Hello everyone. I’m not really 100% sure myself why I’ve come here. Maybe for some advice and reassurance.
I began complaining of back pain at 11 and following an MRI scan, I was told I had a prolapsed disc at the bottom of my back along with nerve compression. I was under paediatric care (filled with major pain meds) until I was 16 and became too old for that department and was then left to get on with life. I am now almost 26.
This pain has got continuously worse since then, and has travelled. I am constantly in horrendous pain from muscles spasms/cramp in my back, to shooting pain in my hips/knees/shoulders and coccyx bone. I have numbing and a buzzing sensation in my feet and arms. And sometimes a burning sensation on the skin on my hands. I have a migraine every morning.
Along with this pain, I do suffer with an awful memory and can often stutter - however I didn’t and maybe still don’t believe this is all connected.
After years of trying treatment both privately and through the NHS, and being robbed off with cocodamol to treat the pain, I finally got an MRI scan and had the results yesterday. My spine is fine aside from a new bulging disc elsewhere in my back. “There is nothing wrong with your spine” he said. However he then again asked me to explain my pain and symptoms whilst he ticked a piece of paper and then told me I have Fibromyalgia. I had no knowledge of this illness prior, except that I believe it came in waves. He said that this is not the case for everyone.
Every single symptom or pain I experiencing has been put down to this. But I have lived with pain my whole life. I am now being referred to a specialised pain clinic and my HP has been told to alter my pain medication.
I suppose I just want to know, does this sound similar to anyone else? Is the constant pain normal for other people, because I do not experience waves. It’s always there. Everywhere. Is there anything that will help?
He has told me “I know you wanted an answer and a solution to make the pain go away. I have given you an answer, but the pain will never go away, we just have to help you learn to now live with it forever”.
Please can someone respond. I’m confused and scared and possibly in denial.
I began complaining of back pain at 11 and following an MRI scan, I was told I had a prolapsed disc at the bottom of my back along with nerve compression. I was under paediatric care (filled with major pain meds) until I was 16 and became too old for that department and was then left to get on with life. I am now almost 26.
This pain has got continuously worse since then, and has travelled. I am constantly in horrendous pain from muscles spasms/cramp in my back, to shooting pain in my hips/knees/shoulders and coccyx bone. I have numbing and a buzzing sensation in my feet and arms. And sometimes a burning sensation on the skin on my hands. I have a migraine every morning.
Along with this pain, I do suffer with an awful memory and can often stutter - however I didn’t and maybe still don’t believe this is all connected.
After years of trying treatment both privately and through the NHS, and being robbed off with cocodamol to treat the pain, I finally got an MRI scan and had the results yesterday. My spine is fine aside from a new bulging disc elsewhere in my back. “There is nothing wrong with your spine” he said. However he then again asked me to explain my pain and symptoms whilst he ticked a piece of paper and then told me I have Fibromyalgia. I had no knowledge of this illness prior, except that I believe it came in waves. He said that this is not the case for everyone.
Every single symptom or pain I experiencing has been put down to this. But I have lived with pain my whole life. I am now being referred to a specialised pain clinic and my HP has been told to alter my pain medication.
I suppose I just want to know, does this sound similar to anyone else? Is the constant pain normal for other people, because I do not experience waves. It’s always there. Everywhere. Is there anything that will help?
He has told me “I know you wanted an answer and a solution to make the pain go away. I have given you an answer, but the pain will never go away, we just have to help you learn to now live with it forever”.
Please can someone respond. I’m confused and scared and possibly in denial.