Is fhis common fatigue?

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Lemon

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Hey my dears, question for you. I get fatogue like 6 of 7 days a week. I can do nothing but sleep constantly. Im still totef and hurting. Worry its not sonethong worse unknownyet. Is ot common to get overwhelmong titednness 6 out oc 7 days a week or do i need to find help for cfs as well now somehow
 

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Hey my dears, question for you. I get fatogue like 6 of 7 days a week. I can do nothing but sleep constantly. Im still totef and hurting. Worry its not sonethong worse unknownyet. Is ot common to get overwhelmong titednness 6 out oc 7 days a week or do i need to find help for cfs as well now somehow
Hi Lemon,

I'm so sorry you're experiencing this 😞 As if you didn't have enough to deal with already!

It seems that there's quite a bit of contradiction when it comes to parallel FMS and CFS. Some doctors will diagnose both together, while some will tell you that you have one or the other. For sure, fatigue is a symptom of fibro, so I guess if I was in your shoes I'd be considering if this could be a new kind of flare manifestation, and if there was anything that could be a trigger right now? I'd probably try to manage it like any other kind of flare, and if it didn't respond after several weeks and I hadn't found clues online, I'd start to think about whether to seek help. Management of the two conditions is often very similar, but perhaps there are specific things that us fibro crowd aren't clued in on 🤷

I have experienced extreme fatigue in the past but, for me at least, it has also always come with other classic fibro flare symptoms. A friend of mine who has been dealing with fibro for more than 25 years says that when she was in the really early stages, sometimes the fatigue was so bad she has to crawl to the bathroom, but she hasn't felt like that in forever (lots of hope!). We all seem to be so different so it's hard to say - maybe someone else here can give some really great advice that is fatigue specific!

Whatever happens, please let us know how you get on 🍀
 

sunkacola

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Hi Lemon,

It's hard to read your post because of spelling errors or typos.....( for instance I have not managed to figure out what "totef" means) so I am wondering if you would do us the favor of proofreading in the future? I understand you are tired, and no doubt that is why your post is like that; I am not trying to give you a hard time at all because I understand how that can happen and it happens to me as well sometimes.....I am only mentioning it because writing clearly is actually one of our rules. :)

Jemima gives some good advice, above. I think that anything new that develops that is at all serious or is altering your life, should always be checked out with your doctor (assuming you have one who listens to you). Because fibro is so varied and has so many symptoms, we fibromites have a tendency to think everything that happens is another part of fibro. But it may not be and is worth checking to be sure.

I truly hope things get better for you one way or another.
 

Lemon

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Hi Lemon,

It's hard to read your post because of spelling errors or typos.....( for instance I have not managed to figure out what "totef" means) so I am wondering if you would do us the favor of proofreading in the future? I understand you are tired, and no doubt that is why your post is like that; I am not trying to give you a hard time at all because I understand how that can happen and it happens to me as well sometimes.....I am only mentioning it because writing clearly is actually one of our rules. :)

Jemima gives some good advice, above. I think that anything new that develops that is at all serious or is altering your life, should always be checked out with your doctor (assuming you have one who listens to you). Because fibro is so varied and has so many symptoms, we fibromites have a tendency to think everything that happens is another part of fibro. But it may not be and is worth checking to be sure.

I truly hope things get better for you one way or another.
Okay I think I meant “tired” but spelled toted and was having a hard time typing. I was like this a few days a week for a few years, but my doctor didn’t listen. I will try again since it’s more now. I really appreciate all of your support. The way I am hurting and exhausted I don’t know how anyone does it with fm or cfs
 

Auriel

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Sorry your feeling like/ experiencing this @Lemon, if it is through fibro it’s really hard and you want to fight it to do/ feel like the opposite but your can’t and it’s like a battle (so I get it) sometimes when I’m just walking somewhere it feels like I’m wading through mud or walking through a swamp, have you considered changing your dr to a more understanding/ helpful one? (I had to go through a few, (some were horrible) take lots of care of yourself 🤗🥰💖
 

sunkacola

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Okay I think I meant “tired” but spelled toted and was having a hard time typing. I was like this a few days a week for a few years, but my doctor didn’t listen. I will try again since it’s more now. I really appreciate all of your support. The way I am hurting and exhausted I don’t know how anyone does it with fm or cfs
You know, when someone (who actually believes me) says "I don't know how you do it" to me, I just say what is actually kind of obvious: I do it because I have no choice!

