I have Fibromyalgia,depression, and no family support

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samia

New member
Joined
Mar 8, 2016
Messages
1
Reason
DX FIBRO
Diagnosis
04/2001
Country
SUD
State
khartoum
I have Fibromyalgia since 2001.am 28 years old.I cant keep with doing my daily activity..poor and no family support
I struggle enough in this life..I cant do any thing more am really fatique ..I cant go out of my bed
.no one of my family believe that am ill ..all said am lier ..my mother alaways describe me as lazy
I cant move..I cant do any thing ..I have generalize musclar pain..I have gastric ulcer from chroin uses of pain killer ..I cant read ..go work..or even going any where..migrane attacks every day ..am really dead but have my breath.
 

diamond

Legendary member
Joined
Sep 18, 2015
Messages
1,548
Reason
DX FIBRO
Diagnosis
01/2008
Country
UK
State
anywhere
Hi Samia welcome to this forum. You have had fibro from such a young age and i am so sorry for your situation.

Is fibromyalgia recognized by your doctors...if so could he or she talk to your family as support and at very least recognition that you have an illness is so important.

Perhaps it would be possible for you to show your mother this site to see how very real this illness is.

Is the pain in all your body and do you manage to get any sleep?

I don't know what sort of specialist help is available in Sudan and i am guessing from your post it may not be affordable. I so wish i could help more and please stay on this forum if only because we do understand and believe you.

Tell us about yourself and ask anything you want.

Sending hugs from the UK x
 

Eyesup

Senior member
Joined
Dec 11, 2015
Messages
376
Reason
DX FIBRO
Diagnosis
12/2015
Country
US
State
FL
Welcome Samia, what a rough time you are having. Having the people we love to support and understand us is so important to our phsyc. but to just have them accept us and not criticize is worth millions. Sometimes I have fantasized that everyone I know could just feel what I feel for one day, that would get them off their high horse! If only they were right and it wasn't a real condition.
You didn't say if you've tried any other meds. For fibromyalgia, keep looking for the right combination. I've been so desperate I'ld eat raw onion for a month if they said it would help!
Don't give up, just because there is no cure today doesn't mean there won't be tomorrow. Just because your family doesn't accept your illness today doesn't mean they won't tomorrow.
Willow brought up sleep. I have learned the hard way that sleep is crucial. Not any sleep, but good, hard deep sleep. Your brain needs the healing process that sleep gives. Without it my pain and emotions spiral out off control. If your not getting this please talk to your doctor.
I wish I had more I could give you, but for now know your not alone.
 

diamond

Legendary member
Joined
Sep 18, 2015
Messages
1,548
Reason
DX FIBRO
Diagnosis
01/2008
Country
UK
State
anywhere
I'm with you Eyesup i too have kind of wished that all my friends and family could feel this for a day or a week and i imagine the shock and horror they would experience and hopefully more compassion.

I don't want them to suffer i just sometimes wish they could understand how strong i have been like all of us .....i hope you can pursue some better treatments Samia.

Yeah Eyesup i'd do anything too...raw onions made me smile!! But you are right raw onions...i reckon i'd eat cat food if it took pain away!! and i'm vegetarian.
 

YBaloch

New member
Joined
Jan 23, 2016
Messages
3
Reason
DX FIBRO
Diagnosis
12/2015
Country
CA
State
N/A = Not Applicable
Hello Somia,
Look everybody in this forum is like a family. You would find help and compassion. All you have to do is share with us what you feel, listen to what we say, try not to loose hope, and strongly believe on God. Your will power can take you back to life, its only you who can help yourself. Do not feel you are alone. Improve your diet, have a good sleep, do meditation, yoga, and some walk, trust me you will feel way better. Good thing is its all cheap. Just make your mind to be happy and sleeves up to fight the disease, don't let fibromyalgia to ruin your life.
I hope it helps.
Thanks.
 

diamond

Legendary member
Joined
Sep 18, 2015
Messages
1,548
Reason
DX FIBRO
Diagnosis
01/2008
Country
UK
State
anywhere
I would just like to add that some of us can't walk. I know for those of you that can its hard to understand and even with fibro i could walk sometimes for an hour rest and then potter round the house.

However after 8 years of being like that even with fibro i now can barely get around the house,....my legs are not just stiff they seize up and dont have enough power barely to stand long enough to shower or make a snack.

