just need to vent/whine/complain a little...

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I was warned about ibuprofen by dr's in the hospital before cookie, they said to be careful with the time length of taking them in case of stomach damage ( i dont use them any more, they give me tummy ache) 🍪🌈 🍪
 
an allowance of four plants per household….. Oh my goodness. Is this an actual law? your only allowed 4 plants each house? 😳
only 4 very specific plants... ;)

normal house plants you can have as many as you like... but this one particular kind of plant, only 4 are allowed - and that number will vary from state to state that allows medical m.j.

I was warned about ibuprofen by dr's in the hospital before cookie, they said to be careful with the time length of taking them in case of stomach damage
yeah, the stomach problems have been known about for a long time... the chronic pain issue is something new that we didnt know about.
 
Oh, i hope they get everything sorted out for you, cookie, so you'll feel better (interesting to know about the plant thing 😎) 🤗 🍪
 
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Yepper Auriel! 4 plants!🤣
 
I am just so done... with every thing... this past week has been a nightmare with the weather and feeling rotten... I feel miserable, physically and mentally. I hate being whiny, but at the same time, I know if I dont get it out I will continue to internalize and feel worse because of it.

Just so sick of taking pills.. supplements, prescriptions, all of it.. and feeling like nothing is improving. It seems like pills have taken over my life.. my day revolves around taking this supplement or that supplement... dont take this one with that one, cause it might interfere... UGH!!!
Not to mention some of them are quite large and difficult to swallow.. just so fed up with all of it...

Really would like to just curl up in a ball in bed, but that is apparently not possible either... hurts too much. So here i sit, uncomfortably, 😭
😭😭 my eyes out.

I just wrote a letter to the pain management specialist that I am leaving, explaining why I am leaving, and of course all of that has me wound up tighter than a clock-spring... have not sent it yet, as I am considering sending a copy of it to the upper management, and patient experience people as well. What she did borders on malpractice - not quite, but close.

so very tired of all of this nonsense... changing doctors, delays in getting treatment, the constant pain (mostly from the neck & low back problems at the moment) the pile of supplements i am supposed to take, and feeling like I am getting nowhere.. I dont feel any better.. dont feel any worse, either.. aside from the weather related aggravation of physical pain... ready for winter to be over.

*sigh* so tired...
 
Hi cookiebaker🥰
I am glad you can let it out when you need to on this forum.
I totally hear all of your frustration and I can understand why you are all wound up! You didn’t ask for any help or advice on your post…so feel free to ignore my thoughts below if you want…🙂

When I get sick and tired of everything and uber frustrated (usually with anxiety too) I go back to counseling.

Going to a counselor I have liked and used before is easy…but recently I had to find a new one because my old one passed away last year. So…of course it felt like such a struggle to even think about finding someone…so one day I just googled therapists near me and started calling each one to find out if the take new clients and if they take my insurance….and of course I read the reviews. Most people were not taking new clients. So one of the listings that came up on my phone was Thriveworks…
I called them and ….they “matched” me with an online counselor for that week!

Soooo….I have been really happy with my counselor and she has helped me a lot!!!

I know that Thriveworks takes many insurances and Medicaid too and you can call them any day….any time!

I guess my point is that sometimes a trained counselor can really help de clutter your brain…and help you cope with whatever you are facing. They can help you get organized….point you to resources…help change the way you think about something and just be there for you with all of their wisdom and compassion.

These are just my thoughts….several counselors have helped me over the years …sometimes just after a few sessions!

Anyway….I am thinking about you. Is it ok to pray for you?🙏🏽😊💕
 
Oh cookiebaker i am so sorry your stuck between a rock and a hard place. Us fibro’s and chronic painers find help encouragement and some good tips here to help us get through. It’s great just to vent at times, just let loose and get it out.
We’re all here for you. Xx
 
@cookiebaker , I think many of us can relate to what you are saying. I know I can. I am not experiencing exactly what you are, but the feeling of just wishing I were DONE with this, so tired of it, being angry at times, and so on is very familiar to me. The complain section on the forum is exactly for that....so we can at least get it out without burdening our family members or friends, because it won't burden the forum! We all get it.

One time when I was treated very badly on more than one occasion over a 2 year period at a certain pain clinic I found a place online where people were writing reviews of the pain clinics in the area. I wrote a scathing review, listing the things they had said and done, the ridiculously repeated mistakes they'd made, and how they treated me. That got their attention, and they replied to the post asking me to communicate with them directly about it. I never did, because I had already pointed out their mistakes in person over and over and it had done no good. I had already spoken to the people who treated me badly or spoke to me as if I were a dim-witted child, and nothing changed. But the bad review, which got a lot of "this was helpful" clicks, may have given them reason to examine how things were being done. At the least, it helped to warn other people about that place.

