I pushed myself through the last 25 years with all the flares
I got Covid in January of this year and think I’ve been in a flare since April
new symptoms; Forearm pain, wrist pain, pins and needles in hands, knee pain, calf pain, back and ankle and foot pain. All at once, - ----- Does anyone else have all these areas of pain at once?
rheumatologist and she placed me on celebrex, which I could not tolerate after 3 days.
(otc) for the pins and needles?
I work full time and make chemo blankets and need to get one done this week, but my hands won’t allow it.
Will this flare ever go away, this has been the longest flare and it’s impacting my life drastically!
Very depressing to watch my family to continue through life activities and events without me.
Hi caramani - it's tough to think we've had it all, at least more than enough, and then a new level arises....
I'm there: the jabs triggered MCAS which has stopped me being able to go to work since December, or even move much. I can now do 15-20% from home, nothing physical, before 35% there. I'd been in a full fibro flare for 2 years and this 2nd MCAS flare after the 2nd jab doesn't look as if it's going to go away, altho I'm working at that for many hours most days.
My (25) new/changed symptoms started inside of hours / days / weeks of the jabs, so they were the triggers: D'you think the flare was triggered by CoV, although 3 months later? Does it feel like fibro or something else?
I was also put on celecoxib ('Celebrex') and another COX-2 inhibitor, also didn't tolerate them, after 1 day. They aren't for fibro pain, meds hardly help for fibro pain anyway. Doesn't sound as if you wanted to continue with meds, and tolerate their bad side effects, but if you did then pregabalin ('Lyrica') might be a better bet for fibro.
Whilst many people have alternating pains, mine were usually independent of one another, and I could treat each individually. So I get my local pains down to almost zero with various kinds of physiotherapy, mainly stretches, exercises, acupressure, but also things like cold showers. Now without therapist I successfully find something helpful on youtube, looking each symptom up with the PT form.
Also generally with supplements, the more commonly known ones for pain being: magnesium malate, NAC, Ω3, CoQ10 and SAM-e. Typical supps for pins and needles would be B-vitamins, vitamin D (sun), magnesium, Ω3, ALA, ALC, curcumin & turmeric (if your stomach tolerates those 2) and treatments: acupuncture & TENS unit.
To allow meetings longer than 30' with family & friends I'm developing various techniques - lying down with eyes closed near them, listening, enjoying and sometimes chipping in, or taking longer breaks alone. I talk with them all about what I need, what helps, what doesn't and they also (try to....) make suggestions. Instead I learn to savour and love as much of my new much slower life and communicate via mail and sometimes phone. And increase activities that I can, to be happier, always on the look-out for something new. Of course various mental techniques like mindfulness & relaxation are very helpful for that too.
Is that any help?