AdorkablesMama04
New member
- Joined
- Jun 28, 2017
- Messages
- 1
- Reason
- DX FIBRO
- Diagnosis
- 00/2005
- Country
- US
- State
- IL
Hello all!
First I want to say I'm sorry for turning what should be a short intro into a long one. Also, if you have trouble understanding I've had to start typing how things sound in my head and stop proofing my messages because it takes hours when I do and sometimes things turn out worse than when I started.
There is so much to my story, but here's the basics: my name is Amy, I'm 46, with a 13 year old daughter, and have been married for 19 years. I've had one medical problem or another since I was around 23 and had many, many surgeries. To me, Fibromyalgia was just another painful problem added on to a long list of problems. I forgot the exact date of my diagnosis but know I was going to a pain specialist, she didn't know a lot about FMS yet, it was just starting to be discussed in the medical community and many doctors wouldn't acknowledge it as a disease. I also have Chronic Fatigue and today the neurologist said he suspects MS and that these episodes I've had are a type of seizure, and ordered an MRI(there's a reason for not having one before now) and an EEG with sleep deprivation.
I have also have no support system. We go to church, but our congregation is old and when I'm not at church, I'm out of mind and I can't expect people who have their own medical issues to worry about mine.
At home, my husband believes like I did FMS is pain. He has some serious back issues and has had a ruptured quadriceps and a year later a tibia fracture to the same leg, rotator cuff surgery, and can't forget tennis elbow (!) . He always has to top my bad day with his worse pain. I get so upset, there's things he refuses to do around the house, that falls to me by default. Like climbing a ladder to the attic and crawling through it half-way across the house to uncover the whole house fan, otherwise it wouldn't have been done, even worse bend over to pick stuff he's dropped on the floor. I should add; when I was diagnosed, I was being treated for chronic pain and arthritis from failed back syndrome and a healed left hip fracture they fixed with a metal plate and rod. When I have a bad day, it's very bad. But forget getting support from him.
My daughter is 13, she sympathizes but what can she do?
Mom (it's in law but she's the only mom I have now (another story)), says I overreact and "read too much" and has implied I'm a hypochondriac. But she also has her own issues with pain. Talking to her about the neurologist today I couldn't get a read her though.
I mentioned FMS as another painful problem, that's because I thought it was, I also have IBS and knew about that relationship, and it's embarrassing to admit this but I just found out all the neurological, cognitive, and sensory issues are symptoms related to FMS. So I'm looking for support but also just to be able to chat with and sympathize with people who know and understand what we go through daily.
One last confession, lately even checking email has been a challenge for me, so I might take a while, but will check in when I can and look forward sharing my story and hearing yours.
First I want to say I'm sorry for turning what should be a short intro into a long one. Also, if you have trouble understanding I've had to start typing how things sound in my head and stop proofing my messages because it takes hours when I do and sometimes things turn out worse than when I started.
There is so much to my story, but here's the basics: my name is Amy, I'm 46, with a 13 year old daughter, and have been married for 19 years. I've had one medical problem or another since I was around 23 and had many, many surgeries. To me, Fibromyalgia was just another painful problem added on to a long list of problems. I forgot the exact date of my diagnosis but know I was going to a pain specialist, she didn't know a lot about FMS yet, it was just starting to be discussed in the medical community and many doctors wouldn't acknowledge it as a disease. I also have Chronic Fatigue and today the neurologist said he suspects MS and that these episodes I've had are a type of seizure, and ordered an MRI(there's a reason for not having one before now) and an EEG with sleep deprivation.
I have also have no support system. We go to church, but our congregation is old and when I'm not at church, I'm out of mind and I can't expect people who have their own medical issues to worry about mine.
At home, my husband believes like I did FMS is pain. He has some serious back issues and has had a ruptured quadriceps and a year later a tibia fracture to the same leg, rotator cuff surgery, and can't forget tennis elbow (!) . He always has to top my bad day with his worse pain. I get so upset, there's things he refuses to do around the house, that falls to me by default. Like climbing a ladder to the attic and crawling through it half-way across the house to uncover the whole house fan, otherwise it wouldn't have been done, even worse bend over to pick stuff he's dropped on the floor. I should add; when I was diagnosed, I was being treated for chronic pain and arthritis from failed back syndrome and a healed left hip fracture they fixed with a metal plate and rod. When I have a bad day, it's very bad. But forget getting support from him.
My daughter is 13, she sympathizes but what can she do?
Mom (it's in law but she's the only mom I have now (another story)), says I overreact and "read too much" and has implied I'm a hypochondriac. But she also has her own issues with pain. Talking to her about the neurologist today I couldn't get a read her though.
I mentioned FMS as another painful problem, that's because I thought it was, I also have IBS and knew about that relationship, and it's embarrassing to admit this but I just found out all the neurological, cognitive, and sensory issues are symptoms related to FMS. So I'm looking for support but also just to be able to chat with and sympathize with people who know and understand what we go through daily.
One last confession, lately even checking email has been a challenge for me, so I might take a while, but will check in when I can and look forward sharing my story and hearing yours.