If there's such an option for the place/doctor you were seeing, you might consider that. It was a great release for me to call them out publicly. I'd never done that before. Normally I leave good reviews or nothing, but in this case it was fully deserved.
 
I'm so sad you feel this way, @cookiebaker. I'm not used to hearing you
like this! (your usually "up" and really, supporting everyone) it's your turn now for support, we all super understand what it's like to feel like this cookie, (it's such a horrible condition that you can't fix!) you won't always feel this way it WILL pass I promise (as will winter😊) I'm also in the same boat as to call someone out (for malpractice/medical negligence) as they denied I had something I "knew" i DID, and this condition (in my notes the specialist gave me) turns to cancer fast! (now i have to have an operation on monday because of it) so I also don't know whay to do regarding reporting them to management ( cos I know how sly health professionals can be sometimes protecting their own back's) plus the fact you're exhausted and don't really have much fight right now, but we're all in this cookie, with the other members, with YOU, and with the new members getting ready to join, cookie you'll be ok (fibro won't leave) you will find a way to deal with it again (there are people in your life cookie, who care and love you) I'm sending you lots + lots of hugs now 🤗🤗🤗🤗🍫🤗💐
 
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scathing review ... replied to the post asking me to communicate with them directly about it
Very good... :) Their answer seems silly, and (stereo-)typical... but I also believe you may have got something moving.
 
@MNP, @Harpy, @sunkacola, @Auriel - I want to thank all of you for the words of encouragement and understanding - it means a lot to me - more than you know. I am grateful to have this place for so many reasons. just knowing one is not alone in all of this mess makes coping a bit easier.

I'm not used to hearing you like this!
((hugs)) that is because I am really, really good at hiding/burying things.. and being online makes it just that much easier to do so, but I do it in face to face life as well... the "never let them see you cry" mentality - that is me... put on a brave face and carry on.

Anyway….I am thinking about you. Is it ok to pray for you?🙏🏽😊💕
Thank you, and yes, if you like, I would welcome that.
When I get sick and tired of everything and uber frustrated (usually with anxiety too) I go back to counseling.
Yeah, in an ideal world, I would too.. I had a great counselor for a time that I lucked into - she was exactly what I needed at the time, but sadly, she has moved on to a job in another state... so, like you, i would have to hunt down a new one.. and I am just not up to that these days.

I wrote a scathing review, listing the things they had said and done, the ridiculously repeated mistakes they'd made, and how they treated me. That got their attention
Oh yeah.. there are plenty of similar reviews of this clinic in recent years. (just left my own, in fact)
When I first moved to this area in the early '90s, the clinic was good, but things have really gone downhill on the last 10 yrs or so, and it got really bad when covid hit... Funny thing is, the good doctors are leaving in droves because of mismanagement at the top. It has turned into a revolving door of residency type doctors, PAs and NPs, and none of them stay for long because of the way this place is being run. I have gotten several letters in the past 2 years from doctors I have seen for various reasons that are leaving this clinic - not really surprised to be honest.

I am actually glad to be moving away from this clinic, but frustrated at the same time with delays in care caused by the move... everything is a tradeoff it seems. I try to remind myself that I am headed in the right direction and stay focused on that.
I'm also in the same boat as to call someone out (for malpractice/medical negligence) as they denied I had something I "knew" i DID, and this condition (in my notes the specialist gave me) turns to cancer fast! (now i have to have an operation on monday because of it) so I also don't know whay to do regarding reporting them to management ( cos I know how sly health professionals can be sometimes protecting their own back's)
I hope your operation goes well, and everything is taken care of! Will be thinking of you and sending prayers for a quick and complete recovery!
as for what to do about that "someone" - I would speak to an attorney/solicitor about possible malpractice/negligence. I know it is hard to prove these days, but in a case like yours, where something could potentially turn deadly - yeah.. scary stuff! Simply involving an attorney could get this person to own up and take responsibility for what they did. Not sure how things work over there, but here most law offices will give a free consultation to determine if you even have a case.
I have been considering consulting one about what happened with me - the erroneous info being put in my file - i doubt I have a case, but doesnt hurt to ask..

Again.. thank you all for the kind words, thoughts and prayers.. I am in a slightly better place, mentally, this morning. Still sick and tired of feeling sick and tired, but this is my reality for now... Hoping that soon things start getting better - measurably better.
 
ugh.. cant get comfy enough to sleep tonight.. just hurt too much.
 
Wow @cookiebaker you have been through the ringer!! I think the best thing ive learnt(and lots of it from the amazing crew here on the forum) is that its ok to feel that way and it is better to get it out there, you are strong and you can do this ❤️❤️
 
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