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fletch96

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Hi, so I was convinced I had leaky gut syndrome for the past month or so, probably due to celiac disease. It doesn't look like I have celiac, so I thought next that this has to be leaky gut. Now I got a book from the library about fibromyalgia, and I am watching a YouTube video on it and OMG!!! I'm pretty convinced I have found a cause. The last doctor I saw thought it could be dysautonomia, which would explain a lot, as well. It seems like everything goes hand in hand (neuropathy, vitamin deficiencies, stress triggers, fibromyalgia, food intolerances, etc. etc.). However, my thyroid levels were on the hyperthyroid side. And I have trouble gaining weight, not losing it. I am also only 21, but considering my life, I am not surprised I'm going through all of this. It's the brain fog that is the worst.... I am graduating from college in two months and took this week off and got a doctor's note. I am taking Adderall, but it's not working anymore since my symptoms got worse. What's with doctors and NPs calling this anxiety, PTSD, or psychosomatic and sending me on my way? What's so bad about giving a diagnosis? Do they honestly think I'm making up this pain? I'm 21! I feel like I'm 100. But it seems like this condition can be easily managed, which is good.
 

andreap

Member
Joined
Oct 20, 2015
Messages
20
Reason
DX FIBRO
Diagnosis
09/2015
Country
Sve
State
halland
Hello,
Firstly, I am sorry for and empathetic toward your pain. I am 55 and was diagnosed in October of 2015, however 3 years into my diagnosis, I have begun to realize I can equate past situations which included unfounded pain and in turn frequent anxiety and depression to fibromyalgia and CFS/chronic fatigue syndrome. I can recall feeling extraordinarily sensitive as a young girl and having reactions to running and dancing and being hospitalized and my father believeing ( from the consistant lack of a diagnosis or explanation ) that it was a "cry for attention". Although I am now looking at Myalgiec Encephalomyelitus or more easily referred to as ME/CFS (chronic fatigue syndrome) as potential conteibuters to my life-long symptoms, the relief is only psychological as there is no cure for any of the myalgic diseases. It is important that you ask for a referral to a rheumatologist to rule out diseases which mimic fibromyalgia and stay strong in your pursuit of a diagnosis. Most people have faced "doubting Thomas" responses and as hurtful as it may be to your ego, I advise to learn now techniques to deal with these people and seek support wherever you can find it as you begin this tedious journey. With kind regards, Andreap in Sweden:)
 

fletch96

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Joined
Mar 9, 2018
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Hi Andreap! Thanks for the reply.
So, at this point, I think it might be MS since I took a Xanax, which just made things worse. So, whatever I have is not psychological. I am getting a MRI on Tuesday. I read that book on fibromyalgia though, and it says you can pretty much cure it with diet and exercise? The more I learn, the more I think ME/CFS and fibromyalgia can become a lot better through exercise and cutting out gluten, dairy, sugar, etc. It makes sense since deconditioning can wreak havoc on your body. Even though their egos are the size of Mars, doctors don't know everything, and they need to start admitting that. I'm pursuing a diagnosis. It's a slap in the face every time I get treated like a POS stupid woman by every medical "professional" I come across. But I went to a cardiologist a few days ago, for example, and they DID find something wrong with my heart - the tachycardia wasn't simply "anxiety." So, that experience made me realize to never doubt my intuition! Btw, I'm sorry for your fibro :/ I know how painful it can get sometimes. Would you mind me asking how yours feels like? Mine is strictly electrical shock-like pain. It's not in the muscles or anything. I can tell it's in the nerves.
 

jonathan123

New member
Joined
May 15, 2018
Messages
1
Reason
DX FIBRO
Diagnosis
00/0000
Country
USA
State
Florida
Hi, so I was convinced I had leaky gut syndrome for the past month or so, probably due to celiac disease. It doesn't look like I have celiac, so I thought next that this has to be leaky gut. Now I got a book from the library about fibromyalgia, and I am watching a YouTube video on it and OMG!!! I'm pretty convinced I have found a cause. The last doctor I saw thought it could be dysautonomia, which would explain a lot, as well. It seems like everything goes hand in hand (neuropathy, vitamin deficiencies, stress triggers, fibromyalgia, food intolerances, etc. etc.). However, my thyroid levels were on the hyperthyroid side. And I have trouble gaining weight, not losing it. I am also only 21, but considering my life, I am not surprised I'm going through all of this. It's the brain fog that is the worst.... I am graduating from college in two months and took this week off and got a doctor's note. I am taking Adderall, but it's not working anymore since my symptoms got worse. What's with doctors and NPs calling this anxiety, PTSD, or psychosomatic and sending me on my way? What's so bad about giving a diagnosis? Do they honestly think I'm making up this pain? I'm 21! I feel like I'm 100. But it seems like this condition can be easily managed, which is good.


I will suggest you to use tapentadol as per doctor advise. This medication will help you to get rid of all your problem.
 

Dooi

Moderator
Joined
Feb 4, 2013
Messages
168
Reason
DX FIBRO
Diagnosis
06/2012
Country
CA
I think you'd know if celiac is the problem; I have a close friend with celiac's disease and she has to manage it very carefully or she'll have an immediate flare-up.

Being only 21, I'm curious if you had something similar to a car accident? The reason I ask is I know fibromyalgia can often occur after a sudden impact or similar.
 

Chrissy53

New member
Joined
May 18, 2018
Messages
1
Reason
DX FIBRO
Diagnosis
04/2014
Country
USA
State
OR
I was thinking Leaky Gut also. Trying to attack it also with vitamin supplements, Epsom salt soaks, watching my diet, no preservatives. I have had fibro for 4 years, only explored holistic methods for 1year. Yoga helps for awhile,stretching is good. I also swim in a therapy pool.. Walking is too painful.
 

theloudsinger

New member
Joined
Jul 23, 2018
Messages
1
Reason
DX FIBRO
Diagnosis
02/2018
Country
USA
State
WA
Stress and poor sleep are my triggers. The two together are deadly & put me out of commission for 2-4 weeks at a time. I was almost misdiagnosed with RA before my new GP put her finger on it & sent to to the sleep clinic. I have sleep apnea & that has made it worse. I am now working with my sleep specialist to get a CPAP machine. I do not take any medications for it other than the occasional melatonin when I travel long distances. Good sleep & Vipassana (for stress management) are the only things that really help me - everything else is gravy. Those & walking regularly.
 
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