LolaMerle
Active member
- Joined
- Jan 4, 2022
- Messages
- 49
- Reason
- DX FIBRO
- Diagnosis
- 12/2021
- Country
- US
- State
- WA
I am new here, and I am really thankful to have found this forum! I am 67 and have been dealing with pain in my feet, shoulders, neck, mostly left arm, and sometimes in my knees, for about 15 years. The doctors I have seen never addressed fibromyalgia, but ordered every test under the sun to find out that I am very healthy, YAY! Although about a year ago blood tests showed that I have “Monoclonal B Cell Lymphocytosis”, which means high lymphocyte numbers - mine are up to about 7 now. This just means that “something” could be going on, but we have to wait until the numbers get up to 10 and above before anybody worries about it. I have also gone to the emergency room about 6 times over the years because my left arm was really painful and I had an unexplained pain in my chest (breastbone). Again, everything was fine and I was perfectly healthy (Yay! again, but what about the pain?). I finally found a primary care doctor that, in the first 15 minutes of the appointment, asked if I knew about fibromyalgia. I said yes, I have read about it. She gave me the test and I squealed in pain at most of the points. I had been diagnosed with peripheral neuropathy and already was taking Cymbalta (60 mg/day) and this new doctor prescribed Lyrica also (I’m up to 150mg twice a day). That was about two weeks ago. I’m sure most people here understand how great it can be to just get a diagnosis after searching for years to find out why you are in pain all the time! So of course now it’s time to deal with the diagnosis. I had Covid in August and I believe that caused a flare up of fibromyalgia that has caused me so much pain and fatigue since then. I force myself to get on my exercise bike once a day now, just for ten minutes, until I feel stronger to go more. I’m hoping that will help with the fatigue, too. My feet still hurt and my left arm has been screaming at me for a month now, but I’m determined to stay the course. I ordered CBD oil from Sunsoil and am anxious to get started on that. Has anyone else experienced changes in their lymphocytes in blood tests? That part is a mystery and kind of hard to accept that “something” might be brewing but I have to wait to find out what it is. I wonder if it can be related to fibromyalgia?
Thank you for being here! I’ve already learned so much just be reading posts.
Thank you for being here! I’ve already learned so much just be reading posts.