Just starting Savella for Chronic Pain and Anxiety please help me 😪

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HLJames

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I have very bad skin burning and itching and tenderness on my back and head that comes and goes randomly. I don’t know the trigger. I also have neuropathy in my feet and lower legs that could or could not be due to my lower back pain. I have tried several medications to help as I also have sever anxiety and depression from this-paxil, Lexapro, gabapentin, Zoloft, cymbalta, Nortriptyline, and now just starting Savella. It’s only been 6 days on the low dose titration of Savella and I have no relief yet. Does anyone take Savella and does it help ? Does it take time for it to work? I am losing my mind and taking so much gabapentin and klonopin to get me through this which I hate. Please please help me if you can.
 

sunkacola

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I wish I could help you with the savella, but I have never taken it. However, I do know that most medications for depression/anxiety take at least 2 weeks to show any effect, and sometimes take a month. I would give it more time, unless you get unpleasant or bad side effects from it.

I understand your desperation, I have been there. You live in a state where cannabis is legal, so you might try that for the pain. I recommend only using the edibles because smoking and vaping is entirely bad for you and you don't need another problem. It works best if you combine it 50-50 or 60-40 with CBD.
This is very likely to help your pain and your anxiety. For me, it does both, but doesn't help with the depression. Some people have medication-resistant depression, and it is possible that you do, but don't give up hope. It is also possible that if the cannabis helps with anxiety and pain, that alone will help with the depression; it depends on what kind of depression you have. I know mine is worse when I am in a lot of pain. Best of luck to you.
 

Maxsmom

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Don’t stop trying other options and I as well know your desperation but know that you will have good days , sometimes not an entire day . I myself have not tried Savella but I wish you success 🤗
 

HLJames

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Have you tired any medications? Do you get burning and itching skin?
 

HLJames

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Have you tried any medications? Do you have burning and itching skin?
 

Dusty1957

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I have very bad skin burning and itching and tenderness on my back and head that comes and goes randomly. I don’t know the trigger. I also have neuropathy in my feet and lower legs that could or could not be due to my lower back pain. I have tried several medications to help as I also have sever anxiety and depression from this-paxil, Lexapro, gabapentin, Zoloft, cymbalta, Nortriptyline, and now just starting Savella. It’s only been 6 days on the low dose titration of Savella and I have no relief yet. Does anyone take Savella and does it help ? Does it take time for it to work? I am losing my mind and taking so much gabapentin and klonopin to get me through this which I hate. Please please help me if you can.
I know where you are coming from. I hate being a guinea pig. I have found out I can't take any of the medications. So, I have started on a few herbs. It would be wonderful to find a pharmacist or doctor that did studies on their own about herbs, because they don't have all those horrible reactions that most medicines have. I never heard of Savella, so do some research. The Gabapentin reacted horrible on me. Everyone's body is different, but I have been through too much with doctors that I don't have trust in most of them anymore. I can't tell you what herbs I am taking, because they might not or they may work for you. Find a nutritionist but a good one. So many fly by nights have started companies with the CBD tablets and I was fool enough to order some that were not helpful until I got one that did help.
 

Creola17

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Try to not take medications because they have so many side effects which makes you need other medications. I always try supplements first. Even St. Johns wort has worked for depression.
Just remember that it takes a couple weeks to a month to feel the effects of supplements. Do research to find the best brands. Try essential oils, they help me with itching and spasms and pain.
Look up what foods cause inflamation.
Just keep fighting, life is worth it!
 

Alta

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The best thing I have ever done for myself (and my husband since he is going through this as my main support person) is to research my symptoms not separately if they started showing up together. This is how I was diagnosed with Fibro. I researched the symptoms the tests performed and the Drs. finally agreed that I did have Fibro> I have had to do the same with other symptoms. With medications I do not rely on the Dr or Pharmacist to know every side effect, or what other medications can interfere with the ones prescribed, they only focus on the more common ones. I have had rare side effects from more than one medication. Also, if you want the doctors to listen to you and your research make sure it is from a medical well known in research and advanced treatments: my favorites are Johns Hopkins, Cleveland Clinic, Mayo Clinic, UT Southwestern, Vanderbilt, and a couple of others. I never use WebMd or any of the others like that. My doctors know I do not want to tell them how to do their jobs but if you are tactful they should begin to listen to you and maybe hear your opinion and/or suggestions. Also anytime you are in the hospital you have the right to refuse medication, treatment, or request a different doctor or nurse. Just remember you are your own best advocate for yourself. I am sorry I got off track but this is important info for each of us to know. A good doctor or any other medical person will always want the patient's opinion concerning the patient's treatment.
 