I recently knew of a relative of a friend whose husband was killed suddenly and she has 4 young children. I found myself saying that same thing...and then of course, corrected myself and knew that she was managing it all because she had to. When there is no choice between lying down and dying or keeping on going, the vast majority of people keep on going because, well, that's just the thing to do, isn't it?

We do what we can to help ourselves have a better life and manage it as well as we can each day. That is all we can do.
I hope you are feeling better soon, Lemon!
Sending you good thoughts...
 

Lemon

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Sorry your feeling like/ experiencing this @Lemon, if it is through fibro it’s really hard and you want to fight it to do/ feel like the opposite but your can’t and it’s like a battle (so I get it) sometimes when I’m just walking somewhere it feels like I’m wading through mud or walking through a swamp, have you considered changing your dr to a more understanding/ helpful one? (I had to go through a few, (some were horrible) take lots of care of yourself 🤗🥰💖
Yes and I’ve had so many dreams like swimming through jello and in reality where I feel like my voice is muffled and my movements just through the swamp or mud feel just like that, so hard to do what I’m trying that sometimes it’s like I’m stuck in cement and also the dreams and waking feelings that I’m stuck in quicksand, and so on. I’m releaved to not be alone and hope no one has to suffer this way at the same time best hope for healing ❤️‍🩹
 

Lemon

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You know, when someone (who actually believes me) says "I don't know how you do it" to me, I just say what is actually kind of obvious: I do it because I have no choice!

I recently knew of a relative of a friend whose husband was killed suddenly and she has 4 young children. I found myself saying that same thing...and then of course, corrected myself and knew that she was managing it all because she had to. When there is no choice between lying down and dying or keeping on going, the vast majority of people keep on going because, well, that's just the thing to do, isn't it?

We do what we can to help ourselves have a better life and manage it as well as we can each day. That is all we can do.
I hope you are feeling better soon, Lemon!
Sending you good thoughts...
That is so on point sunkacola- agree most definitely. It’s just that the struggle is real hard so I have to give up a lot that I used to be able to do and try and stay positive while being in pain. I am glad you are here for your input experience and support 🌾🌷🌾
 

JayCS

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Hi Lemon -
Apart from fatigue almost every day you're sleeping constantly and still tired: Together that sounds like something other than fibro, mainly because I think most of us have problems getting and/or staying asleep. And CFS is a possibility.
Questions that may help you or praps your doc: Could it be a med? When did it change? - Can you identify a trigger? Does it come in flares or has it been the same since it changed? How much exactly is "constantly": 12 hours or 16 or 20? Does sleeping feel good? Is it restorative at all? What would happen if you forced yourself to get up and stay up? Are you keeping to all the sleep hygiene rules? Have you tried any of the supps for energy/ATP/fatigue yet (ALA, L-carnitine (for body rather than ALC for brain), ginkgo, magnesium, NAC, NADH, PQQ, CoQ10, D-ribose, SAM-e)?
 

sunkacola

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That is so on point sunkacola- agree most definitely. It’s just that the struggle is real hard so I have to give up a lot that I used to be able to do and try and stay positive while being in pain. I am glad you are here for your input experience and support 🌾🌷🌾
You are welcome, Lemon, and thanks for your kind words. It is true that most of us have to give up things we don't want to give up. For me, it has been a fair bit of the physical activity that used to make me happy and healthy. I lifted weights for years and loved it. I tried for years to continue to do it .....trying it this way and that way and so on, and always came up against a wall no matter how carefully I went at it. It wasn't really the fibro that stopped me, but rather my wrists and hands, which couldn't take the weights any more due to carpel tunnel and arthritis in my hands. It was very hard at first to let that hobby go.

