my fibro started brutally in just one day. Has anyone experienced it this?

JayCS

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These are examples of sources seem to be mainly functional/neuropathic and contradicting established views.
I forgot to add a more mainstream source: health.harvard.edu what-you-need-to-know-about-calcium...
 

Zahnj

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I guess i should go to a sleep study to find out more. What do you think?
When I went for my sleep study it was very informative. They monitored my heart, breathing, muscle spasms etc.

There maybe something else going on while you are sleeping that you aren't aware of.

Since I'm on an SSRI my psychiatrist actually rx Trazodone for sleep, which has helped me. Keep us updated!
 

JayCS

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I guess i should go to a sleep study to find out more. What do you think?
When I went for my sleep study it was very informative. They monitored my heart, breathing, muscle spasms etc.
There maybe something else going on while you are sleeping that you aren't aware of.
Ah, Jenny, you're so attentive and are pointing me to something I've missed again. (This time a question to me I overlooked, cos I thought he meant the TMJ bit!) 👐
My 2 sleep studies didn't show anything (supposed snoring was a measuring error), but I am still regularly going to the psychiatrists there, cos they're open minded and support me well. And I fully agree everyone with sleep problems should get sleep studies done. I had them done at home, which is less exact, but I'd be in pain all the time from a different bed.
 

cookiebaker

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And I fully agree everyone with sleep problems should get sleep studies done.
the whole idea just scares me... they are very quick to jump on the sleep apnea bandwagon here, and i can guarantee I wont sleep at all with something strapped to my face.. Yes, it is a psychological thing, and I am aware of it, but no.. nothing on my face, nothing tight on my neck.
not to mention that i kind of know why my sleep is so "disturbed" - i literally wake up in pain - as in fully aware, and have to roll over - sometimes this only happens once during the night, sometimes it is multiple times a night.
 

JayCS

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the whole idea just scares me... they are very quick to jump on the sleep apnea bandwagon here, and i can guarantee I wont sleep at all with something strapped to my face.. Yes, it is a psychological thing, and I am aware of it, but no.. nothing on my face, nothing tight on my neck.
not to mention that i kind of know why my sleep is so "disturbed" - i literally wake up in pain - as in fully aware, and have to roll over - sometimes this only happens once during the night, sometimes it is multiple times a night.
Ah OK, maybe in my case they didn't because it was psychiatrists not pulmonologists doing it.
But they did send me to ENT because of snoring 78% of the time. My wife and I: What?
So I recorded myself for 2x6 hours and only made a few noises about 5-10 minutes altogether...
So it was the small tube in my nose, adding to my post-nasal drip/stuffy nostrils.
Which I've now manage to get better with the help of airing frequently.
Strangely I slept slightly better in those nights than usual, but I'm sure coincidental, unless it was distracting me from worse things like pain. The most annoying thing was the blood pressure monitor, for comfort and noise. There was nothing on my neck by the way.

Well, OK - waking up cos of pain and rolling over 1-4x a night isn't what I'd do a study for!
I don't think my sleep lab psychiatrists would have recommended a study if that were all.
I'm talking about people like me having to get up for at least 5 minutes, more than 4x, altogether for 1-3h most nights and not just cos of pain. Or if someone also like me is regularly suddenly wide awake without being to find any reason at all. Haven't had that lately, but I think that's because usually even with little pain I can identify back unrest or histamine or cortisol, cos I now know the signs, day and night. (All this I can usually calm again with 15 second cold showers.) Waking up cos of pain is for me a secondary sleep issue, I spose what I meant was everyone with praps a primary sleep issue, independently of the pain....
So thanks for the correction!
 

cookiebaker

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Well, OK - waking up cos of pain and rolling over 1-4x a night isn't what I'd do a study for!
I don't think my sleep lab psychiatrists would have recommended a study if that were all.
Oh, but they "want me to do a sleep study" because "they suspect i might have sleep apnea" - really???
the reason for wanting me to do a sleep study? because I am not getting enough "restful" sleep...
I just told you fools I am waking up because of the pain in my body, but you continue to think i have sleep apnea... oooo-kay
now you see why i dont want to do a sleep study? and they keep bringing it up... and I keep saying no.

I also say no because they want me to do the study in the clinic, which is dumb, because I wouldn't sleep well due to unfamiliar surroundings & bed. Would be kind of pointless, would it not? the only way i would sleep would be if they gave me a sleep aid, and that would kind of defeat the purpose of the study...
 

JayCS

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but they "want me to do a sleep study" because "they suspect i might have sleep apnea"
Ah, now that makes it even more understandable. And it's just a shot in a dark on their part?
 

cookiebaker

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Ah, now that makes it even more understandable. And it's just a shot in a dark on their part?
kind of how it seems to me... just another guess on their part.

