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Charmed_one

Member
Joined
May 12, 2014
Messages
16
Reason
DX FIBRO
Diagnosis
11/2013
Country
CA
State
ON
No problem :) I'm glad you found my reply helpful and reassuring :) As for your question regarding to the neurologist... well, if he is a good doctor he will :p I just hate how some doctors can be such a pricks when you ask them about things that aren't exactly treated by them and tell you to go see something else, instead of ordering the tests they already know you need!

By the way, was the MRI of your head?

Yes, brain MRI
 

Charmed_one

Member
Joined
May 12, 2014
Messages
16
Reason
DX FIBRO
Diagnosis
11/2013
Country
CA
State
ON
Mehlisue: I agree. It could very well be from other sources and those two are big ones. Also hahahah I know I study this a lot too. :p

AnnaOhio: Thanks for the update. I am so glad they did not find MS for you!
 

LeighLo13

New member
Joined
May 13, 2014
Messages
2
Reason
Undiagnosed
Diagnosis
05/2014
Country
US
State
Tennessee
I'm glad to hear yours is not MS! I go for my MRI next week .. I hope for the same results. Keep me in your thoughts please.

I wish you all well!

Leigh
 

Charmed_one

Member
Joined
May 12, 2014
Messages
16
Reason
DX FIBRO
Diagnosis
11/2013
Country
CA
State
ON
Oh dear, I had replied to you all but for some reason I see now it didn't post.

The MRI was of my head, yes. It came out okay.

I know have new developments that have nothing to do with MS or fibro. Kidney cysts and an ovarian cyst. I've really had it with these health problems. Also went back to the optometrist and I the one eye that was still 20-20 6 months ago, now has astigmatism.

Mehlisue: hahahah I know! And I know we will find an answer to all this. Im looking at alternative stuff right now which is not really my thing but my family and friends are pushing for it.

AnnaOhio: Im so happy for you! <3
 

Sherrie

New member
Joined
Jun 9, 2014
Messages
4
Reason
DX FIBRO
Diagnosis
06/2013
Country
US
State
CA
Hi, I have had a lot of pain for almost my whole life. I have been in a wheelchair for 13 years after a Dr. did a bad surgery on me. I am in pain everyday just depends on how much pain. My point here is, I went through many many Dr.'s each one made me think I was crazy. I went to many E.R's because of pain and I almost gave up, until I fought with a Dr and said I am not crazy and I know what I am feeling, she the sent me to a specialist and he knew from get go I had the worst case of FIBROMYALGIA and put me on medications and some worked some didn't, but now I can get to have better days then I did for a long time. He told me rest a lot, learn to say no to people, and don't let others tell you or make you feel you have to do more than what your body is telling you you can do. I suffer from CFS as well. You will find that with Fibromyalgia you will have so many more related health problems... Don't give up and never let others even family make you feel bad, they just don't know what we all know and suffer through each and every day. Good luck.
 

junebugrobts

Active member
Joined
Aug 14, 2014
Messages
49
Reason
DX FIBRO
Diagnosis
08/1989
Country
US
State
oregon
hi charmed one and to all interested. I have had fibro for almost 3 decades. I can relate to many symptoms you have. I was tested by a neurologist for a neurological disorder primarily affecting my feet and legs, tingling, and remand's phenominim where ones feet are so cold it is miserable. Recently I was referred to a pain management clinic and i began taking Gabapintin and am also on a pain patch. The most pain i have is in my lower back. I especially wanted to contact you because all of the things you mention and more are listed in the fibro hand out. One can run their legs off to one specialist and then another as i have when all along I have known I have fibro yet had no idea it caused so many variable problems.
Hang in there, no one can relate to this disease and it's easy for them to judge when then they have no clue what they are talking about
Best wishes head high keep trying
 

quarterbreed

Member
Joined
Sep 9, 2014
Messages
13
Reason
Other
Diagnosis
00/0000
Country
CA
State
nb
Many of your symptoms sound like they could be from an auto immune disorder. This is especially so since you have had symptoms throughout your life. Have you been tested for things like Lupus? I am just curious. Hope to hear your response.
 

AlexF15

Member
Joined
Sep 7, 2014
Messages
19
Reason
Relative
Diagnosis
00/0000
Country
US
State
Arkansas
I honestly don't know. I've had many of those symptoms and I have nothing. My brother was the "unlucky" one to get diagnosed with Fibro. I felt like I was always gonna be the one that had physical problems.
 

jenny

Member
Joined
Apr 5, 2014
Messages
28
Reason
Other
Diagnosis
00/0000
Country
US
State
CA
You have neither.. Research candida overgrowth
There are tons of diets & natural remedy for it.

Goodluck!
 

jenny

Member
Joined
Apr 5, 2014
Messages
28
Reason
Other
Diagnosis
00/0000
Country
US
State
CA
Olive leaf extract is one..
 
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