Long term back issues and Fibromyalgia

Jrardon

New member
Joined
Mar 18, 2020
Messages
5
Reason
DX FIBRO
Diagnosis
03/2020
Country
US
Hello, I am and early 30s female. I have had back issues since I was in high school. Early MRI and X-ray showed beginning of disc degeneration at age 17. Now at 33 I have “advanced degenerative disc” in lower back. Since August 2019 I now have a ton of other issues including pain in all joints- back, Knees, shoulders, elbows, heels, neck and especially hips. I also have muscle twitches, Extreme muscle stiffness in the morning and at night. Just a normal day of work at my desk job is too much, by the time I get home I am miserable. I have a small house and by the time I am done cleaning it I can hardly move. GP thought Lupus. Went to Rheumatologist and they said it is isn’t Lupus- most likely Fibromyalgia. I am awaiting the final blood work results for final diagnosis but I am worried. If it is fibromyalgia... what medications work for pain?? I have fatigue too but honestly I can deal with that at my age, it is the pain that is truly horrible. I am curious if anyone else started this journey with back problems that turned into fibromyalgia?
 

sunkacola

Senior member
Joined
Dec 2, 2016
Messages
461
Reason
DX FIBRO
Diagnosis
00/0000
Country
Uni
State
Somewhere
Hi there,........as far as medications go, you just have to experiment and find what is best for you. Sorry, but there is no one or even four medications that work for everyone. One thing really helps one person, but does nothing for another. The best is to get a good sympathetic doctor who will prescribe something different for you if what you are taking doesn't work, and definitely stay away from any medication that contains opiate ingredients. For your second question - many people had back issues before developing fibro, but certainly not all.
 

Sick-n-Tired

New member
Joined
Jan 24, 2020
Messages
2
Reason
DX FIBRO
Country
US
State
NC
You just described the progression of the miserable life. Add multiple other symptoms, no quality of life, inability to work (took 4 years to get disability)...it’s all just too much. To much to even elaborate on because it makes no difference. Yes, I am down. I just try to get by 1 hour at a time. Been that way for a long time!
 

Sick-n-Tired

New member
Joined
Jan 24, 2020
Messages
2
Reason
DX FIBRO
Country
US
State
NC
You just described the progression of the miserable life. Add multiple other symptoms, no quality of life, inability to work (took 4 years to get disability)...it’s all just too much. To much to even elaborate on because it makes no difference. Yes, I am down. I just try to get by 1 hour at a time. Been that way for a long time!
 

Izabella

New member
Joined
Jan 29, 2020
Messages
2
Reason
DX FIBRO
Diagnosis
03/2019
Country
US
State
TX
Hi, I agree with others. A good sympathetic doctor will help you to find a medication/s that work/s for you. I got fibro and severe IBS after food poisoning in January 2018. I have been on a very restricted diet, as much anti-inflammatory as possible, since the beginning; unfortunately, it is not a complete cure. I also have bulging discs in my lower back and DDD in my neck. (my dr said it is genetic). What really helps me with joint pain is supplement Boswellia/Frankincense; I also take turmeric, but it does not do too much good for me. For fatigue, I use d-ribose and acetyl-n-cysteine. For healing, I try to use food and supplements as much as I can, but sometimes meds are the only answer. My advise, educate yourself as much as possible, stay positive and safe.
 

