New - Secondary Fibromyalgia

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poolnoodles

New member
Joined
Aug 13, 2013
Messages
6
Diagnosis
05/2013
Country
USA
State
PA
Hi all,

I'm new. Was diagnosed this May with Ehlers Danlos Syndrome and secondary fibromyalgia. Is anybody in a similar boat?
 

Marley

New member
Joined
Aug 12, 2013
Messages
5
Diagnosis
04/2013
Country
USA
State
Mo
Hi. I'm new here too. I'm not familiar with Ehlers Danlos Syndrome, care to elaborate? Welcome to the forum!
 

poolnoodles

New member
Joined
Aug 13, 2013
Messages
6
Diagnosis
05/2013
Country
USA
State
PA
Hi Marley, thanks for the welcome!

Ehlers Danlos Syndrome is a pretty rare disease, a genetic collagen disorder. It shows up in different "types." I have the hypermobility type, which means my joints bend backwards with chronic pain since there's little stability from tendons. There are skin manifestations as well, like abnormal scarring and stretchiness. I was in doubt about the diagnosis because it's so rare, but I was diagnosed separately by three different doctors, so I guess I have it :/

Thankfully, I'm still young and doing everything I can (exercise, eating right) to keep the pain at bay. I've found that being positive and patient about my limitations helps the most!
 
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