Doing yoga would be impossible...holding a mobile phone or typing hurts and takes all my strength and that's with arms resting at my sides.

So please accept that some people are much sicker than others and if Samia is one of those unfortunately at the more severe end of the spectrum telling her to walk when she says she can't get out of bed will be pretty hurtful.

I hope you return to the site Samia. Hugs x
 

YBaloch

New member
Joined
Jan 23, 2016
Messages
3
Reason
DX FIBRO
Diagnosis
12/2015
Country
CA
State
N/A = Not Applicable
My apologies to you willow and anyone who got hurt because of my post. I know it's hard to cope up but I just mean to say that do not give up.
Thank you.
 

diamond

Legendary member
Joined
Sep 18, 2015
Messages
1,548
Reason
DX FIBRO
Diagnosis
01/2008
Country
UK
State
anywhere
No worries YBaloch i am not hurt i was just thinking of Samia...i know you meant well and your advice for most fibro sufferers would be spot on.

Don't stop joining in YBaloch ...I hope Samia you are still around reading the forum and feeling that we are all here to support you.
 

remnant

Senior member
Joined
Mar 11, 2016
Messages
209
Reason
Other
Diagnosis
00/0000
Country
KYA
State
Central
You have come a long way. Do not give up. Problems seen insurmountable at the tipping point. You say you have no support from family members. Have you tried to join a local fibromyalgia group? You can for example join a local church where you are likely to find emotional support. There are many medical and lifestyle interventions that you can adjust to ameliorate your condition. For example, increase your intake of Vitamin D and Magnesium supplements to lessen pain and depression simultaneously. Deep massage of affected areas is necessary. Drink fermented milk to replenish the microbiota in your gut in order to control ulcers.
 

Benoit W

New member
Joined
Mar 10, 2016
Messages
5
Reason
DX FIBRO
Diagnosis
01/2013
Country
CA
State
ON
Dеprеssiоn is prоminеnt in fibrоmyаlgiа pаtiеnts with thе risk оf gеtting dеprеssivе symptоms аt lеаst оnсе bеing аbоut 90% аnd gеtting mаjоr dеprеssivе disоrdеr (MDD) bеing аbоut 62–86% in fibrоmyаlgiа pаtiеnts. It hаs bееn fоund thаt аt аny pоint in timе bоth dеprеssiоn аnd fibrоmyаlgiа оссur соnсurrеntly in аt lеаst 40% саsеs. Dеprеssiоn prеvаlеnсе rаtеs rаngе bеtwееn 20% аnd 80%. Sеvеrаl studiеs hаvе spесulаtеd thаt thеrе mаy bе а соmmоn pаthоphysiоlоgy bеtwееn dеprеssiоn аnd fibrоmyаlgiа.

Twо сlаssеs оf аntidеprеssаnts usеd tо trеаt fibrоmyаlgiа symptоms аrе sеlесtivе sеrоtоnin rеuptаkе inhibitоrs (SSRIs) аnd соmbinеd sеrоtоnin аnd nоrеpinеphrinе rеuptаkе inhibitоrs (SNRIs). “SNRIs аrе mоrе еffесtivе fоr trеаting bоth dеprеssiоn аnd fibrоmyаlgiа symptоms,” sаys Stаud. “SSRIs hаvе а lеssеr еffесt оn fibrоmyаlgiа symptоms.” SNRIs inсludе Еffеxоr (vеnlаfаxinе) аnd Сymbаltа (dulоxеtinе). Еxаmplеs оf SSRIs inсludе Сеlеxа (сitаlоprаm) аnd Prоzас (fluоxеtinе).
 

remnant

Senior member
Joined
Mar 11, 2016
Messages
209
Reason
Other
Diagnosis
00/0000
Country
KYA
State
Central
Take heart Samia. I have seen cases of people being abandoned even by their spouses when disability or morbidity kicks in. I want to give you secrets that have sustained me in life through thick and thin. First, God will never abandon you. Second, learn to be your own best friend. Third, seek out people with a similar predicament. Helping others makes life a worthy experience. You have ulcers? Take yoghurt to restore beneficial bacteria in your stomach. Use muscle relaxants to alleviate pain. Wishing you quick recovery.
 
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