pandoralys
Member
- Joined
- May 2, 2024
- Messages
- 16
- Reason
- DX FIBRO
- Diagnosis
- 04/2024
- Country
- UK
Glad there's a section for it, I really need to vent
I got diagnosed around two months ago, and my brother (who's my age btw) wasn't there when I had the diagnosis (he and I live in separate countries abroad). For context, in the past my parents always told our relatives or even family friends about my health news for other significant things, often before I did
Anyway today I was on the phone with my mum and asked in my brother knew about my fibro diagnosis, since I never got to tell him (I had a hard time talking about it the past few weeks, cuz the diagnosis was a little shock) and he just came home recently.
She said no it wouldn't speak out to him, basically what's the use. That hurt me, like a lot. It's a lifelong thing that impacts my daily life a lot sometimes; even if the name fibro doesn't speak to him he could still search it on the web or something. Being unknown doesn't make it less important than if I had some widely known disease. That made me think my mum does not realise at all how big of a deal it is for me; maybe it's my fault cuz I don't like talking about it, but she also never asks if I'm alright on that aspect...
I got diagnosed around two months ago, and my brother (who's my age btw) wasn't there when I had the diagnosis (he and I live in separate countries abroad). For context, in the past my parents always told our relatives or even family friends about my health news for other significant things, often before I did
Anyway today I was on the phone with my mum and asked in my brother knew about my fibro diagnosis, since I never got to tell him (I had a hard time talking about it the past few weeks, cuz the diagnosis was a little shock) and he just came home recently.
She said no it wouldn't speak out to him, basically what's the use. That hurt me, like a lot. It's a lifelong thing that impacts my daily life a lot sometimes; even if the name fibro doesn't speak to him he could still search it on the web or something. Being unknown doesn't make it less important than if I had some widely known disease. That made me think my mum does not realise at all how big of a deal it is for me; maybe it's my fault cuz I don't like talking about it, but she also never asks if I'm alright on that aspect...