Just a moan and to see what others have to say

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Jjaannyy78

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Hi guys new to this so bear with me if I get things wrong,I used to be a painter and decorater from very young amount other things until I had my children then wanted to stay at home to look after them.
I noticed something wasn't right in about 2013 when I used to pick my lad up from school and this overwhelming tiredness would slap me in the face,doctors used to say it's because you have young children I didn't agree.
As the years have gone on its got worse I have found out I have spinal arthritis and on the right side of back,my leg decided it would start collapsing on me and the weirdest pain ever,I have suffered with my back for many years but is getting worse,been for xrays on back leg,hips but the can't find anything been to rheumatologist they can't find nowt but gave me steroid injections,was ment to go to hospital this month again,but the plague has stopped that,I have had different docs mention fibro but wait in for diagnosis.i just really wish I could wake up after a night's sleep and feel human
 
Nothing wrong with your post at all! :) - also seems like you've got quite a few specialists ruling other things out. Got good physiotherapy?
 
Hi Jjaannyy, welcome to the forum. If you have not already done so, please read the first post that is a sticky at the top of the General forum. It has suggestions for good things to do for yourself. :)

I always advise against using any steroids at all, myself. the problem with steroids is that they do make you feel better temporarily, but only by stimulating your adrenal system, which will start to respond less efficiently with time and will eventually stop working entirely, making you dependent on the steroids which are actually not doing you any good. Then there's a very long and painful time getting off the steriods.
There are better treatments, and I would encourage you to look into them. I have seen the results of long term steroid use and it's not pretty.

I hope that coming here will be a positive thing for you and that we can find ways to help and support you on this journey. that's what we are here for! We all understand what you are going through.
 
Thanks for the welcome,as for steroid it only have me a numb bum lol worked for a few weeks then stopped,thank you for the advice I will be taking it I am on quite a lot of meds and they don't really work neither,just sick of the constant pain and tiredness but I will read what you said thank you I am gratefull
 
You are most welcome. We are all here to help and support each other, and others here also have very good things to say.

Be aware that it is possible that some of the meds you are taking could be making things worse. If it is possible, I suggest paring down on those with your doctor's permission and supervision. Especially since they are not really working in any case.
 
Hi sorry don't get the tablet much kid's always have it.as for physiotherapy was all in the pipelines but bloody covid has put everything on hold,so maybe sometime before next Xmas, can't really moan there are a lot worse off pplthan me,I do find my electric blanket helps quite a lot and a salt bath when get chance,got myself a scooter omg never taught I would be saying that at 41 but on the plus side my daughter absolutely loves it pmsl😂😂🤗🤗
 
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