Kristin975
Member
- Joined
- Nov 5, 2019
- Messages
- 16
- Reason
- Undiagnosed
- Diagnosis
- 10/2019
- Country
- US
- State
- SD
If someone has time to read. Would love feedback if this seems correct. I am copy pasting from what I put on “do I have Fibromyalgia” board
I am 54 years old. I have been feeling fatigue for a while ( 8/2016) when I looked back in my chart. I would say it has slowly came on and now fast forward around February 2019 still fatigue but more then before and all bloodwork is good.
Now in May I go back because the fatigue is much worse and she checked for hashimoto. Nope that wasn’t it. I also have some brain fog and on and off blurry vision I do have MS in my family. My maternal grandfather had it and I have a few first cousins each from different aunt with MS. So I wasn’t getting anywhere and now I hired a holistic MD Skype appointment and I am thinking maybe my hormones are all out of whack. I do a DUTCH urine test. Nothing really with that either.
Now September comes all of a sudden my muscles and skin hurt I am fatigued usually by noon or 1 pm. I use the carts at stores just to help me almost like a walker in disguise lol This pain and fatigue has snow balled and I am scared. It has gotten worse so fast. My muscles get tired and hurt but no cramps just pain. Also they get what I call earthquakes sometimes almost like a tremor.
My left arm muscles hurt the most but my legs and other arm do but I can tell my left is more weak. I had all kinds of blood test from rheaumatologist He said all my autoimmune markers were fine. I did have 3 tests out of probably 20 that came back significantly high were C reactive protein and Erythrocyte Sedimentation Rate and C reactive protein Quantative.
I just went to be checked at Endocrinologist today because some other physician said to check for cushings. He said no. Rheaumatologist at the end of exam said it was fibromyalgia. He did push in places that I had no idea even hurt and he said autoimmune wouldn’t do that. I did see something online to do a blood test for fibromyalgia and they sent out a test kit and I am waiting for the results. The Endocrinologist said there is no test. I am at a loss to know when do you believe and know they have the diagnosis correct.
Also do these pains ever go away for a month or is this pain stay with you most days?
Does anyone feel like they need to have a cane towards afternoon when muscles get weak? I finally ordered one but it isn’t here yet.
Any answers would be helpful. I don’t have any dragging legs or pin and needles so they didn’t think MS. I have slight burning and just weakness in my muscles. Massage and warmth feel amazingly good. I am just worried since this snowballed so quickly. Even standing is too much.
I am 54 years old. I have been feeling fatigue for a while ( 8/2016) when I looked back in my chart. I would say it has slowly came on and now fast forward around February 2019 still fatigue but more then before and all bloodwork is good.
Now in May I go back because the fatigue is much worse and she checked for hashimoto. Nope that wasn’t it. I also have some brain fog and on and off blurry vision I do have MS in my family. My maternal grandfather had it and I have a few first cousins each from different aunt with MS. So I wasn’t getting anywhere and now I hired a holistic MD Skype appointment and I am thinking maybe my hormones are all out of whack. I do a DUTCH urine test. Nothing really with that either.
Now September comes all of a sudden my muscles and skin hurt I am fatigued usually by noon or 1 pm. I use the carts at stores just to help me almost like a walker in disguise lol This pain and fatigue has snow balled and I am scared. It has gotten worse so fast. My muscles get tired and hurt but no cramps just pain. Also they get what I call earthquakes sometimes almost like a tremor.
My left arm muscles hurt the most but my legs and other arm do but I can tell my left is more weak. I had all kinds of blood test from rheaumatologist He said all my autoimmune markers were fine. I did have 3 tests out of probably 20 that came back significantly high were C reactive protein and Erythrocyte Sedimentation Rate and C reactive protein Quantative.
I just went to be checked at Endocrinologist today because some other physician said to check for cushings. He said no. Rheaumatologist at the end of exam said it was fibromyalgia. He did push in places that I had no idea even hurt and he said autoimmune wouldn’t do that. I did see something online to do a blood test for fibromyalgia and they sent out a test kit and I am waiting for the results. The Endocrinologist said there is no test. I am at a loss to know when do you believe and know they have the diagnosis correct.
Also do these pains ever go away for a month or is this pain stay with you most days?
Does anyone feel like they need to have a cane towards afternoon when muscles get weak? I finally ordered one but it isn’t here yet.
Any answers would be helpful. I don’t have any dragging legs or pin and needles so they didn’t think MS. I have slight burning and just weakness in my muscles. Massage and warmth feel amazingly good. I am just worried since this snowballed so quickly. Even standing is too much.