I am miserable 😢 New to board

Bambi

New member
Joined
Feb 23, 2021
Messages
1
Reason
DX FIBRO
Diagnosis
07/1992
Country
US
State
CO
Hi everyone. I’ve had fibromyalgia for a long time. I was diagnosed 28 years ago. You would think I’d have a handle on this, but over the past few years, I’ve seemed to just hurt more and more. Right now I take Lexapro , a diuretic for bp, levothyroxine for thyroid. As we live in a state with legal marijuana, I usually take a combination of CBD and TLC in the evenings. It used to help, but doesn’t seem to anymore. I am 5 ft 5 and weigh 162, which is the most I’ve ever weighed but has been stable for the last few years. I walk almost daily. Before the pandemic, I relied on Accupuncture more than I’d realized. I don’t feel comfortable doing that until I am fully vaccinated.
I also have restless legs and sleep apnea and the RLS seems to involve more pain after I get in bed at night. So I’m often awake in pain until 1-2. Lately the pain scares me with it’s intensity. Boring, burning deep pain in my hips, thighs, calves and feet.
I am constantly trying to lose weight without success, partly because I tend to get up and eat carbs at night which seems to finally help me sleep. Because of that, I’m afraid to add on another med that causes weight gain or I’d be asking for amitriptyline since I remember taking it back in the 90s and it did seem to help.
Any thoughts would be helpful. I feel rather desperate. Thank you.
Bambi
 

sunkacola

Very helpful member
Joined
Dec 2, 2016
Messages
1,060
Reason
DX FIBRO
Diagnosis
00/0000
Country
Uni
State
Somewhere
Hi Bambi. and welcome. I wrote all of my best tips for managing fibro in a post that is pinned at the top of the General forum. I hope something there will help you.

I understand the desperation and a lot of other people here will as well. The truth is that if there is anything that will cure this it has not yet been found. That means one of the most important things you can do for yourself is practice acceptance of what is in the moment and work with that. Desperation is only hurting you by increasing the stress in your life, and while you can't just drop it and never feel that way because I say you should, you can do your best to focus on other things. There are many things you can do to help yourself in different ways. If you focus on those things that will help.

I wonder if you could switch those late-night carbs to a different kind of carbohydrate that is not contributing to your weight gain? For instance, potatoes are carbs, and if you kept pre-baked potatoes in your fridge and ate a half of one with a little sale but no butter or sour cream or anything else, that would probably do the same job and would not be high in calories. If you want sweet, try yams or sweet potatoes. There are other things like that you can try. Google: low fat carbohydrate foods for weight loss and see what comes up Good luck to you!
 

Forgetmenot

Extremely helpful member
Joined
Oct 6, 2014
Messages
1,410
Reason
DX FIBRO
Diagnosis
70/2010
Country
UK
State
Hertfordshire
Hay hun,I’ve been getting worse a lot lately .the stiffness is driving me insane,I walk like I’m 90.
It’s breaking me, some of my meds make me super hungry,and cutting out curbs seems impossible,I have no willpower with food.I don’t drink or smoke.food is my vice I guess.if I didn’t feel so insanely hungry I guess cutting out carbs or suger would be great.
I’m writing this in the bath .because my legs hurt so much.all I did was walk the dog.something I do everyday.she maybe be a tiny dog ,but she still needs are walks.
Sometimes it makes u wish you had something worse,so the dr and the world would understand more.
I don’t even get flares anymore I just hurt everyday.
Your not alone .and your welcome to have a bloody good moan.like I just did 😂.
 

Hopefullyyours

Active member
Joined
Aug 7, 2020
Messages
63
Reason
Undiagnosed
Diagnosis
06/2020
Country
US
State
FL
Sry 2 hear that!! I have pain in tissue like legs arms to press on and sittin down in hard chair on my butt. When u say stiffness, do u mean heavy limbs to move? Its what ive had for 8mos and no lettin up. Ughhhh
 

Forgetmenot

Extremely helpful member
Joined
Oct 6, 2014
Messages
1,410
Reason
DX FIBRO
Diagnosis
70/2010
Country
UK
State
Hertfordshire
Stiff as in like u sat down way to long .all the time .it’s got a lot worse since I had the covid jab .my calf’s feel sore to the touch like I’ve been doing squats
 
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