That was just a brief description of neuropathy type pain. I have got pains before that feel like someone is sticking me with a fire hot poker. My last EMG was normal even though when they got done with my legs and moved up to my arms my legs were flayling around on the table like a fish out of water, and I could not control it or stop it.
I am certainly far from an expert, and don't have ALS, but all of the discussion I have seen to this point has indicated that neuropathic pain points away from ALS. PALS do seem to suffer aches and pains related to muscle soreness, cramping, joints contracting, and reduced mobility; but neuropathic pain seems to be very rare.
Minus the arm flailing I would almost wonder fibro, but I am at a loss. You mention an EMG and are obviously seeing some specialists. Hopefully, they can give you some direction.
Just a guess, not a medical opinion. But the nerve conduction study make's everyone really jumpy after it is completed. I remember watching my legs shaking like crazy after the nerve conduction, first part of the emg.. That could explain what you describe.
Pain from muscle spasms is not the same as neuropathic pain. Neuropathic pain is anything from burning and/or wrenching and/or pins and needles and/or etc., etc. but not muscle spasms . . . and that pain is caused by nerve inflammation, nerve compression, severed nerves, etc. In other words, pain caused by problems with sensory nerves and not with muscles. ALS is a disease of motor neurons and not sensory neurons. As Robert said, neuropathic pain is rare with ALS and typically causes neuro's to pursue a differential diagnosis.
I hope that helps . . . oh, and STOP reading medical dictionaries!
I have been diagnosed with Paraneoplastic Syndrome. The symptoms from Paraneoplastic Syndrome often mimic ALS. That is usually why they think it's ALS first. Paraneoplastic Syndrome is so rare very few doctors will ever see a case in their lifetime. They distinguish the two by the rippling of muscles and by doing blood test to fing the Paraneoplastic Antibodies. And for the record all doctors use medical dictionaries. They are requierd text books and that is one of a physician's learning tools. I most certainly want my doctors using them.
Good News , you do not have ALS !
Bad News , you are suffering.
I think the medical reference comment was aimed at people that try to self-diagnose themselves and end up finding way to much information and following a wrong path. There are a lot of these people. Yes , doctors do use them and are trained for this.
As I do not know much about your diagnosed, all I can offer is to treat the symptoms.