Is anyone else worse in the morning?

[Kerrie]

Question; does anyone else have (or is it common with fibro) worse symptoms especially stiffness, muscle pain in the morning? I am REALLY bad when I first wake up, and don't feel human till around 11am (I get up at 6:30-7ish). I also have severe chills in the morning, like for and hour to an hour and a half after waking. Anyone else experience these? Thanks!

 

[Takedon]

YES. Morning pains, combined with a little nausea, make the worse part of the day for my friend with fibromyalgia.

 

[kmpisces]

Yes, I find that I often have more trouble in the morning. I have more pain and stiffness when I first get up. My fatigue though is much worse later in the day. So it is really half and half I guess I must say.

 

[ksu8822]

Personally, I am much worse in the morning and evening. You probably suffer from "morning stiffness". Some people only feel worse for about 15 minutes and others it can be hours. It is fairly common though with people who have fibro.

 

[Trellum]

Sometimes I wake up feeling some pain, but for me things get ugly at night... it's when all my symptoms gets worse, sometimes I wake up feeling just fine in the mornings. But others I wake up feeling some aches from the previous night. Not sure how that works! Trying to cope with it, I use a special oil and gel to treat this... not perfect, but I prefer that... don't want to poison my body with painkillers!

 

[Hedonologist]

I very rarely have energy at all until 12-2pm. My peak is around 4-8pm, and best of all in the evenings after a mid afternoon nap. Even if I get up very early I still don't have morning energy. It's not something related to how long I've been awake but directly correlated with the time of day.

 

[DDavies]

Hello,
I am new here, but also have a rare disease called SYRINGOHYDROMYALGIA. It means I have a cavity in my spinal cord. It is incurable.
Before any tests were done doctors were diagnosing me with CF and Fibro. It took another several years and many tests and still no diagnosis.
I was out with a friend and had done a lot of walking and dancing, when I collapsed because I could not feel my legs. I ended up in the emergency room in more pain than I have ever known in my life and the doctor ordered an MRI of my entire spinal cord and brain. An MRI is the only way of detecting the injury to the spinal cord. Have you had one?
The doctor came back and told me I had a rare disease and he had to call a specialist to find out how to treat it. He said they were giving me medicine through my Iv and soon I would feel better and be able to move again.
It was like a miracle.
Bad news was this hideous disease and it's symptoms. It took me a while, but I put everything together and realized that I had been injured by the anesthesiologist just before surgery giving birth to my daughter. It took eleven years to get diagnosed but it could have been right after I gave birth if not right when the injury occurred.
My question is, How many who have been diagnosed with Fibro have had any injury to their back or had an epidural or spinal block?
Look up the disease I mentioned and check the symptoms.
Yes I am saying I believe that the two are strongly linked and for good reason not being tied together. Think of the big picture and how it would affect the medical community if it were known that they were the one's causing this hideous disease and who gains by the many who have it?Have you had problems with your back or a siatica? What is the number of women diagnosed to men? Don't count on the medical community to bring this to the front at this point in time.
In countries that do not have law suits these issues are discussed in the open. Doctors and hospitals have no fear of being sued and do not stand to gain anything other than knowledge.

Now, that's scary. I've had 2.

I am very stiff for a couple hours after I wake up. Around 6 a.m. By 11, I desperately want to go back to bed. Some days are worse than others.

 

[Tucker's mom]

I feel horrible in the morning, like I never slept. Afternoons are best for me, but I am trying to find the balance between taking advantage of my good time and not overdoing it. Fatigue sets in again in the evenings and does not seem to be as bad for me as the mornings.

I wish my family and friends understood that just because I sound OK, I am still very tired-almost overwhelmed with exhaustion at times. Other than the pain, the fatigue is what gets me down the most.

 

[Takedon]

We all have worse problems in the morning, no matter what condition we've got.

 

[Kerrie]

Thank you all so much for your responses, been so busy with dr appts etc haven't been able to visit. Seems like yes we all have very similar issues! This is my first forum and none of my friends family have it except a second cousin I rarely speak to. It's so comforting to know I'm not alone, no one around me has it, so I constantly feel like a freak! I'm staying with my parents, have for awhile, and he STILL doesn't understand that I HAVE to have the AC at 77 when I sleep or I'll sweat all night...he says but then you freeze in the morning etc...it's hard for him to understand being healthy all his life. I know he means well and cares but doesn't understand...unfortunately my energy comes back at 6or 7 PM and I want to get everything done..but if I'm not asleep by 11 at the EARLIEST then insomnia WILL kick in and I'll be awake till two...thanks again!

 

[Hedonologist]

I feel horrible in the morning, like I never slept. Afternoons are best for me, but I am trying to find the balance between taking advantage of my good time and not overdoing it. Fatigue sets in again in the evenings and does not seem to be as bad for me as the mornings.

I wish my family and friends understood that just because I sound OK, I am still very tired-almost overwhelmed with exhaustion at times. Other than the pain, the fatigue is what gets me down the most.

So you have a peak of energy midday then? Out of morning, midday and evening where would you rank the three in order of most fatigue to least?

Mine is more linear, a constant improvement throughout the day, until I get normal tiredness late at night.

 

[NewToFibro]

Thank you all so much for your responses, been so busy with dr appts etc haven't been able to visit. Seems like yes we all have very similar issues! This is my first forum and none of my friends family have it except a second cousin I rarely speak to. It's so comforting to know I'm not alone, no one around me has it, so I constantly feel like a freak! I'm staying with my parents, have for awhile, and he STILL doesn't understand that I HAVE to have the AC at 77 when I sleep or I'll sweat all night...he says but then you freeze in the morning etc...it's hard for him to understand being healthy all his life. I know he means well and cares but doesn't understand...unfortunately my energy comes back at 6or 7 PM and I want to get everything done..but if I'm not asleep by 11 at the EARLIEST then insomnia WILL kick in and I'll be awake till two...thanks again!

I have the same sleep problem. If I get in bed around 10:00 I fall right to sleep. If its after 10:30 I'm up until 2:00 or later. It's interesting though these are some of the best hours of my week. Everyone is asleep and I get true quiet relaxing time. Its unfortunate I pay for it in the morning :|

 

[LivetoErr]

I am never stiff in the morning, even when I was first diagnosed with arthritis as a child. Eventually, my diagnosis changed to Mixed Connective Tissue Disease and my doctors told me that my presentation was atypical. I am ok in the morning and get worse throughout the day.

 

[Tucker's mom]

So you have a peak of energy midday then? Out of morning, midday and evening where would you rank the three in order of most fatigue to least?

Mine is more linear, a constant improvement throughout the day, until I get normal tiredness late at night.

To answer your question, I am most tired in the morning, then at night, I usually feel good in the afternoons.

 

[beca124]

I'm dead in the morning, It takes hours and hours before i can even shower. sometimes I haven't been able to shower until 11pm. I have it bad. One of my doctors gave me samples of zprovigil which worked the 1st day but not the 2nd. So I doubled it to 400mg every day and its great. I just tell the insurance co that I have narcolepsy. I know its bad to lie but I spent 22 years just laying on my bed with complete fatigue, I finally got off the stupid anti depresaants (It scares me what they did to my mind) I also take stimulants. I take Adderal and it helps me so much. I have a service dog who knows before my migraines hit so that I can take a maxalt before it hits. she's been in service for 7 years. what about you?