- Jun 23, 2021
- DX FIBRO
Anyone else find it hard to discuss how feeling and the pain to partner ? Sick of getting it rubbed in my face
All you can do is refer him to some good articles on fibro, and explain to him that the reason you don't get around the way others do is that you have a condition they don't have!I have a son who asked why I am so sick when his mother and father in law get around so good. He holds this against me
Beautifully said, PeachyWell put sunkakola. I would acknowledge that this is one of the most challenging aspects of fibromyalgia and chronic illness in general, when it is invisible. The terrible loneliness and isolation that we can feel when those we love are not able to recognise the enormous effort we put into our lives to keep going for ourselves and for others. The inconsistency of our health and how one day we might do very well indeed and the next to be bedridden. My own body confuses me so it’s no wonder that it will confuse friends and family. For me, I find It’s very important to cultivate kindness and nurture towards ourselves and hopefully, a couple of people in our lives will step up and do the same. Self care and nurture our essential though. Healthy boundaries and learning to say no and not being too upset if others get bent out of shape because WE KNOW The incredible effort we put in to showing up every day and being the best version of ourselves in spite of the huge challenge of living with chronic illness.
It's really hard for some people to get it, it seems.MY husband as good as he is in many many was struggles with my fibro, he actually asked me this weekend while we were installing security cameras in our house and running the wires "Why do you always poop out 1/2 way trough any project we do?" I wanted to cry at that point because we had been working for 4 hours with only a 5min break, I basically told him that in case you forgot I do have health issues and my battery doesn't last as long as his. he said to me its hard for him to forget is as I'm constantly reminding him of it. His sister is a nurse and both of us have explained my issues, but he doesn't seem to get it. I guess mainly because of the whole one day good and the next flat on my back thing. I swear sometimes I'm losing my mind myself. Right now I'm sitting at work still in pain from overdoing it and I have no time to rest, I see a large flare up coming soon. I just wish he was able to understand more.