Lecroix
Member
- Joined
- Oct 18, 2020
- Messages
- 10
- Reason
- DX FIBRO
- Diagnosis
- 10/2020
- Country
- US
- State
- PA
So I was in a car accident last December and suffered a neck sprain, bad concussion, whiplash, etc. I was doing vestibular therapy and concussion therapy. Fast forward to March and I get very sick, end up in the hospital needing an IV (maybe COVID, not sure), my legs went very weak and I could hardly walk. Then in April I hit my head again, and suffer a second concussion. After a bunch of tests, my neurologist suspects fibro may be the cause of some of my issues.
In May I started experiencing some burning pain in my extremities, very bad back pain, numbness and tingling pins and needles sensations throughout my boody, etc. I had a back MRI showed some bulging disc and mild disc degen but nothing too serious. Then my neck started hurting again (months after the accident). And my hands would sometimes go numb especially when laying down on them. And it wouldn't be like your typical falling to sleep either. At times, I feel tingling, burning, pin prick, type sensations throughout my body. My arms and legs will sometimes experience odd twitching/shaking sensation and my face will at times get tingly as well, with intermittent spasms and slight twitching. My joints will hurt often and get worse when I press on them (like elbow on the table). I will feel some facial pain as well on my worse 'flare up' days with some pretty bad head and neck aches. My neck feels like an ice pick is being pushed into it at times. Even my elbows feel at times burning especially if I put them down. When I touch my knees they are sore to the touch. I feel burning sensation. I'll feel the shaking really bad at times, like it flares up and then I feel completely exhausted. This hadn't happened for a while, like 2-3 months ago, and it just started picking back up again. I feel like I am having a "flare up" of sorts" Some of my symptoms could be explained by PCS (dizziness, vertigo, balance issues which have all improved). They don't think it is MS or ALS because 1. I never had these symptoms before all this happened and 2. Brain MRI, cervical MRI, back MRI show no lesions and I had an EMG/NCV test done .. clear.. all blood work for any mimic diseases clear .. I asked about ALS she said she does not suspect that. I have some pinched nerve in my right leg is all the EMG showed. No fasciculations were observed on the EMG. My PCP said MS would have shown up in the MRI's.
The only thing I haven't had done is have a spinal fluid test done. Not sure why all the tests are normal when I feel like at times I am getting worse, but other days I feel fine.
I take gabapentin (prescribed because of these issues), prilosec, pepcid, zrytec, medical marijuana. I was officially diagnosed with mild sleep apnea, GERD, IBS, post concussion syndrome, OCD, post traumatic neck arthritis, mild degenerative disc disease, PTSD and have allergies. I know brain trauma can mess you up but it just seems like this comes and goes, almost like a relapsing event. I would have thought it would have just been a straight forward path to recovery. At times, I feel like I am getting better, then worse, then better. I'm at the point now where I am coping and realize maybe I may just have to live like this with the pain and suffering. I am hopeful that I will get better. Sometimes my achiness/pain/soreness is so bad that it makes it harder to do things. My strength tests, reflex tests, etc. have also all been normal and all these tests have been fine. I can explain to myself the widespread body pain, numbness, tingly, etc feeling and IBS, trouble urinating on fibro but the facial pain/tingling/spasms I don't understand if that could be caused by fibro. Maybe some post traumatic whiplash/concussion effect? This is all perplexing to me. I just really hope I don't have some life threatening or degenerative disease! Tests seem promising though. I need to stay off Google!
In May I started experiencing some burning pain in my extremities, very bad back pain, numbness and tingling pins and needles sensations throughout my boody, etc. I had a back MRI showed some bulging disc and mild disc degen but nothing too serious. Then my neck started hurting again (months after the accident). And my hands would sometimes go numb especially when laying down on them. And it wouldn't be like your typical falling to sleep either. At times, I feel tingling, burning, pin prick, type sensations throughout my body. My arms and legs will sometimes experience odd twitching/shaking sensation and my face will at times get tingly as well, with intermittent spasms and slight twitching. My joints will hurt often and get worse when I press on them (like elbow on the table). I will feel some facial pain as well on my worse 'flare up' days with some pretty bad head and neck aches. My neck feels like an ice pick is being pushed into it at times. Even my elbows feel at times burning especially if I put them down. When I touch my knees they are sore to the touch. I feel burning sensation. I'll feel the shaking really bad at times, like it flares up and then I feel completely exhausted. This hadn't happened for a while, like 2-3 months ago, and it just started picking back up again. I feel like I am having a "flare up" of sorts" Some of my symptoms could be explained by PCS (dizziness, vertigo, balance issues which have all improved). They don't think it is MS or ALS because 1. I never had these symptoms before all this happened and 2. Brain MRI, cervical MRI, back MRI show no lesions and I had an EMG/NCV test done .. clear.. all blood work for any mimic diseases clear .. I asked about ALS she said she does not suspect that. I have some pinched nerve in my right leg is all the EMG showed. No fasciculations were observed on the EMG. My PCP said MS would have shown up in the MRI's.
The only thing I haven't had done is have a spinal fluid test done. Not sure why all the tests are normal when I feel like at times I am getting worse, but other days I feel fine.
I take gabapentin (prescribed because of these issues), prilosec, pepcid, zrytec, medical marijuana. I was officially diagnosed with mild sleep apnea, GERD, IBS, post concussion syndrome, OCD, post traumatic neck arthritis, mild degenerative disc disease, PTSD and have allergies. I know brain trauma can mess you up but it just seems like this comes and goes, almost like a relapsing event. I would have thought it would have just been a straight forward path to recovery. At times, I feel like I am getting better, then worse, then better. I'm at the point now where I am coping and realize maybe I may just have to live like this with the pain and suffering. I am hopeful that I will get better. Sometimes my achiness/pain/soreness is so bad that it makes it harder to do things. My strength tests, reflex tests, etc. have also all been normal and all these tests have been fine. I can explain to myself the widespread body pain, numbness, tingly, etc feeling and IBS, trouble urinating on fibro but the facial pain/tingling/spasms I don't understand if that could be caused by fibro. Maybe some post traumatic whiplash/concussion effect? This is all perplexing to me. I just really hope I don't have some life threatening or degenerative disease! Tests seem promising though. I need to stay off Google!