I have been living with symptoms including chronic shoulder pain and severely disturbed sleep since 2006 and was eventually diagnosed with fibromyalgia in 2015 after weeks of tests. Cried with relief at diagnosis, then at lack of treatments.
I am still working full time but finding it harder and harder to function on a day to day basis. My family know I can't do everything yet somehow expect everything magically to be done! I care for my 91 and 86 y old parents who have their own problems.
My boss isn't exactly an understanding type.
I take pain meds, drops of amitriptyline,and 2 prescription meds for sleep. I sometimes get a period of 4 hours unbroken sleep in a night with all the meds.
I'm so tired, all the time, even if I lay down to rest in the day I cannot sleep,
My pain level has gone from mostly manageable to a see-saw of agony and excruciating pain. All over, shoulders, elbows,wrists, hands, neck, eyes, skin irritation and burning, pelvis and lower back, knees, ankles and feet with a special hellish place for the Achilles tendon. Pain is aching, burning, sharp electric bolts, stabbing, cramping, the whole gamut, sometimes several types in different places at the same time.
Lately the pain level has gone up, but the worst is the exhaustion. Can't think for exhaustion. Can't make clear points at work, get lost in the middle...
Mainly I am worried about losing my job, there's not a lot going here at the moment. My life is already very small, I don't like making plans then letting people down. I've tried lots of massage therapy, relaxation, hypnosis, over the years they have helped a bit but also emptied my bank account.
I'm stuck in quite a dark place emotionally, and feel that progress has stalled. I don't have an energy for a plan... Also feeling very alone with my fibro.
Helpful advice anyone? Or just some understanding....
I am still working full time but finding it harder and harder to function on a day to day basis. My family know I can't do everything yet somehow expect everything magically to be done! I care for my 91 and 86 y old parents who have their own problems.
My boss isn't exactly an understanding type.
I take pain meds, drops of amitriptyline,and 2 prescription meds for sleep. I sometimes get a period of 4 hours unbroken sleep in a night with all the meds.
I'm so tired, all the time, even if I lay down to rest in the day I cannot sleep,
My pain level has gone from mostly manageable to a see-saw of agony and excruciating pain. All over, shoulders, elbows,wrists, hands, neck, eyes, skin irritation and burning, pelvis and lower back, knees, ankles and feet with a special hellish place for the Achilles tendon. Pain is aching, burning, sharp electric bolts, stabbing, cramping, the whole gamut, sometimes several types in different places at the same time.
Lately the pain level has gone up, but the worst is the exhaustion. Can't think for exhaustion. Can't make clear points at work, get lost in the middle...
Mainly I am worried about losing my job, there's not a lot going here at the moment. My life is already very small, I don't like making plans then letting people down. I've tried lots of massage therapy, relaxation, hypnosis, over the years they have helped a bit but also emptied my bank account.
I'm stuck in quite a dark place emotionally, and feel that progress has stalled. I don't have an energy for a plan... Also feeling very alone with my fibro.
Helpful advice anyone? Or just some understanding....