HeatherFraser

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In this case, sedatives or weed can help.
 

MollyWatson

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I had big problems with the skin on my hands, after burns. The only thing that saved me from the pain was the weed. I understood that it was not legalized, but it seems to me that the legalization of marijuana depends on what the government has read about the use of marijuana for medical purposes.
 

JustinSpringer

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In this case, it's better to sell marijuana for medical reasons, regardless of the state.
 

Creola17

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One of these days everyone will know the truth about pot. I'm sick of the lies! I take RSO (Rick Simpson Oil) I sleep better with it and cured 3 dogs that had cancer. I smoke if I get headaches or bad pain. I eat it and drink it. I function just fine. Grow mt own food, process and cook it. I grow and process my own medicine. Look up the history. Thw government made it a BAD drug which it is NOT.
Sorry. Just tired of lies.
Stop believing everything you hear and do your own research.
Can't even trust doctors.
Finished venting.
(((gentle hugs)))
 

JustinSpringer

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These eternal disputes about harm and legalization are frankly boring. When I experience some pain and the only thing that can calm it is marijuana. I will not even worry about its legality.
 

HeatherFraser

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When I experience some pain and the only thing that can calm it is marijuana. I will not even worry about its legality.
 

CAPainwarrior

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I have very bad skin burning and itching and tenderness on my back and head that comes and goes randomly. I don’t know the trigger. I also have neuropathy in my feet and lower legs that could or could not be due to my lower back pain. I have tried several medications to help as I also have sever anxiety and depression from this-paxil, Lexapro, gabapentin, Zoloft, cymbalta, Nortriptyline, and now just starting Savella. It’s only been 6 days on the low dose titration of Savella and I have no relief yet. Does anyone take Savella and does it help ? Does it take time for it to work? I am losing my mind and taking so much gabapentin and klonopin to get me through this which I hate. Please please help me if you can.
It's literally crazy how anxiety and depression can exist simultaneously. But they can. Gabapentin did little for me, as did some of the others up there. Some did help. Acupuncture, surprisingly. Elavil at night made a difference. Cannabis can be helpful. I tried every diet, supplement, and health routine I could.

The one thing about this disease is that it's like a Medical-Mental Rubik's cube of symptoms. The combinations are ever changing.
Each person will have different symptoms, at different intensity, at different times. You yourself will have different symptoms and severity throughout your life. Unless a cure is found, which could happen at any time, any moment.

I've had fibro since 1984. My mother had it before me, too. Nobody (including me) believed her complaints because she looked like a very healthy person. She had modeled a bit before my birth, and looking at the photos of that time-she looked exactly the same as the mom I knew growing up. She was repeatedly in and out of mental hospitals, because the doctors could find nothing wrong in the areas that really hurt, and no understanding of the many odd symptoms, like constant thirst, for example.

To avoid the judgement of others, at times I've thought about using my cane when I didn't really need it, or keeping a knee brace on longer than strictly practical. Just so my outside might look something like I actually feel inside. If that makes sense.

For the last 30 years or so, the CDC had considered Fibromyalgia a "women's health issue"-an issue that was put down to mental illness, mainly. My mother was hospitalized at least a half dozen times when I was a kid. It was awful for her. And us. Having your mom taken away by ambulance automatically makes you stand out in school. And not in a good way.

So much has changed. The mere existence of this forum is proof of that. And Stanford scientists are on the job, ready to do the research.

But the needed federal money appropriated by the NIH, to such scientists, is almost non-existent. I personally believe that with the addition of the Covid long-haulers to this incredibly similar disease,-Fibro sufferers will benefit. Something good may come out of this devastating Covid pandemic which has taken so many from us.

Take care. I wish you the best.
 
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