- Jan 8, 2020
- DX FIBRO
It strikes me - while reading the forums - that none of us, including the medical establishment, really know what is going on with our bodies and our minds regarding this disorder. All of us have different experiences with fibro and chronic fatigue and different strategies work for helping us feel better... There doesn't seem to be one correct answer for how to address the pain, or fatigue or painful pressure points, etc.. But with other conditions, like heart disease, there are tried and true ways of treating it and curing it. It feels like we are desperately flailing around. I feel anger with the medical establishment for just throwing drugs at our symptoms and telling us to go on our way.....For a comparison, if feels like my child had been abducted and all the police department will do is post fliers saying, "missing child" and tell me, "its going to be OK." when they really don't know. I also feel frustration, despair and uneasiness. This condition, disease - whatever the heck it is, sucks!