I’m a artist part time. Some training.

[Katherine]

I have CP, Fibromyalgia, arthritis. Anxiety, brain fog….
have not been able to work or much of anything else.
I love to do art work in any type. Love gardening. Cooking….
when I do much of anything I in trouble. Chronic pain, fibromyalgia, fatigue, every thing can happen. Doing nothing. Doing this. Seeing a chronic pain and fibromyalgia specialist. Getting needles to control chronic pain. Medication for symptoms. Started treatment last April,early May. Some major relief. But if I do even just going for a very shot walk. I’m still a mess. Have been trying for over 20 years to get financial help. CPPD…. Had a lawyer at one point, ended up in CAMH… they closed my file… need help, need someone who knows how do write properly information in regards to this stuff. I can’t believe that there’s no one out there who can help me. Can’t talk on phone because of this stuff can make my life unbearable. Need someone who can help with also mental help issues because of this….?

can anyone help me!?

 

[Paddington1]

Hi Katherine, sounds like you are suffering pain and fatigue with many other issues. If you are in the UK you could try citizens advice bureau , they are very good at financial advice. They may be able to point you in the right direction for a volunteer or advocate who can help. Have you a supportive gp?
I hope you find some local help. Take care.

 

[Jemima]

Hi Katherine,

I'm so sorry to hear that you've been going through such a lengthy battle. It doesn't say which country you're from on your profile, so it's difficult to advise on any resources that might be useful. I wonder, have you searched to see if there are any fibromyalgia support groups nearby? There may also be free mental health resources in your area - I hope so.

I totally understand how overwhelming speaking on the phone can be - I find that really hard too, and the thought of it always makes me really anxious. I know you've been dealing with this for a very long time, and see you've been on the forum here for a while too, so don't want to preach to the choir in the slightest. But, if you haven't already, do have a read of Sunkacola's advice post on fibro. I think even after a long time with the condition, reading through her suggestions can be helpfully grounding. You might also find it useful to read up on Spoon Theory if you haven't before, which is all about energy management. The tendency for even small amounts of activity to become triggers is really challenging - I'm so sorry that it's stopping you doing the things you love, and sincerely hope that you find a helpful balance in the future. You can always talk to us here about what you're experiencing, and we'll all try to give any advice we can, or commiserate at the very least. Sending strength in the meanwhile.

My advice for managing fibromyalgia (especially for newcomers)

I am not a doctor or anything, just a person who has lived with fibromyalgia for several years now and has done a lot of research and trial and error experimentation. What follows is just basics. There are a lot of variations. You will find your own versions of everything I say, as this is not a...

www.fibromyalgiaforums.org