Longroad,
I am certainly far from an expert, and don't have ALS, but all of the discussion I have seen to this point has indicated that neuropathic pain points away from ALS. PALS do seem to suffer aches and pains related to muscle soreness, cramping, joints contracting, and reduced mobility; but neuropathic pain seems to be very rare.
Minus the arm flailing I would almost wonder fibro, but I am at a loss. You mention an EMG and are obviously seeing some specialists. Hopefully, they can give you some direction.
Best wishes,
Robert