Momzilla
Active member
- Joined
- Oct 28, 2021
- Messages
- 54
Hi I'm Andrea. I'm new.
I had Puppp rash first pregnancy when I was 20
Had emergency c-sevtion
29 -i had a spontaneous pneumothorax
My left lung almost 100% collapsed. Close to cardiac arrest. Ended up taking off top part of lung due to blebs. Right lung full of blebs.
Hands and feet always freezing
Fatigue
Weird rashes
34 Pregnant starting getting puppp rash
Another c-section
Symptoms have been all time worse since pregnancy
Arms burned so bad sometimes i could barely change diapers.
Horrible lower back and spine pain worse in morning
Often severe rib and sternum pain.
Sometimes hip and pelvic pain
Knee pain last few years
Weird sore lumps back of legs,shins, some hurt really bad. They come and go.
Lots of new rashes/eczema
Hands will get to the point they bleed
New weird reactions and swelling to bites/stings
New allergic reaction to CT dye. Face and eyes swelled and covered in hives.
My skin burns on face and arms.
Weakness in hands always
Joint pain in hands and knuckles
RLS
Bad days its almost like my arms and legs are numb. Not tingling though. Like zero strength.
I think I have EDS too
Can get bad pain in collar bone.
Some times my feet hurt when I get up.
My scalp can get really sore
I'm drastically losing my hair in a 4 year period.
If I scratch my arm it feels like someone is driving a screw driver into it and it takes minutes for the pain to stop. This is also in my thy and hips.
I bruise way to easy. I bumped my hand on corner of bathroom sink and looked down at it and could already see the lump and bruise. Now I have a penny size bruise on my hand. The rheumatologist told me I was tired because I had a toddler.
I have an incredible high pain tolerance. I had to get an emergency chest tube before they could wait for the morphine to kick in. I FELT it ALL. so why does this stuff all hurt so bad.
I have a lot of rash pictures if anyone ever shares those? Nothing too nasty or inappropriate.
I had Puppp rash first pregnancy when I was 20
Had emergency c-sevtion
29 -i had a spontaneous pneumothorax
My left lung almost 100% collapsed. Close to cardiac arrest. Ended up taking off top part of lung due to blebs. Right lung full of blebs.
Hands and feet always freezing
Fatigue
Weird rashes
34 Pregnant starting getting puppp rash
Another c-section
Symptoms have been all time worse since pregnancy
Arms burned so bad sometimes i could barely change diapers.
Horrible lower back and spine pain worse in morning
Often severe rib and sternum pain.
Sometimes hip and pelvic pain
Knee pain last few years
Weird sore lumps back of legs,shins, some hurt really bad. They come and go.
Lots of new rashes/eczema
Hands will get to the point they bleed
New weird reactions and swelling to bites/stings
New allergic reaction to CT dye. Face and eyes swelled and covered in hives.
My skin burns on face and arms.
Weakness in hands always
Joint pain in hands and knuckles
RLS
Bad days its almost like my arms and legs are numb. Not tingling though. Like zero strength.
I think I have EDS too
Can get bad pain in collar bone.
Some times my feet hurt when I get up.
My scalp can get really sore
I'm drastically losing my hair in a 4 year period.
If I scratch my arm it feels like someone is driving a screw driver into it and it takes minutes for the pain to stop. This is also in my thy and hips.
I bruise way to easy. I bumped my hand on corner of bathroom sink and looked down at it and could already see the lump and bruise. Now I have a penny size bruise on my hand. The rheumatologist told me I was tired because I had a toddler.
I have an incredible high pain tolerance. I had to get an emergency chest tube before they could wait for the morphine to kick in. I FELT it ALL. so why does this stuff all hurt so bad.
I have a lot of rash pictures if anyone ever shares those? Nothing too nasty or inappropriate.