Low dose Naltrexone for FMS

Fatima

Member
Joined
May 31, 2020
Messages
23
Reason
DX FIBRO
Diagnosis
10/2019
Country
CA
State
ON
Has anyone tried Low Dose Naltrexone for Fibro pain? If you have, can you please tell me about your experience with this drug? Did it work for you? I am reading some small studies that suggest it works but I am hesitant to take drugs. Your input would be appreciated.
 

MargoJB

New member
Joined
Feb 13, 2020
Messages
3
Reason
DX FIBRO
Diagnosis
09/2018
Country
CA
State
ON
Yes, I have been taking LDN for about 6 months and it has been great! My pharmacist compounded .5mg capsules at the beginning and I ramped up to 5mg/day over about 2 weeks. My doctors had never heard of it, but my pharmacist said he fills these prescriptions all the time so he emailed me the correct way to write the prescription to give to my doctors. It has really helped with my body aches. I'd say it brought my baseline daily pain from 4 to 2 where it's pretty easy to ignore. I've had no side effects from it whereas I had many many side effects from Cymbalta and Lyrica. I *hate* those two drugs. I highly recommend Low Dose Naltrexone.
 

Fatima

Member
Joined
May 31, 2020
Messages
23
Reason
DX FIBRO
Diagnosis
10/2019
Country
CA
State
ON
Thank you for the info, much appreciated.
 

Lolomarie1943

Member
Joined
Jan 30, 2020
Messages
13
Reason
DX FIBRO
Diagnosis
09/1990
Country
US
State
CA
My understanding is that it Takes a long time to work. You must have at lest 8 hours between the Naltrexone and any opiates. I haven’t had it help me very much.
 

Fatima

Member
Joined
May 31, 2020
Messages
23
Reason
DX FIBRO
Diagnosis
10/2019
Country
CA
State
ON
Sorry to hear that it has not helped you. I was hopeful that this drug would help☹
 

Smileygirl

Member
Joined
Feb 6, 2020
Messages
18
Reason
DX FIBRO
Diagnosis
10/2005
Country
CA
State
ON
I have been taking Cymbalta for years now and I don't think I can go without it. What are the effects that you don't like? I take low dose CBD oil once a day . I have never heard of Naltrexone but I will ask about it. Thank you for mentioning this.
 
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