I recently (last year) had to change primary docs due to my old one retiring...
first visit with the new one and she brings up the sleep apnea thing.. I flat told her, even if i was diagnosed with sleep apnea, there is no way in he%# i could sleep with something over my face like the sleep apnea machine - i just could not do it. Period*.. so why waste time and energy on that (even tho i sincerely doubt that sleep apnea is my problem)

* I do have a very deep seated psychological issue that is the reason for this, and the "nothing tight on my neck" thing.. I wont go into it here, but yes, there are reasons for it. I have brought that up in the past, but it seemed like no one cared about that.. so i gave up talking about it.
 

JayCS

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I spose what I meant was everyone with praps a primary sleep issue, independently of the pain....
Not independently of fibro in my case tho, it started with the onset of my fibro full flare 3y ago.
 

JayCS

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While looking for more Teitelbaum stuff I was again surprised how much meds he actually recommends, compared with other docs, even non-functional ones.... :

An excellent new page (Aug 17th) by Cort on healthrising (four-experts-sleep-chronic-fatigue-syndrome-fibromyalgia) details the 73 aids 4 experts recommend for sleep, agreeing on only 1!
The big differences:
Murphree recommends: only supps, mainly 5-HTP,
Teitelbaum: supps, but also lots of meds!, esp. zolpidem/Ambien, in small doses.
Attia: magnesium and a sleep system,
Huberman: light, temperature, supps and apps.

Cort thoroughly recommends both "newcomers" Attia and Huberman.
Attia uses magnesium and the "Chillisleep OOLER Cooling Sleep System" to closely regulate body temperature.
Enlightening for me was that my body seems to prefer everything that Huberman (neuroscientist) recommends, and there's 3 on his supps list I haven't tried yet: Apigenen, Lysine and Myo-inositol. For GABA he recommends "2 grams every 3 or 4 days;" (2 others recommend it in combination products). An intriguing one of his is "drawing tablet".

There is so much interesting information out there! I think I need to work thru all of healthrising!
 

JayCS

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Huberman (neuroscientist)... 3 on his supps list I haven't tried yet: Apigenen *, Lysine and Myo-inositol
Reading up on him I've realized I'd already checked him, so I agree with Cort that he's trustworthy. He's at Stanford and does podcasts on youtube = h2aWYjSA1Jc (see also hubermanlab). 1h42 sleep-toolkit-tools-for-optimizing-sleep-and-sleep-wake-timing/%20
(he plugs affiliate products first and in between tho, but that's OK for me, cos his tone is OK.)
NSDR = non-sleep deep rest and it's similar to my Yoga Nidra and he confirms what I said that it's a great sleep replacement.
What I didn't at all realize is how important it is to get ourselves outside in the daylight (not thru windows) best inside the first five minutes of awake/sunlight, especially on cloudy days. 5' is enough on a clear day, on cloudy days 10', on rainy days 20-30'.
If it's very dark use a ringlight (for selfies etc.), or a drawing LED tablet as replacement rather than expensive sunlight simulators.
If in bed etc. all day, try to get double next day to make up for it.
Start as early as possible with exercise, or a walk outside in the daylight, looking at the sky.
Doing that today. In the "eye of the storm" my condition is in at the moment I seem able to do a full 7' workout and did that outside looking at the rainy sky, then pruned some shrubs meditatively. How dark it was inside afterwards! Also I've re-discovered my daylight lamp.
It's all easier knowing just 5' outside watching the sky as early as we can may make a lot of difference. It's not that I feel like brightness at all, but like exercise it's good to get it done.
Now I've realized where I can get magnesium threonate, I'll be trying that (altho he warns of GI effects), and apigenin and myo-inositol, whilst he doesn't mention the lysine that was on the healthrising page.

Funnily he says warm shower to get your body colder at night, but in the morning do something like a cold shower to get warm and activate epinephrin and dopamine after - so not sure why they're working for me at night, I guess my nervous system & hormones are wonky, his aren't.

* apigenin, it was spelled wrong on healthrising. And lysine is wrong too, not mentioned.
 

cookiebaker

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Funnily he says warm shower to get your body colder at night, but in the morning do something like a cold shower to get warm and activate epinephrin and dopamine after - so not sure why they're working for me at night, I guess my nervous system & hormones are wonky, his aren't.
i dont find it funny at all.
warm/hot shower to feel cooler is a pretty common thing and works pretty well (short term for me) in hot weather.
but then again.. regardless of shower temp, i shiver when i get out.. hot, cold, makes no difference.
 
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