feeling just flu like.....but back them with lots of rest i kept recovering.

The pain started when i was 46 coming and going then spread everywhere when i was 47.

Your hubby is pretty young I am so sorry you have this to deal with.
 

Ruralchick

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In my 30s and 40s were the constant migraines that had me wondering if I was a fit mother with all the time in bed. When I turned 50 I had grave's disease, (the thyroid goes supernova burning itself and me out). That is when the constant pain and fatigue dug in for the duration. We would deal with one problem after another but not get to the bottom of it. Killed off the thyroid--before it killed me--but had layers and layers of things that just went haywire.

I too am sorry your husband is so young with this! There isn't an 'average" age that I'm aware of and it is so different for each person that some say it gets worse with age but others do better after they find ,(by trial and error), what works for them. Sometimes weather changes or stress can make a person have a terrible flare, you'll just have to try different things. Wish I had a magic wand for you, but don't loose hope, it's overwhelming at first. Read all you can, find a doc that treats FM and be open to supplements. It usually takes a lot of little things to find some kind of balance.
 

diamond

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How badly is your hubby affected. Does he have good days where he can do some things or is he still working?

Pacing is very important so that you stop repeatedly using one group of muscles to the point the pain is severe.....during bad flares the pain can be like this before you start so then resting is important..'but if possible not for too long without stretching them out again.

Stress for me is the real killer and if possible minimize stress as far as is humanly possible.

Again i must complement you for being here asking questions and researching...what a lovely supportive wife!

A good book is First Year with Fibromyalgia by Claudia Marek...full of help tips meds and covers just about everything.
 

flyboy39

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I was 41 when it was finally given the proper diagnosis, but it started when I was 30 and fell off my roof. I see a pain specialist, not a rheumatologist for this as most of them won't treat with the meds I need to so I can function on a daily basis. it did take some time to get everything under control and balanced out. I am in the construction field so it is possible to get back to a active job.
 

lloue

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My Started in my early 20's. Went through SO much with trying to get someone to listen and help. Finally found a Doctor in my early/mid 30's. That i found one who listen and really wanted to help me was so great. He is still my Doctor at 51. So my best advice is to find a doctor that really listens and wants to help you.
So sorry you are having this so young too. Even though Fibro is sometimes nearly unbearable, you really can make it through. Just take it one day at a time,
Sometimes one hour at a time. ;) . And i hope you have family and friends that will help and support you. It's not easy on them either i know. But its hard when people don't believe you or just don't care. But hang in there you can have a good life. You just have to find what will help you, so keep trying and when you need help or just to vent you can always come on here. I wish you good luck and good heath. Take care, Lloue
 

DK_engineer

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I started having chronic migraines when I was 40. I got them under control with diet for several years, then they came back when I was 45. Controlled them again with supplements. Then I got fibromyalgia at 46.
 

PattiD

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I was diagnosed at 50, but I believe I was dealing with it for far longer than that. I have not yet been able to pinpoint when exactly but I believe it was in 20's or 30's. Back then I just thought it was part of working and being a single mom. :)
 

SierraTrout

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Very interesting topic. I am probably an anomaly as I was diagnosed at the age of 60 although was experiencing symptoms 2-1/2 years prior to that. In my case, I pinpoint the cause as emotional stress/trauma as I was experiencing a lot of loss in a relatively short period of time: the death of a teenaged son; empty nest; and the final straw was leaving a job I loved about one year ago. It was just a couple of months after this final event that the more prominent symptoms of FM began to appear. There was also a lot of childhood trauma and loss (like my father dying when I was eight) which my psychologist thinks is also related to my current illness. I'm always curious about what causes some to develop this bizarre and debilitating condition.

So many of you were diagnosed at such a young age and my heart goes out to you. I can't imagine raising young children or trying to get through college with this disorder. Keep up the good fight -- you are all amazing.
 

CrazyCatLady

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I'm 28 and was just diagnosed-- but may have had fibro since my late teens.
The intense pain just started recently and that is why I was diagnosed.
I've had all of the other symptoms since about 16, though.
 
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