hope23
Senior member
- Joined
- May 16, 2017
- Messages
- 228
- Reason
- DX FIBRO
- Diagnosis
- 00/0000
- Country
- NZ
Lack of strength and spasmotic changes in strength is such a frustrating aspect of fibro(for me anyway) and its not really one that google(i know, dont judge, the info on Google is only as good as you backround understanding and knowledge base of a particular as a whole, but its hard not to google) talks much about either. This is a frequent (daily) issue for me whether its my hands/wrists dropping stuff for no reason when picking it up all was fine and then my hand like just went full relax no control over the muscle joints, my other major prob is left leg/side/SI region this frequently gets 'attacked' (not the right word but struggling to think of another that explains what i mean) and i end up on crutches because the leg/side is excruciating to move and has no strength and will randomly give out under me. And at this point majority of people jump to oh you must have sciatica, nope none of the tests(stretches that if you have sciatica will aggravate it or you wont be able to do it as its too painful) so not sciatica and my doctor agrees having carried out the 'tests' for sciatica.feeling a bit shaky today (as in weak, muscles not wanting to cooperate)
I feel like the muscles not cooperating is one of those background symptoms that isnt often talked about and for me this extends to going to the toilet as well, getting my muscles(either set) to cooperate to do the business is a battle(again not the right word but cant think of another, i think its more that the battle is to not get frustrated and stressed as both of these can make all symptoms worse) in itself lots of days.
And for me this isnt new, its been part of my fibro journey almost right from the start.
For me its one of the biggest frustration points as im like i know my muscles know how to do what im asking but theyre just not cooperating.
I feel your pain cookiebaker