sandree
New member
- Joined
- Aug 22, 2021
- Messages
- 6
- Reason
- Undiagnosed
- Diagnosis
- 00/0000
- Country
- US
- State
- PA
I have been trying to recover from whatever happened to me about 15 years ago. Started with chronic hives and developed into various autoimmune type symptoms over the years, including pain that moves around my body, neurological symptoms like brain fog, anxiety and impaired handwriting when I flare up. I have not gotten a formal diagnosis though I have tried a few doctors without much help. I have done a lot more alternative stuff. Had to move out of our last house because of a mold problem but now that we are out of mold I still am flaring but not as badly.
Every once in a while I try something new. So I'm now seeing a nutritionist because I have a lot of food sensitivities. She did a LEAP/MRT test for food sensitivities and now I have to avoid 50 more foods (ugh). She also says I have bad bacteria in my gut, then prescribed a long list of supplements. I tried to follow instructions, but I seem to flare up (with inflammation) from most of the supplements, especially anything that is a binder or kills pathogens. The nutritionist says this is unusual, that her clients don't have that reaction or the neurological symptoms, so I'm feeling like I'm a bit crazy. But in pinned post on one of these forums, I saw a mention of reactions to herbs, supplements and medications listed.
I currently have a lot of pain in large joints, especially my hips. I can't walk for exercise at all. Tried again a few days ago, walking a tiny bit with my husband and flared up. I seem to flare up from everything - exercise, foods, stress, socializing.
Do you think it is worth pursuing a diagnosis or just continue to try to manage as I have been? My PCP knows I don't like prescription drugs (react badly to them), so she said going to a rheumatologist may not be helpful for me because they will prescribe medication. I am open to the idea of LDN though I just recently started reading about it and don't know where I would get that.
Anyway, it's nice to talk with some people who get what I've been going through for so many years. This current pain is really making it hard to function, so I need to find some way to manage this better.
Every once in a while I try something new. So I'm now seeing a nutritionist because I have a lot of food sensitivities. She did a LEAP/MRT test for food sensitivities and now I have to avoid 50 more foods (ugh). She also says I have bad bacteria in my gut, then prescribed a long list of supplements. I tried to follow instructions, but I seem to flare up (with inflammation) from most of the supplements, especially anything that is a binder or kills pathogens. The nutritionist says this is unusual, that her clients don't have that reaction or the neurological symptoms, so I'm feeling like I'm a bit crazy. But in pinned post on one of these forums, I saw a mention of reactions to herbs, supplements and medications listed.
I currently have a lot of pain in large joints, especially my hips. I can't walk for exercise at all. Tried again a few days ago, walking a tiny bit with my husband and flared up. I seem to flare up from everything - exercise, foods, stress, socializing.
Do you think it is worth pursuing a diagnosis or just continue to try to manage as I have been? My PCP knows I don't like prescription drugs (react badly to them), so she said going to a rheumatologist may not be helpful for me because they will prescribe medication. I am open to the idea of LDN though I just recently started reading about it and don't know where I would get that.
Anyway, it's nice to talk with some people who get what I've been going through for so many years. This current pain is really making it hard to function, so I need to find some way to manage this better.