I feel like I have a fever with flu like symptoms when I get a flare up

grovejhh

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It seems like everyone I talk to that has fibro says they don't have fever flu like symptoms. They have tingling and muscle aches. Does anyone ever feel like they have a fever with the flu like symptoms?? I mean everything aches when I get a flare up!! :unsure:
 

sunkacola

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Yes, these symptoms are not uncommon, although not everyone gets them.
 

JayCS

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I get feverishness and a "Big Ache", especially when I've overdone something, aside from single stabbing pains. But isn't the ache in the muscles?
 

Suelar

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Morning, yes l always get flu symptoms with my flare ups. This happens when l have overdone things, although I don’t ever remember a pain free day! 😔
 

WhoDat83

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yes, it happens to me as well. sometimes having chills, head feels warm, headache, muscle pain all over the body, tired eyes, stomachache, puking sensation.
Than i measure my fever and i dont have any. which is a good thing, especially in this period of time
 

JenF

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Yup! :) That's how I've always described it. I ALWAYS feel like I'm coming down with something, and during flare ups it's just magnified a TON. It's been almost 2 years of every day feeling this way (even just a short 1.5 km walk will set me back at least two days). I'm still trying to find my balance - once I have that, maybe I can better plan what I can and can't do :)
 

VPugh

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Completely agree. When I get really run down its almost as if I've come down with something. Last week, I even had to have a COVID test (again) as my chest was hurting and I struggled to catch my breath.
 

Whatsherface

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I get 'hot flushes', neck flushes especially, but it may also be perimenopause or migraine attacks which also make me more susceptible to heat and weather (Nor-Wester winds are bastards).
But I get low grade fevers pretty frequently - usually between 37.3 to 37.8 Celcius. My 'normal' is low 36 C, and 38 C is when you have a high enough fever to get sent home from work.
But yeah, I definitely get that flu-like body ache and low grade temps pretty often. Although I'm very susceptible to viruses too with a low immune system, so it's always hard to tell if I'm actually getting sick with a viral infection, or if I'm getting a migraine, or if I'm having a flare up, etc, and it causes me no end of frustration. My ears hurting, throat going raw and/or really raised glands and my eyes burning and watering are when I know pretty much for certain it's an actual virus, but it's very hard to tell until I'm down for the count, as I always feel at least slightly 'unwell' or run down.
 

mrstiggywinkle

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Hi there, you are not alone in your symptoms! I was diagnosed with fibro last September and my biggest problem is flu-like symptoms with no fever. I call it "the coma." It used to happen more often before I was diagnosed because we are conditioned to "push through" and keep going. There's no pushing through with fibro. When I drop into "the coma," it's like I'm a dead person, sleeping nonstop almost for two days.
Knowing I have fibro now, I'm very careful not to overdo things (although this doesn't always work) and prioritize things I have to do. What's best for me is to carry out an activity for a limited amount of time, then rest, then go on to another activity. I use a heating period throughout the day for my lower back and neck.
For me, getting the fibro diagnosis was a godsend because I stopped blaming myself for being so weak. In fact, one of the reasons it took so long for me to pursue a fibro diagnosis was because I thought my symptoms didn't "fit" fibro.
I hope this has been helpful...
 

Dusty1957

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I have had flu like symptoms; it feels like the inside of my legs are burning so bad with my pain. I had a shot in my hip over a month ago, yesterday a shot in my back. My second Primary doctor read from the Medical book and said I did not have Fibromyalgia, although I showed him my list from the Mayo clinic. I have all the symptoms except one. I have chronic pain, tingling feet, can't walk since last year, horrible joint pains in my knees --right knee especially (I had knee replacement several years ago). Also hands and left arm. I wake up crying for the pain. What is wrong with these doctors? The shot in my back worsened my leg in walking and pain, the hip pain shot lasted only 2 days. Last year I was sleeping all night and naps all day, still get naps but not as long as they were. Foggy brain, can't concentrate because of this pain.
 

mrstiggywinkle

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Dusty, my heart goes out to you. The most I've gotten out of regular doctors is just blank stares. The turning point for me was when a physical therapist said my response to therapy was just like his fibromyalgia patients. And HE also has fibromyalgia. I found a fibromyalgia specialist through him (yes, a regular medical doctor) who diagnosed me with fibromyalgia, which is important in terms of health insurance claims, etc.
When I was feeling up to it, I started reading as much as I could about the condition. Since this past September I've been following the guaifenesin protocol, which is featured in the book "What your doctor may not tell you about fibromyalgia." There has been one orthodox study on this protocol and its findings did not back this theory. HOWEVER, some have speculated that following the protocol produces ANOTHER bodily effect that does help fibromyalgia. The protocol is generally thought to take about a year, some patients get better sooner, others longer, others not at all. They also say you may feel worse before you feel better.
Why did I decide to follow it? Because my physical therapist, his wife and their mothers all have fibromyalgia, and all improved with the protocol. I'm doing it because I have nothing to lose and everything to gain.
The actual diagnosis was also psychologically helpful because it stopped me from feeling guilty about being sick and tired so often. I stopped trying to "push through." I was known all my life as a doer, a go-getter, but not anymore. At this point, I'm just trying to make lemonade out of lemons. You also have to give yourself an even bigger break. What with Covid and the political turmoil we're facing in the USA, stress is an even bigger issue in our lives. Be kind to yourself.
Have faith that the future may bring better treatments or even a cure! And remember, you are NOT alone....
 

Forgetmenot

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I’ve always told ppl that ,fibromyalgia is like having flu.
I don’t have a fever.But my skin hurts and my eyes hurt ,just like flu
 

JayCS

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I admit I'm having problems pinpointing what I mean with feverishness; none of what others have written fits. Closest is @WhoDat83's "sometimes having chills, head feels warm, headache, muscle pain all over the body, tired eyes, stomachache, puking sensation." But I have all of this even without a feeling of fever. Is it perhaps feeling hot and cold at the same time? Also as if I can't really grip something? A lot is I think in my arms. Cold washing (or showering) stops it for a while, btw., breath-holding helps.
 

Forgetmenot

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We often have problems with our temperature.it’s a fibro things.
For me I have age against me.I’m premenopausal so I’m always hot cold and uncomfortable.I can often wake up feeling sick.
That can be hormonal to did u no that.
I have problems with my hands I drop stuff all the time.I found out I had carpal tunnel in one hand .and that has not helped my grip at all.
My kids use to laugh so much ,as I would be holding something and bang ,I’d throw it across the room.
 

JayCS

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DX FIBRO
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My hot/cold-system and cold-tolerance has been completely reset by my TCM/acupressure, back to how it was before fibro, amazing, seldom problems now. And it's not my real temperature either, I have no fever when I check it. I'm a guy, so no menopause, but of course hormone changes can be in males too. I have had them checked, everything OK. And the feverishness is not general, it now always comes from having to talk a lot thru a thick mask at work. Or when I overdo things.
Yep - in the last few weeks I've been hurting my fingers all the time by dropping things or trying to catch them, but that isn't really the grip, it's more tiredness, I think.
 
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