But the thing is, life is change.
Everything changes all the time. sometimes in ways we like and sometimes not. I have come to the solid conclusion that "survival of the fittest" really should say "survival of those who can adapt the best", and actually if you look at the evolutionary record on this planet, that has proven to be the truth, and may really be what was meant by that well known phrase. The tree that bends with the wind lives.

So a big part of my work with fibro has been remembering this and adapting my life, my expectations, my means of staying fit, my ways of finding joy, and so on, to what I am currently able to do on each given day. It is really all about accepting what is in this moment. It is really that struggle that you refer to that is causing the mental anguish. Once a person stops struggling against what is and accepts it and learns how to live well with it, that anguish disappears. And once that happens it is so much easier to be positive, or at the least not to be really negative, which then tends to lead to more good things.

Once I really got that into my system, it became so much easier, and I realized that mourning for the things I cannot do any more is like mourning for your youth when you age. There's really no point to it - you cannot change the facts and go backward in time. So, instead of making oneself miserable over getting older, the best adaptation is to find out how to enjoy being older. Those who do, have a good old age and those who don't are unhappy, and I bet we all have known both kinds.
I am not saying it is easy at all. But it is simple, and it can be done.
It's my wish that this forum can provide support and encouragement for people to find their own path to this acceptance and find their own peace as a result.
 

Auriel

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Same back (I don’t know if we can heal from this?) I just value the better days and rest and wait for the bad ones to pass, I also wouldn’t wish this on anyone, not even the ones that have done bad things to me, anyway take care hope your fatigue passes soon (if it hasn’t yet) 🍨🍕🍇
 

JayCS

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"survival of those who can adapt the best", .... The tree that bends with the wind lives.
Good images.
Change is tough for most people. 'Why can't only the things change we don't like, and not the things we like...?' :rolleyes: But life is change.
I had a tough start to life, and it went on from tough to tough, but I worked on that being continually upwards, relationship- & health-wise.
To do this I focus on inner action to improve the present to change the future, learning from the past.
My hope that this will make a difference is always rewarded. More in my long coping posts (e.g. in the first one the part about 'grieving'
and the 2nd one on psychology of change):
 

sunkacola

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Change is tough for most people. 'Why can't only the things change we don't like, and not the things we like...?' :rolleyes: But life is change.
I actually have an answer for that, too, at least to myself. I will write it just on the chance that it is helpful to anyone else.

What is good and what is not good is always, without exception, a matter of perspective. Now, I don't mean that if something bad happens to you, you can just change how you see it and everything will be fine! Not at all. But I mean that there is really no Absolute Bad or Good in life. What is bad for one is quite possibly good for another, because as one very wise person once said to me, there are no one-ended sticks.
Everything is both. That person also put it this way: The Black Plague in Europe was a very terrible time for human beings, and no one would dispute that. It was bad for people. But for the rats....it was a paradise! Now, some people may say people are more important than rats, but the rats don't see it that way. And who's to say that one view is more important or Right than another. I personally think that all life is equal. Even though we are currently the dominant species., we haven't always been and won't always be.

This reminder I always have for myself doesn't help me to feel just great about bad things that happen to me or my loved ones. But it puts things into a kind of perspective that can, eventually, make it easier to take. Life happens the way it happens, and the better we can adapt to it the better we can live.
 

JayCS

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Yup: One man's meat is another man's poison ...
one man's treasure is another's trash ...

we may not like it, but we need rain ...
is my glass half full or half empty?....

No glass is ever full, no glass is ever empty ....
comparing my glass to a fuller glass can always make me feel worse however many other glasses are emptier ...
especially if I believe that the other glass is full (which is never true) and mine is empty (which also is never true) or
that I only have one glass, the emptiest one, and the other one has only one glass, the fullest one ...

.... everything is relative...
beauty lies in the eye of the beholder ...
... and I still believe in the beauty of life despite all hatred, violence and pain and that serves me very well to serve it and fight that...
 
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