Cat_Lady
Member
- Joined
- Jan 12, 2016
- Messages
- 13
- Reason
- Other
- Diagnosis
- 00/0000
- Country
- US
- State
- FL
Does anyone have any suggestions on how to get a diagnosis from a doctor? The reason I ask is because I've seen two rheumatologists. Neither one gave me a diagnosis, even though it is pretty obvious to anyone who observes me that I DO have fibromyalgia.
I've read that many doctors are very reluctant to give a fibromyalgia diagnosis. So I'm trying to figure out what tests I can take that will actually PROVE it. On another fibro blog I was reading, a woman said she took a sleep apnea test. It proved that her brain waves at night were more active than during the day. This is one of the symptoms of fibro. What else can be done?
I've also heard that it can take years to get a diagnosis. I'm not sure why this is. But for someone like me, who knows for sure that I have fibro - I don't see why it should take years to get a diagnosis.
I know there are still many people in the medical community who don't even recognize fibromyalgia as a valid disorder. This blows my mind. If only they could walk in my shoes, for one day.
I wish there was a way to draw more attention to this disorder, even on the national level. It shouldn't be this hard to get a diagnosis, nor should it be hard to get accepted for disability. Sorry, just had to vent some frustration.
I have another doctor's appointment coming up. I'm not sure what to tell her, except to give her a list of all of my symptoms, as well as the cause of my fibro. This is what I have already done, in the past with other doctors.
Is there anything else I should tell her?
I've read that many doctors are very reluctant to give a fibromyalgia diagnosis. So I'm trying to figure out what tests I can take that will actually PROVE it. On another fibro blog I was reading, a woman said she took a sleep apnea test. It proved that her brain waves at night were more active than during the day. This is one of the symptoms of fibro. What else can be done?
I've also heard that it can take years to get a diagnosis. I'm not sure why this is. But for someone like me, who knows for sure that I have fibro - I don't see why it should take years to get a diagnosis.
I know there are still many people in the medical community who don't even recognize fibromyalgia as a valid disorder. This blows my mind. If only they could walk in my shoes, for one day.
I wish there was a way to draw more attention to this disorder, even on the national level. It shouldn't be this hard to get a diagnosis, nor should it be hard to get accepted for disability. Sorry, just had to vent some frustration.
I have another doctor's appointment coming up. I'm not sure what to tell her, except to give her a list of all of my symptoms, as well as the cause of my fibro. This is what I have already done, in the past with other doctors.
Is there anything else I should tell her?