New Member.. Hi there!

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coderlaury

New member
Joined
Apr 4, 2023
Messages
3
Reason
DX FIBRO
Diagnosis
07/2007
Country
US
State
AZ
Hi Everyone. I've been a "looky-loo" for many years.
Decided to join to allow for some interaction with other people with the same conditions.
I was DX'd in 2007 with FM. I have almost all symptoms.
I also have Anxiety... sometimes just want to go back to bed and pull the covers over my head and hide.
It seems the older I get the worse I feel.... Anyone else experiencing this?
I look forward to being a part of this Group.
~Laury
 
Hi Laury - just said Hi already on TheListeners's thread....! Nice to see you here.
I don't know if you've ever worked on your anxiety - if I hadn't it definitely would have got worse.
As it was it had caused major problems, like a trigeminal neuralgia, so I had to work on it for decades...
 
Hi Laury, welcome to the forum, ☕🥞, yeah, I've had that just wanna hide in my bed and pull the covers over me MANY times, (i suffer with more depression than anxiety,) its a challenging condition (more people are learning about it now though) and it's more common that what I first thought cos we've got members joining all the time, regular, I've noticed certain foods/drinks can make mine worse ( fibro +anxiety) so I'm gonna be changing my diet soon (one that's more suited to help ptsd,) I'm trying to stay in the present and thinking of things I'd still like to do (that I'll be physically capable of) and just being around good people, going places I like (when I feel up to it) and supplementing cos I don't think I have enough iron or b vitamins in my diet, oh yeah and gratitude practices (I've heard it helps seretonin + dopamine ) it's important that you have someone to talk to about your feelings + things (cos we can get stuck sometimes) 🤗💜🤗
 
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Interesting that you should mention TN. I had started having severe pain in my mouth.... Not just one spot...but all over. Went to the Dentist. He said it could be related to the Fibro and recommended I see a Neurologist. I, instead, decided I would see a Periodontist...thinking it was my gums. She stated my gums were fine and no problem with them. She mentioned a Neuro, so I decided I should see an Endodontist.... again, he mentioned the Neuro. Finally, saw the Neuro, she did brain scan which didn't show an Trigeminal Neuralgia.... but decided she would treat me for it anyway. Saw my Pain Specialist, but he can't do anything because he would need to know exactly where the pain was and I would need to actively be in pain at the time of the injection. Still have no Idea what the mouth pain is all about, but when it flares.... I can barely handle the pain. It's so bad that I can't even talk while it's going on.
Anyway, I know you mentioned the TN because of Anxiety, and maybe that's why I'm having such bad pain in the entire mouth area.
 
Anyway, I know you mentioned the TN because of Anxiety, and maybe that's why I'm having such bad pain in the entire mouth area.
Yeah, at least seeing that connection'd be a good reason for starting more intense relaxation, mindfulness, counselling...
However for my jaw issues I've identified 8 separate origins that all contribute - stress as well as just physical tenseness due to things like kitchen chores are 2, but like you imply my dentist finally found a jaw inflammation when it got big enough after 3-4 years, plus there were 2-3 other things with my teeth going on, also my trigeminus can well be a part of it... etc....
I make sure I work on all 8 origins... and up to now I've managed to save the tooth concerned.... and can keep the pain minimal.
 
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