I cannot work anymore

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Vsalazar

New member
Joined
Feb 24, 2020
Messages
3
Reason
DX FIBRO
Diagnosis
07/2009
Country
US
State
CA
I was wondering if anyone was able to get disability. I have fibromyalgia for 13 years with chronic pain in my legs, back and feet. I also suffer from trigeminal neuralgia. It’s impossible for me to know if I’m gonna be able to get out of bed which makes me a unreliable employee.
 
I was wondering if anyone was able to get disability. I have fibromyalgia for 13 years with chronic pain in my legs, back and feet. I also suffer from trigeminal neuralgia. It’s impossible for me to know if I’m gonna be able to get out of bed which makes me a unreliable employee.
I don't know anyone who has received disability benefits for fibromyalgia. You can ask your Dr. to give you a letter for the insurance company and submit it to them, if it meets the criteria for your insurance benefits or government program. It is worth a try.
 
Always worth a try, but I understand Fibro is not recognized by the government in terms of getting disability payments. Also, if I am remembering right, you would have to prove to them that for two years you have not been able to work whatever, not even one day. (Now, how they expect someone to live 2 years without working is a mystery to me - who can do that?!) Still, if you try and enough others try and protest when denied, that might be what changes things, you never know. Good luck!
 
I'm a Canadian so things are different up here. I did have to fight with my insurance co. to get disability and it was only approved because I have depression and anxiety as well. I had to come up with lots of documentation and had 2 dr's state I couldn't work so eventually they approved it. I know health insurance is different in the US but if you have lots of documentation, along with the trigeminal neuralgia, you might be the first to get approved. It you have an underlying mood disorder make sure they know that too. Good Luck. I hope you have more good days than bad.
 
I was approved for disability in 2017 after a 4 year wait. I had to go to a court hearing after being denied. The judge over ruled what the disability doctors said.
Here was my case with him,I was constantly having to change jobs,longest I worked a job was 3 months tops before I couldn't do the work and each job being easier then then one before that before I ran out of places to work. He took that into consideration. We talked about how my pain affected me daily and I had to explain everything including how I don't sleep well and barely get a few hours at a time and usually take several naps during the day.
Then came the medication part. He asked why I wasn't on pain medications and I told him that for my condition,doctors do not write prescriptions for it and I honestly don't want them because I had trouble with them and became very addicted to them..I also explained the medications to help with the symptoms of FMS made me sick and have woke up on the bathroom floor several times trying to take them. I felt like the guinea pig at times with my doctors trying different medications.
My current doctor knows that I can't tolerate the medications and said it's rare but not unlikely that it can happen and that 1 in 1000 or 10,000 are that way.
I was classified as Medical Improvement Expected or MIE but it's gotten worse the past couple of years.
IBS is worse more depression/anxiety fatigue and i have minor scoliosis in my back and neck. My doctor said it shouldn't bother me but I had to remind her that with FMS,I'm more sensitive to pain and that the muscle relaxers help with muscle spasms and stuff but the pain in my lower back in my spine never goes away. She has agreed with me that it does bother me.
It's not an easy thing to get disability for fms alone and i had to prove it was wrecking havoc on my life,which wasn't easy. I've dealt with it since 2006 and worked until 2017 until a fall at work further damaged my back.
Being on disability is a tough decision to make and I'd do anything to go back to work,but it's not possible and my doctor will never allow me to. She said get used to not working. I wqs told by a pain Dr to use medical marijuana if it ever becomes legal in my state,which I never will use. Not because I don't think it would work or against it,I just don't like the effects it has.
The lawyer I had gave me this 1 tip to help get approved and that was to not talk about my symptoms much but talk about how the pain effects my life and answer questions the best I can using pain as much as I could. My lawyer asked 1 question during the hearing and I done 99% of the talking. She said I done a pretty good job and I was prepared well. I told her I didn't prepare,I told the honest truth about things and let the judge decide. The judge I had was decent and I feel we connected well and talked about other things off subject from what I'd expect from a disability hearing.
It's not impossible to get approved, you have to be patient and you will get denied and have to go in front of the judge. Just answer everything the best you can and really make sure they understand how the pain effects your daily life. Good luck
One thing I left out is I had Xrays about 8 months ago and the doctor said she could see muscle spasms on the x-rays. Not sure how but I found that interesting. She even said exactly where they were.
 