longtimer

Member
Joined
Feb 5, 2020
Messages
12
Reason
DX FIBRO
Diagnosis
02/2020
Country
CA
State
AB
Hello, I am and early 30s female. I have had back issues since I was in high school. Early MRI and X-ray showed beginning of disc degeneration at age 17. Now at 33 I have “advanced degenerative disc” in lower back. Since August 2019 I now have a ton of other issues including pain in all joints- back, Knees, shoulders, elbows, heels, neck and especially hips. I also have muscle twitches, Extreme muscle stiffness in the morning and at night. Just a normal day of work at my desk job is too much, by the time I get home I am miserable. I have a small house and by the time I am done cleaning it I can hardly move. GP thought Lupus. Went to Rheumatologist and they said it is isn’t Lupus- most likely Fibromyalgia. I am awaiting the final blood work results for final diagnosis but I am worried. If it is fibromyalgia... what medications work for pain?? I have fatigue too but honestly I can deal with that at my age, it is the pain that is truly horrible. I am curious if anyone else started this journey with back problems that turned into fibromyalgia?
Hi - I've had chronic back pain for about 23 years (from an injury from when I was 16, I'm now 60 this month) and the doctors spent the last 23 years trying to alleviate my pain. I finally had spinal surgery on my neck last summer and it has helped a lot - the doctors overlooked my neck all this time because all the discs in my lower spine are damaged too and I was getting a lot of pain down legs, into my hips, etc. Regarding Fibro - my doctor raised it with me about 2 years ago and I ignored it because I was already on pain meds and following all the stuff I learned about pain care and living with pain and I was sure that I needed surgery. However, after my surgery this year I was pain free for the first 6 months, until I went to physio and they injured me - after that the pain was widespread and I went back to my doctor and again he diagnosed Fibro - so now I accept it. I still take pain meds, but a lot less than when I started 23 years ago - it was a long process to find what combination of medications worked for me and didn't "drug" me. Now I am going off as much as I can, but still need to follow all those protocols I learned over the years about self care, meditation, relaxation and stretching (yoga). My foam roller is my best friend - it hurts but it helps, just like the stretching. The Fibro flares when the weather changes or I have stress (like now) but I keep on getting up in the morning. My motto to myself is "Patience is a virtue", and I have had to learn to be patient with both myself, my body and my doctors. I hope this information is of some help for you.
 

Jrardon

New member
Joined
Mar 18, 2020
Messages
5
Reason
DX FIBRO
Diagnosis
03/2020
Country
US
Hi there,........as far as medications go, you just have to experiment and find what is best for you. Sorry, but there is no one or even four medications that work for everyone. One thing really helps one person, but does nothing for another. The best is to get a good sympathetic doctor who will prescribe something different for you if what you are taking doesn't work, and definitely stay away from any medication that contains opiate ingredients. For your second question - many people had back issues before developing fibro, but certainly not all.
Thank you for your response. I was officially diagnosed today and the doctor wants to start with Cymbalta first, and possibly add Gabapentin later. I have read mixed reviews for Cymbalta so I am
Hoping It helps.
 

Jrardon

New member
Joined
Mar 18, 2020
Messages
5
Reason
DX FIBRO
Diagnosis
03/2020
Country
US
Hi, I agree with others. A good sympathetic doctor will help you to find a medication/s that work/s for you. I got fibro and severe IBS after food poisoning in January 2018. I have been on a very restricted diet, as much anti-inflammatory as possible, since the beginning; unfortunately, it is not a complete cure. I also have bulging discs in my lower back and DDD in my neck. (my dr said it is genetic). What really helps me with joint pain is supplement Boswellia/Frankincense; I also take turmeric, but it does not do too much good for me. For fatigue, I use d-ribose and acetyl-n-cysteine. For healing, I try to use food and supplements as much as I can, but sometimes meds are the only answer. My advise, educate yourself as much as possible, stay positive and safe.
Thank you! I am definitely interested in natural methods. I have heard that yoga can help I hope to get well enough soon to try that. Also acupuncture is something my doctor mentioned.
 

Jrardon

New member
Joined
Mar 18, 2020
Messages
5
Reason
DX FIBRO
Diagnosis
03/2020
Country
US
Hi - I've had chronic back pain for about 23 years (from an injury from when I was 16, I'm now 60 this month) and the doctors spent the last 23 years trying to alleviate my pain. I finally had spinal surgery on my neck last summer and it has helped a lot - the doctors overlooked my neck all this time because all the discs in my lower spine are damaged too and I was getting a lot of pain down legs, into my hips, etc. Regarding Fibro - my doctor raised it with me about 2 years ago and I ignored it because I was already on pain meds and following all the stuff I learned about pain care and living with pain and I was sure that I needed surgery. However, after my surgery this year I was pain free for the first 6 months, until I went to physio and they injured me - after that the pain was widespread and I went back to my doctor and again he diagnosed Fibro - so now I accept it. I still take pain meds, but a lot less than when I started 23 years ago - it was a long process to find what combination of medications worked for me and didn't "drug" me. Now I am going off as much as I can, but still need to follow all those protocols I learned over the years about self care, meditation, relaxation and stretching (yoga). My foam roller is my best friend - it hurts but it helps, just like the stretching. The Fibro flares when the weather changes or I have stress (like now) but I keep on getting up in the morning. My motto to myself is "Patience is a virtue", and I have had to learn to be patient with both myself, my body and my doctors. I hope this information is of some help for you.
This is very helpful- I appreciate you sharing. I would like to try meditation. I know that part of my problem is I am so tense and worried all the time about the pain ( and other stuff that I cannot control)
 
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