- Nov 1, 2015
Hi. I am new to this support group but so happy I found you all!
I had sudden extreme body pain in January of 2015. It took serval painful minutes just to get out of bed. Forget getting dressed and putting on shoes other than slip ons. After two weeks of unbearable pain, I went to my General Practioner who immediately diagnosed it as Polymyalgia Rhuematica. He gave me a prescription for steriods and said that within several months, the pain would subside. Not much improvement and more anxiety as I am a first grade teacher with a classroom full of active children. I have to be able to get up and do my job ,as well as the other things required to do my job well. I have a mortgage to pay and bills, like everyone else. I am not able to retire yet and cannot afford to not work. Plus, I am a very active person in general with lots of energy. I enjoy going to the gym for both my mental cleansing that it brings to me as well as the physical benefits. So everything changed for me.
My family suggested I see a Rhuematologist. He ordered several tests and blood work. He determined that I actually have Fibromylagia. So, I now have to ween off the steriod, that I in fact did no tneed to be taking, which will take up to six months to be done with them. My Rhuematologist started me on Gabapentin, 200mg, two times per day and 600 mg at night. I am so frustrated because it gives me very little relief and I just hurt all the time. My next appt is not till Nov. 11 but thinking I may need to call and see if I can get in sooner. My main area of intense pain is my knees, my hips and my shoulder blades/ribs. But this weekend, I have had intense pain in my shoulders, neck and up into my skull. Such a strange illness and tough when I was an active person with very little pain - except for when I over did it at the gym.
I am glad to find this site as just the little I have read of others stories/comments, it gives me comfort as you all "get it"!