Thank you so much for your reply I can relate to everything you are saying. You put into words exactly how I feel and I feel like it’s so hard for me to find my words to explain it. Thank you so much
 
Thank you so much for your reply I can relate to everything you are saying. You put into words exactly how I feel and I feel like it’s so hard for me to find my words to explain it. Thank you so much
I have that problem also,finding how to put things into words. I can be talking and not remember what I'm trying to explain until hours later. Gets frustrating. Crazy how fms has so many different symptoms, no one is the same and there is still no real reason why it happens. I know mine started after a car accident but remember when I was younger having unexplained pain. I'm thinking I had it for longer but was never an issue until the 1st of several accidents that made it surface.
 
I wqs told by a pain Dr to use medical marijuana if it ever becomes legal in my state,which I never will use. Not because I don't think it would work or against it,I just don't like the effects it has.
Hi there, I completely respect your feelings on this because I felt and still feel the same way. I have no desire to be "stoned", and didn't really want to try marijuana for the pain.
But I use medical cannabis almost daily now, and it helps me more than any other medication I have been on. I use the tinctures, because I don't want to inhale anything. I mostly use one that is 1/2 CBD and 1/2 THC. I found that by starting with a very very small amount and working up to the amount that helped with the pain, I could reach a dosage that helps greatly with the pain without making me feel the least bit affected by the drug. This period of experimentation took a few weeks because I went at it very slowly, but now I know exactly how much to take and I won't feel stoned. At night I sometimes take just a little bit more, as it helps me to get a full night's sleep, (and if it does make me stoned I don't know it because I am asleep).

So, not trying to change your mind, just letting you know that you can use medical cannabis without it affecting you in a way you don't want it to. I can drive, do tasks, visit with people, be active, have my normal day and never feel under any influence, just have less pain. It doesn't work on every kind of pain and doesn't work all the time, but it has changed my life for the better.
 
Hi there, I completely respect your feelings on this because I felt and still feel the same way. I have no desire to be "stoned", and didn't really want to try marijuana for the pain.
But I use medical cannabis almost daily now, and it helps me more than any other medication I have been on. I use the tinctures, because I don't want to inhale anything. I mostly use one that is 1/2 CBD and 1/2 THC. I found that by starting with a very very small amount and working up to the amount that helped with the pain, I could reach a dosage that helps greatly with the pain without making me feel the least bit affected by the drug. This period of experimentation took a few weeks because I went at it very slowly, but now I know exactly how much to take and I won't feel stoned. At night I sometimes take just a little bit more, as it helps me to get a full night's sleep, (and if it does make me stoned I don't know it because I am asleep).

So, not trying to change your mind, just letting you know that you can use medical cannabis without it affecting you in a way you don't want it to. I can drive, do tasks, visit with people, be active, have my normal day and never feel under any influence, just have less pain. It doesn't work on every kind of pain and doesn't work all the time, but it has changed my life for the better.
I've tried it and it does work well,but not legal in my state and probably never will be for any use.
I have an addictive personality so I got way out of hand with it's use to the point I was physically sick from using so much and the feeling of being high wasn't much fun either.
I think it should be legal in every state for those who want to use it for medical purposes. I've always been an advocate for it because I know many who it would help. There are other reasons why that i can't discuss here why I won't use it even if legal. The government is a horrible thing to deal with. But my 2A rights would be stomped on if I were to legally use it.
 
I was wondering if anyone was able to get disability. I have fibromyalgia for 13 years with chronic pain in my legs, back and feet. I also suffer from trigeminal neuralgia. It’s impossible for me to know if I’m gonna be able to get out of bed which makes me a unreliable employee.
Hi there

I have been on Long Term Disability with the same insurance provider since i was injured at work in 2009. While going through the process of surgery then physio, along the way other things started happening to me and after many specialist appointments to eliminate medical reasons, I got the FM diagnosis in 2010. My Insurance provider sent me a letter in January of this year to tell me my clam has been terminated. It appears from my facebook posts over the course of a year, as well as a private investigator, who reported the one day i was observed to be "very active". Seen getting in a car and driving off and 2 hours later returning home is "very active" and to make this even more unusual this was my sister seen leaving and returning and not me. Without going into a lengthy version of my story, i will say I hired a lawyer -who actually deals with disability claims - and we have submitted my Appeal. And now is the waiting.
I'm wondering has anyone had this happen to them? My Lawyer and my Doctors have all admitted, in their opinions, this was a wrongful action.

thanks for reading this,

Denise
 
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