Hi Shel,
For lack of a definite diagnosis, I’m being treated for fibromyalgia.
If you want to be surer about it being fibromyalgia, I always recommend looking at the checklist of the 2016 ACR criteria attached.
Or should I say, my symptoms are being treated.
After endless searches for some root cause that might specifically explain my fibromyalgia, I have had much more success in treating my symptoms. Treating, not suppressing, though. So I actually think this is a positive way of going about it. Even my ideas of some root cause are so vague that they can't do any more than I'm doing already (which is lots).
I was just wanting some of your input on my symptoms. About 5 years ago, I had a simple surgery.
Yeah, many have things like this or a virus that trigger it.
After that, I’ve never been the same. My blood pressure went nuts ,
Same here. Which lead on to finding a severe lipid problem, so I'm glad it did.
Grown to be my biggest problem.
and I began to experience many odd neurological things like rigid muscle movement and a million other little “things “.
If the neurologists can't help these may be local things which specialized gentle physiotherapists can help with more, or finding your own specific exercises etc. using youtube videos or ideas here etc.
I never had pain until 2years ago. ..... To me, the onset of pain after 3 years and the neuro things don’t seem to be common in what I’ve seen about fibromyalgia.
Wow, lucky you didn't have pain before, but yes, that can happen.
Neuro stuff is very common.
I most definitely have a sensitivity to temperature changes, hot is hotter and cold is colder. At first the muscle and joint pain was only in the cold. Now it’s always.
Very common. Many flare in the cold / wind, some in the heat, some (like both) in both.
Muscle pain then for me is a severe overall Ache, different to when I'm overdoing it.
Joint pain often only seems that, if it's not rheumatoid then it's usually the tendons around the joints.
Initially I had gagging sensations, While brushing my teeth,
I used to have that, caused by being taut, anxious. Various mental strategies have helped with that.
A feeling where my eyes felt like they were being pulled like rubberbands (checked multiple times by ophthalmologist).
I think I've heard of that before. Sounds like the eye muscles? The involuntary muscle problems I have is bladder pain etc., and have got that down with relaxing supps (esp. GABA).
I still get dizzy once in awhile.
That can have a great many causes, so worth treating that singly. I once had it a while and realized I could influence it by closing my eyes while moving (like bending down).
Mostly I just get muscle fatigue after any muscle use. (Even chopping hamburger. )
Yep. We have to learn how to keep to the sweet spots (see
@sunkacola's
Advice Post), but also keep at it, best do things in short stints, but regularly, I like to task-switch a lot.
Not sure what "chopping hamburger" means - I do my kitchen work in short stints, task-switching, on bad days I rest my wrists on a chair to do so. Hamburger sounds like your diet could take a bit of change for general and specific health? ;-)
Have you ever heard of anyone only developing pain after years of the first onset of issues? Thank you!
Again, I think I have. I've had pain all my life (gut, stomach, skin, back), but got it well under control quite a few years before fibro. Then after a viral trigger I started getting flares of an overall "Ache" from things like cold, wind and getting stiffer and stiffer after not moving a while - is that something you'd discount as pain? (You've said fatigue & rigid muscle movement.) Then my full flare of fibro smashed in, as I'd been pushing thru, still working 45h/wk, the Ache getting extreme, braking my movements. Only then did a load of old and new local pains of all kinds add on to that, causing a lot of havoc, until 2 years later I've now got them very much under control again.
I'm also describing and asking back, because when I say "Ache" some people ask back and say that's nothing bad, it's not pain, so obviously are misunderstanding the severity which can reach just as high levels than local pains, and also be harder to manage.
