- Dec 20, 2021
Hello, hope you feel better today. For what it is worth before I was diagnosed I figured out that taking steroids helped me feel a lot better and did this three times. Each time for a week weeks or a month of so. Each time starting at a high dose and gradually taking less. Each time after a few days I would feel better, then feel virtually normal again for quite a while and then as I lowered the dose it would come back, or it would return when I came off them. My doctor is not interested in any of this and just tells me to put up with it all. Hard to do when it';s you and it affects you a lot physically and pain wise. It changes your life. I would have to get prednisolone myself now secretly imported, as cannot get them the usual way. I noticed when taking the steroids that it was a balancing act. And I have read of people on other forums who take them to help with this, sometimes long term eventually with a maintenance dose. But they have to buy them and work it out themselves. Steroid tablets are very cheap to produce so this myth that you must be careful because they might send you fakes makes no sense with cheap tablets. Its cheaper for them to send you the real thing. Every day we have to gauge how we are an d make decisions based on that. Not easy. Especially when the brain fog kicks in.